Chase's bronchoscopy couldn't have gone better this morning. They took him back a few minutes after 7am and he was back in the PCICU after about 30 minutes!!! The ENT doc said she was able to clear out all remaining tissue from his throat and said the healing that had take place since the last procedure looked perfect! She doesn't anticipate he'll need another bronchoscopy, which means we're on target to move forward with the swallow study tomorrow! Praise the Lord! We are so very grateful for this!
Thank you all for your prayers this morning!!!
Posted from my iPhone
Showing posts with label Bronchoscopy. Show all posts
Showing posts with label Bronchoscopy. Show all posts
Monday, November 23, 2009
Thursday, November 19, 2009
Progress Report
Well, it's been an uneventful few days here on 7C. Chase has been progressing wonderfully with his feeds: he's now up to a 45 minute compressed feed with 2 hours and 15 minutes between them. His goal is 30 minute compressed feeds, which we should be at tomorrow. He's really surprised me yet again and has been processing his feeds like a champ! He has had almost no reflux which is a HUGE bonus!!! I'm so very proud of him. Oh, and he's now up to 9 lbs. 2 oz. which is further proof his feeds are going well.
So we're scheduled for first case Monday morning for Chase's next bronchoscopy. They'll take him back around 6:30 AM for the procedure and he'll head back to the PCICU for recovery, which I'm totally fine with. My prayer is that everything will go smoothly this time and he won't have any major setbacks. Please keep him in your prayers for Monday, too!
Assuming all goes well Monday morning, Chase will finally have his swallow study on Tuesday. This is a HUGE prayer need because we REALLY need the swallow study to go well so we can start working on bottle feeding! Once he's taking all of his feeds by mouth, WE WILL BE DISCHARGED AND ABLE TO GO HOME!!! So you can imagine how critical this is. I don't even want to get into what will happen if he aspirates when he swallows, so just pray that this final last key to the eating process goes well.
My boy has been sleeping the day away and I haven't been able to bring myself to pick him up and hold him since he's so peaceful! See for yourself below! I think after I post this I'm gonna have to get him -- I can't take it anymore!!! :)
Posted from my iPhone
So we're scheduled for first case Monday morning for Chase's next bronchoscopy. They'll take him back around 6:30 AM for the procedure and he'll head back to the PCICU for recovery, which I'm totally fine with. My prayer is that everything will go smoothly this time and he won't have any major setbacks. Please keep him in your prayers for Monday, too!
Assuming all goes well Monday morning, Chase will finally have his swallow study on Tuesday. This is a HUGE prayer need because we REALLY need the swallow study to go well so we can start working on bottle feeding! Once he's taking all of his feeds by mouth, WE WILL BE DISCHARGED AND ABLE TO GO HOME!!! So you can imagine how critical this is. I don't even want to get into what will happen if he aspirates when he swallows, so just pray that this final last key to the eating process goes well.
My boy has been sleeping the day away and I haven't been able to bring myself to pick him up and hold him since he's so peaceful! See for yourself below! I think after I post this I'm gonna have to get him -- I can't take it anymore!!! :)
Posted from my iPhone
Monday, November 16, 2009
Step Back
Last night was a bit rough in terms of sleep for mommy, but little Chase had a pretty good night. He seems to be taking to his new room on 7C quite well. Unfortunately, it's time for yet another step backwards.
The ENT folks came through this morning and did a flexible scope bronchoscopy on Chase here at his bedside. I was completely devastated when the doctor said she'd need to repeat last Wednesday's procedure to remove some additional granulation (scar tissue) from his throat. I could not believe it. You can imagine the fears and concerns that overwhelmed me when I heard this. There still isn't a clear explanation as to why Chase coded and required CPR after this procedure last week, so I'm less than confident they know how to prevent it from happening again. I am so scared!!! Plus, he'll probably have to spend the night after the procedure -- you guessed it! -- back in the PCICU. This isn't a big deal. What I'm less than excited about is I'll have to pack up our room here on 7C for the night and probably be put into a different room the very next day. ((sigh))
They also put off his swallow study until later this week since he apparently needs to be on one-hour compressed feeds and right now he's on two-hour feeds. I was looking forward to the swallow study because I just have this feeling that he's going to excel at it and that we'll move forward with mouth-feeding by bottle and eventually (hopefully) able to start breastfeeding. So ultimately today has turned into a series of steps back and/or a lack of progress forward.
I know, I know. Everyone said this would happen. I should have seen it coming. But truly, the idea of Chase repeating the bronchoscopy procedure in the OR again has me beyond frightened. What if they can't bring him back like they did last time?? I've been in tears over this all morning. I know God is still here and still is in control of Chase. I know He has a perfect plan for my son and I do believe His plan involves complete healing. He is with us through this journey. But I'm still human, I'm still a mommy, and I'm still afraid.
The ENT folks came through this morning and did a flexible scope bronchoscopy on Chase here at his bedside. I was completely devastated when the doctor said she'd need to repeat last Wednesday's procedure to remove some additional granulation (scar tissue) from his throat. I could not believe it. You can imagine the fears and concerns that overwhelmed me when I heard this. There still isn't a clear explanation as to why Chase coded and required CPR after this procedure last week, so I'm less than confident they know how to prevent it from happening again. I am so scared!!! Plus, he'll probably have to spend the night after the procedure -- you guessed it! -- back in the PCICU. This isn't a big deal. What I'm less than excited about is I'll have to pack up our room here on 7C for the night and probably be put into a different room the very next day. ((sigh))
They also put off his swallow study until later this week since he apparently needs to be on one-hour compressed feeds and right now he's on two-hour feeds. I was looking forward to the swallow study because I just have this feeling that he's going to excel at it and that we'll move forward with mouth-feeding by bottle and eventually (hopefully) able to start breastfeeding. So ultimately today has turned into a series of steps back and/or a lack of progress forward.
I know, I know. Everyone said this would happen. I should have seen it coming. But truly, the idea of Chase repeating the bronchoscopy procedure in the OR again has me beyond frightened. What if they can't bring him back like they did last time?? I've been in tears over this all morning. I know God is still here and still is in control of Chase. I know He has a perfect plan for my son and I do believe His plan involves complete healing. He is with us through this journey. But I'm still human, I'm still a mommy, and I'm still afraid.
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