Night #2 was both good and bad. Mostly good I guess. Chase seemed to be resting somewhat well throughout the early evening. He mentioned his tummy was hurting several times but it wasn't clear if it was nausea, the chest tubes or a need to poop.
Around 12:30 AM, we had our answer when he puked. A lot. Everywhere. The poor thing! I have no idea where the volume came from as he hadn't had more than a few sips of juice and bites of crackers all day. But there it all went, and then some! Along with the Tylenol and Oxycodone I had fought with him to take an hour earlier. A bed change and lots of wet wipes later, he was resting again.
Then per the norm, our middle of the night chest X-Ray showed up around 3:30 AM. Chase's favorite. It was over quickly and he tolerated it well. But had a tough time going back to sleep.
I asked his nurse for meds to help and we agreed we didn't want to give him or Tylenol or Oxycodone as his tummy would probably not handle it well. She & I agreed on some IV morphine. She came back and dosed him up and I waited patiently for him to settle down. Only he started acting... silly. Like, loopy silly. I got very concerned as this is not his typical response to morphine. He also got the hiccups which was weird and seemed very uncomfortable what with the chest incision and tubes.
I checked with the nurse and she had added Versed to his cocktail.
Huh!?
She said the day nurse told her it made him sleepy?? This was news to me! I hadn't heard he had been dosed with any Versed other then prior to his surgery Friday morning.
She also said the hiccups were from the Versed too. Ugh! Poor guy! He needed to rest but instead had the hiccups and was telling me I had 5 eyeballs. He was so chatty and loopy... not at all what we needed or expected.
Luckily he seemed to finally calm down and settle after about 20 minutes of crazy. And he slept well for the most part.
The nurse told me his chest X-Ray looked hazy, "very hazy," actually, and the echo tech would be heading in to take some pics of his heart to look for perfusions. I believe the haziness is somewhat expected since he's confined to bed and unable to move around to get that extra fluid off his lungs.
So the echo tech arrives at 6:30 AM to my sleeping baby boy, but was very quiet and gentle and able to get the images he needed without much disruption. He did see a good bit of fluid but it was a pretty typical amount for this stage of Fontan recovery. We'll just need to get him up and moving soon to help flush that fluid out through his chest tubes.
Sunday should (hopefully) be a rather quiet day. We should have more direction, information and a game plan after morning rounds on Monday.
Thanks for checking in and praying for Chase!!!
Sunday, May 11, 2014
Saturday, May 10, 2014
Post-Fontan Day 2
Today is Saturday (right?) and it's been a very lovely day for Chase! He's made some significant progress on his road to recovery! By around 24 hours post-op, he had already lost the breathing tube, the OG tube, his femoral arterial line, his rectal temp probe, and dropped from 9 med pumps to 4. That's amazing!!
He still needs some oxygen support with the nasal cannula at 2 liters, and still has his central venous line, 3 chest tubes, a line directly to his heart to measure pressure, and a Foley catheter. This is AMAZING progress!!!!!
The biggest question for post-Fontan patients is drainage. His chest tubes have had the typical volume of output at this stage, and if anything, it's been slightly less than expected, rather than more. This is excellent news!! The volume of chest tube output is the main factor in how long we'll be staying, and so far things look encouraging. But it's too soon to get our hopes up as it could increase once he picks up his food intake. Please pray with us that he doesn't have unusually large volumes of output!
He's was playing on the iPad while watching a movie, but is resting a bit now. He's on a pain med schedule to keep him comfy with additional doses of Tylenol and Oxycodone as needed. Overall his spirits are high (all things considered) and he's been a real champ!
Our plan for tonight is to continue to let things ride as they are. They're weaning him off the pumps and will most likely have him ready for the floor by Monday, I'd guess. Not much happens in the ICU over the weekend, especially when his surgeon isn't here to make the big decisions in his care. But tomorrow we'll probably lose the catheter and then either tomorrow or Monday, he should lose the heart pressure line and central venous line (these calls are all deferred to his surgeon). He'll be left with 3 chest tubes and most likely keep a bit of O2, and that's how I'd imagine he'll look when we head up to the step-down unit on 8D. I'd honestly be surprised if they kept us in the ICU beyond Monday with how well he's progressing, assuming a room is available to send us to on the floor.
Thank you as always for your continued thoughts, prayers and well-wishes for our boy! He is truly rocking the Fontan! God is so very good!
A few pics from our day...
He still needs some oxygen support with the nasal cannula at 2 liters, and still has his central venous line, 3 chest tubes, a line directly to his heart to measure pressure, and a Foley catheter. This is AMAZING progress!!!!!
The biggest question for post-Fontan patients is drainage. His chest tubes have had the typical volume of output at this stage, and if anything, it's been slightly less than expected, rather than more. This is excellent news!! The volume of chest tube output is the main factor in how long we'll be staying, and so far things look encouraging. But it's too soon to get our hopes up as it could increase once he picks up his food intake. Please pray with us that he doesn't have unusually large volumes of output!
He's was playing on the iPad while watching a movie, but is resting a bit now. He's on a pain med schedule to keep him comfy with additional doses of Tylenol and Oxycodone as needed. Overall his spirits are high (all things considered) and he's been a real champ!
Our plan for tonight is to continue to let things ride as they are. They're weaning him off the pumps and will most likely have him ready for the floor by Monday, I'd guess. Not much happens in the ICU over the weekend, especially when his surgeon isn't here to make the big decisions in his care. But tomorrow we'll probably lose the catheter and then either tomorrow or Monday, he should lose the heart pressure line and central venous line (these calls are all deferred to his surgeon). He'll be left with 3 chest tubes and most likely keep a bit of O2, and that's how I'd imagine he'll look when we head up to the step-down unit on 8D. I'd honestly be surprised if they kept us in the ICU beyond Monday with how well he's progressing, assuming a room is available to send us to on the floor.
Thank you as always for your continued thoughts, prayers and well-wishes for our boy! He is truly rocking the Fontan! God is so very good!
A few pics from our day...
First Post-Fontan Night
((Sorry if this post is ramble-y... I've been up for over 26 hours straight...))
Our first night post-Fontan was a quiet one... exactly what you want after a major heart surgery! Chase slept very well with the help of his sedation and pain meds. It's a tricky balance to keep all of the numbers (heart rate, blood pressure, oxygen saturation, etc.) happy, but his team has been dedicated to him since he arrived from the OR and have kept him very comfortable. That makes this process much easier for me! He was having some issues keeping his heart rate up, so they decided to use the pacing wires that were temporarily placed during surgery to "dial in" his heart rate exactly where they wanted it (99).
They slowly weaned his ventilator support and were ready for a CPAP trial at 3:30 AM. This is when they let him breathe solely on his own to ensure he is able to support himself before removing the tube. His blood gasses all looked wonderful and he was slowly weaning off his sedation drips, which meant he began getting agitated with the tube. It's heartbreaking to see his tears and to watch him try to cry, but no sound comes out. :( The nurse and respiratory tech agreed he was ready, but they needed the doctor to sign off on it first and give the verbal go-ahead. Two pages and 45 minutes later, she finally arrived and agreed! Whew!
Chase was a champ for the removal! They had a bunch of tape on his face to take off (which went waaaay better than I expected), and pulled the tube quickly and without any issues. He also had an orogastric (OG) tube that went from his mouth to his stomach that was removed at the same time. So by around 5:00 AM, he was down two tubes and gained a nasal cannula of 3 liters of oxygen. By about 5:30 AM, they moved him down to 2 liters with sats at a very comfortable 90.
The plan is to keep him comfy and let him rest until rounds in the morning, around 8AM. He may have other plans, though. Literally about 20 minutes after the tube was out he was asking to play on my iPhone!! Haha! I told him if he would rest until 6:00 AM, that maybe he could play with my iPhone then. So far, so good!
Before & After extibation.
It's now about 6:15 AM and he's still resting peacefully. I'm sure he'll remind me about the iPhone as soon as he wakes up again!
Holding steady!
Thanks for checking on our boy! We appreciate the love, support and prayers!
Our first night post-Fontan was a quiet one... exactly what you want after a major heart surgery! Chase slept very well with the help of his sedation and pain meds. It's a tricky balance to keep all of the numbers (heart rate, blood pressure, oxygen saturation, etc.) happy, but his team has been dedicated to him since he arrived from the OR and have kept him very comfortable. That makes this process much easier for me! He was having some issues keeping his heart rate up, so they decided to use the pacing wires that were temporarily placed during surgery to "dial in" his heart rate exactly where they wanted it (99).
They slowly weaned his ventilator support and were ready for a CPAP trial at 3:30 AM. This is when they let him breathe solely on his own to ensure he is able to support himself before removing the tube. His blood gasses all looked wonderful and he was slowly weaning off his sedation drips, which meant he began getting agitated with the tube. It's heartbreaking to see his tears and to watch him try to cry, but no sound comes out. :( The nurse and respiratory tech agreed he was ready, but they needed the doctor to sign off on it first and give the verbal go-ahead. Two pages and 45 minutes later, she finally arrived and agreed! Whew!
Chase was a champ for the removal! They had a bunch of tape on his face to take off (which went waaaay better than I expected), and pulled the tube quickly and without any issues. He also had an orogastric (OG) tube that went from his mouth to his stomach that was removed at the same time. So by around 5:00 AM, he was down two tubes and gained a nasal cannula of 3 liters of oxygen. By about 5:30 AM, they moved him down to 2 liters with sats at a very comfortable 90.
The plan is to keep him comfy and let him rest until rounds in the morning, around 8AM. He may have other plans, though. Literally about 20 minutes after the tube was out he was asking to play on my iPhone!! Haha! I told him if he would rest until 6:00 AM, that maybe he could play with my iPhone then. So far, so good!
Before & After extibation.
It's now about 6:15 AM and he's still resting peacefully. I'm sure he'll remind me about the iPhone as soon as he wakes up again!
Holding steady!
Thanks for checking on our boy! We appreciate the love, support and prayers!
Friday, May 9, 2014
Fontan Post-Op Summary
I know it's been a few hours since my last post, and I apologize for the delay in sharing a summary of Chase's day! We've been by his side since 2:45 PM and his ICU room has been buzzing all afternoon/evening as the team works to keep him comfortable and moving forward with his recovery.
As I mentioned in my last post, his surgery went perfectly and his surgeon was very happy with everything. The only "issue" they had was that for some reason, Chase came out of the OR red. Yes, red. They assumed it was an allergic reaction to something, but weren't able to pinpoint what. It quickly dissipated and his color was pretty normal when we first saw him. In fact, we finally saw a PINK(er) Chase! His oxygen saturation was much higher -- due in part to his new Fontan circulation and his 100% O2 ventilator settings.
It is now 9PM and we are working on slowly weaning him off of the ventilator so we can get the breathing tube out. He's still completely sedated and the plan is to keep him that way to allow him to continue to rest throughout the night. I plan to stay by his side, which is made much easier by the fact that we are in a "private" room in the PCICU. They are very family-centered here and allow us to stay bedside 24/7 if we choose (and believe me, I choose to do so!!).
I'll update more later as we make progress, but I'm hopeful it's a quiet night for us both.
Thank you for your continued thoughts and prayers for our sweet boy!!!
- Posted from my beloved iPhone
As I mentioned in my last post, his surgery went perfectly and his surgeon was very happy with everything. The only "issue" they had was that for some reason, Chase came out of the OR red. Yes, red. They assumed it was an allergic reaction to something, but weren't able to pinpoint what. It quickly dissipated and his color was pretty normal when we first saw him. In fact, we finally saw a PINK(er) Chase! His oxygen saturation was much higher -- due in part to his new Fontan circulation and his 100% O2 ventilator settings.
It is now 9PM and we are working on slowly weaning him off of the ventilator so we can get the breathing tube out. He's still completely sedated and the plan is to keep him that way to allow him to continue to rest throughout the night. I plan to stay by his side, which is made much easier by the fact that we are in a "private" room in the PCICU. They are very family-centered here and allow us to stay bedside 24/7 if we choose (and believe me, I choose to do so!!).
I'll update more later as we make progress, but I'm hopeful it's a quiet night for us both.
Thank you for your continued thoughts and prayers for our sweet boy!!!
- Posted from my beloved iPhone
Fontan is Complete!
2:16 PM. We just spoke with surgeon and everything went exactly as expected. He did great and is getting settled into the PCICU unit at this moment. We were told we should be able to see him at 2:45 PM.
I guess we're technically "post-Fontan" -- something we've been waiting almost 5 years to be! But I won't breathe a real sigh of relief until I have seen that boy of mine with my own eyes!
Thank you so much for your continued thoughts and prayers throughout this day! We are so grateful for your support!!!
Stay tuned for more updates and pics!
- Posted from my beloved iPhone
I guess we're technically "post-Fontan" -- something we've been waiting almost 5 years to be! But I won't breathe a real sigh of relief until I have seen that boy of mine with my own eyes!
Thank you so much for your continued thoughts and prayers throughout this day! We are so grateful for your support!!!
Stay tuned for more updates and pics!
- Posted from my beloved iPhone
Fontan Update #6
2:04 PM
"Will be over (to see us) shortly. They are in the PCICU."
We are waiting to speak with the surgeon.
- Posted from my beloved iPhone
"Will be over (to see us) shortly. They are in the PCICU."
We are waiting to speak with the surgeon.
- Posted from my beloved iPhone
Fontan Update #5
1:13 PM
"Not much longer..."
We've been advised to remain in the waiting room as the surgeon will look for us there shortly after Chase arrives in the PCICU.
- Posted from my beloved iPhone
"Not much longer..."
We've been advised to remain in the waiting room as the surgeon will look for us there shortly after Chase arrives in the PCICU.
- Posted from my beloved iPhone
Fontan Update #4
12:05 PM
"They have just come off heart lung bypass, all is going well, have about 1-2 hrs to go before arriving to PCICU."
"They have just come off heart lung bypass, all is going well, have about 1-2 hrs to go before arriving to PCICU."
Fontan Update #3
11:06 AM
"They are better than half way there. All is going well."
Thank you for the continued prayers!
"They are better than half way there. All is going well."
Thank you for the continued prayers!
Fontan Update #2
9:55 AM
"They are on heart lung bypass and working away, all is going well."
- Posted from my beloved iPhone
"They are on heart lung bypass and working away, all is going well."
- Posted from my beloved iPhone
Fontan Update #1
Our first pager update was received this morning around 9:05 AM.
"All is going well in the OR, just getting through scar tissues as expected. Chase remains very stable. Will send hourly updates until they are finished."
Keep praying!!!
- Posted from my beloved iPhone
"All is going well in the OR, just getting through scar tissues as expected. Chase remains very stable. Will send hourly updates until they are finished."
Keep praying!!!
- Posted from my beloved iPhone
Fontan Surgery Begins
We were out the door this morning around 5:15 AM. Someone was in a pretty good mood considering how early it was!
We arrived at the hospital just after 5:30 AM this morning and headed to the surgical check in area. We had already registered for today's admission yesterday, but apparently there were some issues that resulted in a bit of a "re-do" this morning. Just a short delay before we were able to take Chase back to get prepped for his surgery.
The staff was great and had us quickly checked in. Before we knew it, it was time for his special versed cocktail. He did NOT want to take the medicine, so hubs had to hold him down while I had him drink it. They have him a small sip of water afterwards and he was happy. Literally less than 5 minutes later, he was REALLY happy!
We talked with our silly boy for a bit, then after lots of hugs & kisses, it was time to hand him over to the anesthesiologist to take him to the OR. Thankfully he was happy and didn't mind it one bit. We stood there and waved as we watched our son be carried off for his third heart surgery. Not surprisingly, it wasn't any easier than the last two times.
We are situated in the waiting area, armed with a pager that will give us hourly updates throughout the procedure, with the first update expected around 9AM. I will post the updates here as we receive them.
Thank you to all who are praying for my sweet Chase. Just thank you.
- Posted using BlogPress from my iPhone
We arrived at the hospital just after 5:30 AM this morning and headed to the surgical check in area. We had already registered for today's admission yesterday, but apparently there were some issues that resulted in a bit of a "re-do" this morning. Just a short delay before we were able to take Chase back to get prepped for his surgery.
The staff was great and had us quickly checked in. Before we knew it, it was time for his special versed cocktail. He did NOT want to take the medicine, so hubs had to hold him down while I had him drink it. They have him a small sip of water afterwards and he was happy. Literally less than 5 minutes later, he was REALLY happy!
We talked with our silly boy for a bit, then after lots of hugs & kisses, it was time to hand him over to the anesthesiologist to take him to the OR. Thankfully he was happy and didn't mind it one bit. We stood there and waved as we watched our son be carried off for his third heart surgery. Not surprisingly, it wasn't any easier than the last two times.
We are situated in the waiting area, armed with a pager that will give us hourly updates throughout the procedure, with the first update expected around 9AM. I will post the updates here as we receive them.
Thank you to all who are praying for my sweet Chase. Just thank you.
- Posted using BlogPress from my iPhone
Thursday, May 8, 2014
Pre-Op Day Success!
For those interested in the specifics of tomorrow, we are scheduled to arrive at the hospital at 5:30 AM, they plan to take him back around 6:15 AM and should begin the procedure at 7:30 AM. It should take about 6 hours from that time.
Here's a summary of our day of pre-op. Chase was all ready to go this morning!
EKG? No worries! It literally took longer to put on the stickers than complete the test!
Chest x-ray was next. It was one of two hard parts of his day. He fought us on the chest x-ray big time!! But it was over quickly and we moved on to the next thing.
Oh, the next thing turned out to be his blood draw. Daddy held him down on his lap while they got it done. He was NOT a fan. Again, it was over fairly quickly.
After a quick escape to the cafeteria for lunch, we went back upstairs for his echo. He did awesome, per his norm.
After all of this, we waited to see the important players for tomorrow, including the surgeon, anesthesia team, cardiologist and more! All of our questions were answered, and we were pleased that we didn't have any surprises and that everything is as we expected it to be. It's weird being in this place again. Four years seems so long ago, but at the same time, it feels like we never left. Maybe because it's our reality 24/7, whether it involves surgeries or just the day-to-day life of loving a child with half a heart.
After the "fun" of pre-op, we went back to the house to grab our other two and my mom to grab dinner. These two! Love!!
After dinner it was time for some go-kart fun! This is one of Chase's favorite things of all time!!
A motorcycle ride later, and it was time to head back to the house.
But not before one last "pirate" pic with Blackbeard! Chase didn't get the pirate memo.
Then of course it was time for ice cream!
Considering it's almost 9:00 PM and we still need to get this guy a shower, I guess I'd better get back to work! I'll post updates tomorrow as we receive them during surgery beginning at 9:00 AM.
Thank you so so so much to all of you who are praying for us, texting us and thinking of us. We especially covet your prayers over the next 24 hours!! We are blessed by your love and prayers!!!
As a reminder, you can send cards, notes, etc. to Chase (as well as LO and E) at the address below:
PO Box 12406
Charleston, SC 29422
Here's a summary of our day of pre-op. Chase was all ready to go this morning!
EKG? No worries! It literally took longer to put on the stickers than complete the test!
Chest x-ray was next. It was one of two hard parts of his day. He fought us on the chest x-ray big time!! But it was over quickly and we moved on to the next thing.
Oh, the next thing turned out to be his blood draw. Daddy held him down on his lap while they got it done. He was NOT a fan. Again, it was over fairly quickly.
After a quick escape to the cafeteria for lunch, we went back upstairs for his echo. He did awesome, per his norm.
After all of this, we waited to see the important players for tomorrow, including the surgeon, anesthesia team, cardiologist and more! All of our questions were answered, and we were pleased that we didn't have any surprises and that everything is as we expected it to be. It's weird being in this place again. Four years seems so long ago, but at the same time, it feels like we never left. Maybe because it's our reality 24/7, whether it involves surgeries or just the day-to-day life of loving a child with half a heart.
After the "fun" of pre-op, we went back to the house to grab our other two and my mom to grab dinner. These two! Love!!
After dinner it was time for some go-kart fun! This is one of Chase's favorite things of all time!!
A motorcycle ride later, and it was time to head back to the house.
But not before one last "pirate" pic with Blackbeard! Chase didn't get the pirate memo.
Then of course it was time for ice cream!
Considering it's almost 9:00 PM and we still need to get this guy a shower, I guess I'd better get back to work! I'll post updates tomorrow as we receive them during surgery beginning at 9:00 AM.
Thank you so so so much to all of you who are praying for us, texting us and thinking of us. We especially covet your prayers over the next 24 hours!! We are blessed by your love and prayers!!!
As a reminder, you can send cards, notes, etc. to Chase (as well as LO and E) at the address below:
PO Box 12406
Charleston, SC 29422
Wednesday, May 7, 2014
The End of Quarantine!!!
Quarantine ended today! Yay!! Grandparents arrived today to help us as we prepare for Chase's surgery. The kids were SO excited to see them!!! We had a productive day, including some errands, a home haircut for Chase and a dinner date for hubs and I! While we're no longer officially in quarantine, we still must be diligent in keeping Chase away from germs and sick individuals. But hugs & squeezes from grandparents are a-okay!!
Tomorrow we have a full day of pre-op scheduled: temp, o2, BPs (x4), chest X-ray, echocardiogram, EKG and a blood draw. We will meet with the anesthesiologists and our surgeon, Dr. Bradley. We also plan to take Chase to the Atrium (ginormous play room) for a bit as well. It'll be a long, exhausting day, but we're bringing plenty of distractions to help Chase get through the day.
Please pray for us tomorrow as we work through the pre-op requirements. Please pray they don't find anything that could potentially delay this surgery... elevated temp or white blood count (signs of a possible infection), etc. We need a clean bill of health to sign off and make Chase's Fontan a "Go!" As much as I'm dreading this, I know it's what he needs and we just need to get through it so he can be stronger & healthier.
Thank you for your prayers! And don't forget -- you can send well wishes to Chase at the address below! Thank you for your support!
Chase
PO Box 12406
Charleston, SC 29422
Tomorrow we have a full day of pre-op scheduled: temp, o2, BPs (x4), chest X-ray, echocardiogram, EKG and a blood draw. We will meet with the anesthesiologists and our surgeon, Dr. Bradley. We also plan to take Chase to the Atrium (ginormous play room) for a bit as well. It'll be a long, exhausting day, but we're bringing plenty of distractions to help Chase get through the day.
Please pray for us tomorrow as we work through the pre-op requirements. Please pray they don't find anything that could potentially delay this surgery... elevated temp or white blood count (signs of a possible infection), etc. We need a clean bill of health to sign off and make Chase's Fontan a "Go!" As much as I'm dreading this, I know it's what he needs and we just need to get through it so he can be stronger & healthier.
Thank you for your prayers! And don't forget -- you can send well wishes to Chase at the address below! Thank you for your support!
Chase
PO Box 12406
Charleston, SC 29422
Quarantine: Day 16
Short & sweet.
Woke up to kisses and giggles from this one.
Road-tripped with these three:
Nobody napped a wink. E did some light reading and lots of eating!
Contacted by our credit card company. Three fraudulent charges had been declined. Our card has been compromised. Cancelled. New cards coming. Need to get that PO Box set up in the morning.
Dinnertime. Pizza and juice boxes ftw.
My pet horse, Princess.
Love this smiley one!
Now to get kids settled in for the night. And make fun plans for tomorrow.
Overall a very nice birthday!
Woke up to kisses and giggles from this one.
Road-tripped with these three:
Nobody napped a wink. E did some light reading and lots of eating!
Contacted by our credit card company. Three fraudulent charges had been declined. Our card has been compromised. Cancelled. New cards coming. Need to get that PO Box set up in the morning.
Dinnertime. Pizza and juice boxes ftw.
My pet horse, Princess.
Love this smiley one!
Now to get kids settled in for the night. And make fun plans for tomorrow.
Overall a very nice birthday!
Mail Time!
If you would like to send cards, notes, get well wishes, etc. to Chase (or notes of encouragement to LO or E), please send them to the address provided below. We will keep everything we receive in a scrapbook for Chase to have as a keepsake from this surgery and as a reminder of the many friends, families and blog readers across the world who have been thinking of him and lifting him up in prayer.
Chase
PO Box 12406
Charleston, SC 29422
Thank you in advance for following along on this journey with us! We don't know what we'd do without your support!
- Posted using BlogPress from my iPhone
Chase
PO Box 12406
Charleston, SC 29422
Thank you in advance for following along on this journey with us! We don't know what we'd do without your support!
- Posted using BlogPress from my iPhone
Monday, May 5, 2014
Quarantine: Day 15 (The One with Lots of Randomness)
Day 15 of quarantine. Donezo. This'll be short and sweet 'cause we've got a long day tomorrow and I need some rest! So here goes!
I love mornings with this silly guy!
Today LO and I started our homeschool journey. She kept begging me all day long to get started! I wonder how long that will last? Anywho, one quick story from today. We were working on math and there were a few shapes to identify: sphere, cone and... what I thought was a cube was, per Miss LO, actually a "rectangular prism!" She never ceases to amaze me! LOL!
Working away! I'm so already in love with homeschool if it means pajamas and crazy hair at 2 o'clock in the afternoon!
All these guys happened to be downstairs at the same time -- a very rare event! It's LO's Teddy, Chase's Monkey and E's Elephant. The kiddos have all had these lovies since birth. So sweet!
These are the very blue nail beds that are certain to be much more pink following his Fontan! It's seriously breathtaking just how blue his fingers and toes are in real life. I'm so looking forward to being post-Fontan and saying "c-ya later!" to this cyanosis!
After dinner tonight it was CRAZY windy so we busted out the kites again. LO's Dora kite was so high!!!
Love this crazy girl and her crazy sense of style (complete with Rainbow Dash wings and tail from last year's Halloween costume)!
And yes, Chase in his pajamas at 6:00 PM (thank you, quarantine!), sunglasses and brown Timberlands flying his Superman kite. Guess the crazy sense of style thing runs in the family?
This boy! Oh, this boy is so close to taking his first steps!! We're working on his balance, as evidenced by this pic. He's so fun and so silly at this age... I just love him!
Before the kids went to bed tonight, they surprised me with early Mother's Day gifts since we'll be quite preoccupied on the actual big day. What a beautiful necklace! The other side quotes 1 Corinthians 13:8, "Love never fails." So perfect!
And hubs, who knows me so well (and can also access my many Amazon wish lists), picked me up one of the books I've been eyeing. I love me some Clinton Kelly!
Thanks again to everyone for keeping up with us. We really love and appreciate all of our supporters out there!
Oh, and just a heads up... we're getting a PO Box while we're in Charleston and I plan to share the address here as soon as we have it. I know it would mean a LOT to Chase to receive a special note or card from one (or more) of his faithful prayer warriors during his hospital stay! If it's not too much trouble, please consider it! I'll post the address later this week.
Love to all!!!
I love mornings with this silly guy!
Today LO and I started our homeschool journey. She kept begging me all day long to get started! I wonder how long that will last? Anywho, one quick story from today. We were working on math and there were a few shapes to identify: sphere, cone and... what I thought was a cube was, per Miss LO, actually a "rectangular prism!" She never ceases to amaze me! LOL!
Working away! I'm so already in love with homeschool if it means pajamas and crazy hair at 2 o'clock in the afternoon!
All these guys happened to be downstairs at the same time -- a very rare event! It's LO's Teddy, Chase's Monkey and E's Elephant. The kiddos have all had these lovies since birth. So sweet!
These are the very blue nail beds that are certain to be much more pink following his Fontan! It's seriously breathtaking just how blue his fingers and toes are in real life. I'm so looking forward to being post-Fontan and saying "c-ya later!" to this cyanosis!
After dinner tonight it was CRAZY windy so we busted out the kites again. LO's Dora kite was so high!!!
Love this crazy girl and her crazy sense of style (complete with Rainbow Dash wings and tail from last year's Halloween costume)!
And yes, Chase in his pajamas at 6:00 PM (thank you, quarantine!), sunglasses and brown Timberlands flying his Superman kite. Guess the crazy sense of style thing runs in the family?
Before the kids went to bed tonight, they surprised me with early Mother's Day gifts since we'll be quite preoccupied on the actual big day. What a beautiful necklace! The other side quotes 1 Corinthians 13:8, "Love never fails." So perfect!
And hubs, who knows me so well (and can also access my many Amazon wish lists), picked me up one of the books I've been eyeing. I love me some Clinton Kelly!
Thanks again to everyone for keeping up with us. We really love and appreciate all of our supporters out there!
Oh, and just a heads up... we're getting a PO Box while we're in Charleston and I plan to share the address here as soon as we have it. I know it would mean a LOT to Chase to receive a special note or card from one (or more) of his faithful prayer warriors during his hospital stay! If it's not too much trouble, please consider it! I'll post the address later this week.
Love to all!!!
Sunday, May 4, 2014
Quarantine: Day 14
Day 14 of quarantine has been a slow, quiet day. This guy showed up in my room and proceeded to chat away about all sorts of things! It was wonderful waking up to this silly boy!
I just love him -- bed head and all!
After breakfast we set up a makeshift photo studio to take 1st birthday pics of E with his cake. We have the exact same shot of the older two and of course had to do one with E as well. It definitely wasn't my best work, but it'll do! It helps that I had an adorable subject to work with!
See these other two 1-year-old cuties with their cakes?
Of course I can't just share one pic from the shoot today... here's a few more!
Haha! Love him!
So I finally started packing today. Three kids' worth of clothes, toiletries, shoes, toys, books, activities... whew! It's quite overwhelming! I must admit that folding up those hospital gowns I made along with the rest of Chase's clothes and loading them up into his Super Mario suitcase was quite a reality check for me. This is really happening. Really.
Packing, playing with the kids, napping (seriously, I had The. Best. Nap. Ever. today!) and that was about it. Oh, Chase did decide to run outside in his pajamas this afternoon to hit the sprinkler hubs had set up to water the new sod that went in last week...
I called him inside for dinner and he proceeded to strip down out of his wet pajamas and enjoy his meal in nothing but his skivvies! He's seriously such a riot, this boy of mine!
And please excuse the horrible lighting, but I had to include one more pic of this guy. My baby!
I've noticed I don't have any pics of LO today. Weird! I'll be sure to make up for it tomorrow. ;)
Thanks again for reading these ramblings as we prepare for Chase's 3rd heart surgery in a few days. We are so in need of the continued prayer support of our family, friends and blog readers! Please keep us in mind as we make preparations for heading down to Charleston and getting Chase through everything that is coming his way. We just love our rock star so much and we just know God is going to do exceedingly and abundantly more than we could ever ask or imagine! To Him be the glory!!!
I just love him -- bed head and all!
After breakfast we set up a makeshift photo studio to take 1st birthday pics of E with his cake. We have the exact same shot of the older two and of course had to do one with E as well. It definitely wasn't my best work, but it'll do! It helps that I had an adorable subject to work with!
See these other two 1-year-old cuties with their cakes?
Of course I can't just share one pic from the shoot today... here's a few more!
Haha! Love him!
So I finally started packing today. Three kids' worth of clothes, toiletries, shoes, toys, books, activities... whew! It's quite overwhelming! I must admit that folding up those hospital gowns I made along with the rest of Chase's clothes and loading them up into his Super Mario suitcase was quite a reality check for me. This is really happening. Really.
Packing, playing with the kids, napping (seriously, I had The. Best. Nap. Ever. today!) and that was about it. Oh, Chase did decide to run outside in his pajamas this afternoon to hit the sprinkler hubs had set up to water the new sod that went in last week...
I called him inside for dinner and he proceeded to strip down out of his wet pajamas and enjoy his meal in nothing but his skivvies! He's seriously such a riot, this boy of mine!
And please excuse the horrible lighting, but I had to include one more pic of this guy. My baby!
I've noticed I don't have any pics of LO today. Weird! I'll be sure to make up for it tomorrow. ;)
Thanks again for reading these ramblings as we prepare for Chase's 3rd heart surgery in a few days. We are so in need of the continued prayer support of our family, friends and blog readers! Please keep us in mind as we make preparations for heading down to Charleston and getting Chase through everything that is coming his way. We just love our rock star so much and we just know God is going to do exceedingly and abundantly more than we could ever ask or imagine! To Him be the glory!!!
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