Sunday, June 27, 2010

Date Night? What's That?

WARNING: This post is pretty long. And somewhat sappy. Read at your own risk!

Date night? What's that?

No, really. What is that?

It's been well over a year (for obvious reasons) since hubs and I had a real date -- you know, the kind without kids? The kind that takes some level of planning? The kind that reminds you that you're a couple and not just parents?

Ya.

I decided it was time to make it happen.

I started planning about 3 weeks ago. I knew I wanted to have a special date night with the husband, and I knew I wanted it to be a surprise, and I knew it was going to take some serious time and planning. So the first thing I did was line up babysitters. Yes, plural, as in more than one. It was sort of a prerequisite for us. It would be the first time we'd leave both kids with someone other than one of us, and we had already talked long and hard about this over the past several months. We knew we wouldn't feel comfortable leaving the kids with ANY one person -- yes, we're overly cautious and probably somewhat OCD. But that's how we roll. So anyway, I lined up the babysitters, who happened to be my mom, my sister and my wonderfully sweet niece (more of a playmate for LO than a babysitter, of course). We figured out a night that would work for them and I began my planning.

I'll fast-forward through the weeks of preparations and just get down to the big day, which happened to be this past Friday. Hubs left for work, as usual, in his blue jeans and golf shirt (casual Fridays at his office). Once he left, I busted out the makings of my not-quite-famous-but-should-be Chocolate Caramel Brownies. They are so incredibly awesome that I can't even share the recipe here. Aren't I awful? Anywho. There's a little background here. Hubs and I used to work at the same building (but for two different companies) back in 2005. The quick, boring story is I noticed him and wanted to "woo" him. We had some mutual friends, who happened to work in the same area as he did. So I'd whip up some of these delicious brownies and use them as an excuse to head over his way and talk with him (you may recall I mentioned my stopping by his desk to drop off my latest and greatest baked goods in this post). So I guess you could say I tried to woo him with my chocolate caramel brownies. The nice thing? It worked!!

So okay, back home, it's Friday morning, hubs has left for work. I get started making my brownies. I also make some handmade note cards while the brownies are baking. I write a cute little note to jog his memory about our early days of baked goods, cut the brownies and put 'em in a tupperware container, topped with a bow. Then I put the container in a small brown shipping box with some blue polka-dot (or as LO says, "coca-dot") tissue paper. I seal the box with shipping tape and put his name on the front in bold, black letters. Then I load up the kids in the car.

On the way to his office, we stop at Sonic and I grab a gift card. Suffice it to say there's another story from our early beginnings involving Sonic. I grab another handmade note card and write a little quip reminding him of that Sonic trip, then tape the gift card to the back of the note and put it in the envelope.

We hit the road again and drive to hubs' office building. I took the box inside and left it with the security guard, asking him to please let hubs know there's a package waiting for him, then darted out the door to keep from being spotted.

Then we drove over to where hubs parked his car. I unlocked it and put the Sonic note card on his seat, where I expected he would find it when he left during his lunch hour to run some errands. The kids and I then headed to Costco for some errands of our own.

Hubs called me not long after we left his office to tell me he received a mysterious package at the office... and called me out on my incredible awesomeness. ;) While we were talking, he was walking out to his car to run some errands, so we were still on the call when he found the note with the Sonic gift card. He laughed (it was a funny thing that happened that night at Sonic during our early courtship) and asked if I wanted to meet him for ice cream. Considering it was only 11am, I didn't have any food for the kids, and I was not going to let them eat ice cream for lunch, I declined. Honestly, I had a TON of other stuff to do to prepare for our date night and needed to get to it! But he of course was already on his way to meet us at Costco. We ended up doing some quick shipping at Costco and had a yummy (and CHEAP!) lunch together (pizza for him and LO, a chicken Caesar salad for me and a bottle for Chase!).

After lunch, I headed back home while he went back to work. Once I arrived at the house, I started working on a few more little projects. One was quick and easy: a "mixed CD" created from a playlist of songs that we listened to while we were dating, including the song we played for our first dance at our wedding reception). Then on to my next project: I happen to still have a PST (for you non-computery-educated folks, this is a file that stores emails in Outlook) from 2005 when hubs and I started our initial courtship. I had been reading through them for the week or so leading up to our date night (was looking for inspiration for the date, but also enjoying the walk down memory lane) and decided on a fun little game. I chose random comments from these emails and printed them on little cards along with the date written and which one of us wrote them. The "game" would be to read through them after dinner and try to have hubs guess which one of us wrote them. Some were funny, some were inside jokes, some were heartfelt and sweet. So I printed those little cards and put the kids down for naps. I needed to make another run to hubs' office, so I called my mom to come over and sit at the house while the kids napped so I could run out real quick.

The plan was to leave hubs a note (this one was a note card, that folds, and you write inside it, instead of just a one-sided note card like the earlier two notes -- this will matter later in the story) with directions to where I wanted him to meet me. I also brought a pair of shorts for him and two different pairs of sandals to choose from (it was SO hot that day and our date was going to be pretty laid back and not at all "froofy").

I drove to his office again and found his car. I placed the sandals on the passenger seat, set his shorts on top, the note card on top of the shorts, and his sunglasses by the note. I also put the CD in his CD player and queued it up to start playing "our song" when he started the car. For the record, the note basically said something like this:
Forget another boring night at home as parents...
it's OUR TURN to have some fun as a couple!
Meet me at 117 W. Blahblah Street.
I've left you a change of clothes so you'll be more comfortable.
And enjoy the music during your drive!"
I also wrote driving directions inside the card. It was as simple as turn right, then turn right, the destination is on the left. An easy 10 minute drive from his office.

After leaving everything placed perfectly in his car, I headed back home to shower and get ready. Of course hubs decided around 4pm he was done for the day and was gonna head home. I basically asked him to please do me the favor of staying at work until 4:45pm, and don't ask questions (our dinner reservations were for 5:30pm). Lucky for me, he complied. Whew! I finished up the last little things I needed to do, gave my mom and sister their "instructions" for keeping LO and Chase, and hit the road.

On my way to the restaurant, hubs texted that he was leaving (it was almost 5pm). A few minutes later he texted again and said "You are just full of surprises..." I figured he found everything in the car and was heading to meet me.

YAY! It worked!!!

I arrived at the restaurant at 5:10pm and sat down at our table. I gave the waitress a card that I wanted her to bring to hubs at the same time that she brought me the bill at the end of our evening. Totally random, but I also brought a box of Kraft macaroni & cheese. It was the first "meal" (if you call it that) I cooked for him. I thought about asking the kitchen to whip it up and serve it to him instead of whatever entree he orders, but decided I didn't want to inconvenience the kitchen staff so I didn't. No big.

So I sat. And waited. And watched for hubs. It was 5:27pm and I got a call from hubs. He basically asked me for directions coming from a different way than what I wrote in the card. I thought it was weird, especially since it was so simple, but I gave him the info and he informed me it would be closer to 6pm before he arrived. I tried to hide my disappointment, said it was okay and I would see him when he got there.

Oddly enough, I got a text a few minutes later from my mom telling me that hubs was on his way. Whaa?? That's weird. How would she know? So I called her. And couldn't believe what happened.

My sweet, adorable, loving, handsome, kind, thoughtful husband? Wow. He got to his car after work, saw the note card, heard the music and headed HOME. To our house. Not to the restaurant. But to our house. On the opposite side of creation as the restaurant where I was. Waiting. For him.

Turns out he opened the envelope and saw the note card. He turned it over, thinking it was another single-sided note like the earlier ones. Of course, it wasn't. But it did have a lovely picture of us on the front, and nothing on the back. So he heard the music, saw the cute card and thought I was sweet for doing that. Never mind the fact that there's a pair of shorts and two pairs of sandals on the seat next to him. Really. Just go ahead and drive home. It's cool. I'll wait.

I'll cut him some slack. He did feel absolutely awful when he got home and my mom and sister were there, and I wasn't. The look on my mom's face told him he had done something VERY wrong. He quickly changed into his shorts and sandals and hit the road to meet me. Luckily he was only about 20 minutes late. :)

Anywho, we had a nice dinner at a lovely restaurant. We talked. We held hands. It was wonderful. When they brought me the check, they brought him the card I left for him. It had his favorite picture of us on the front and my heartfelt sentiments written inside. I'll spare you the sappiness...

After dinner, we walked down to a nearby park and sat on a bench swing together, enjoying the beautiful evening around us. I busted out the little cards with our email sayings on them and we relived some of those memories. It was very sweet! Then we headed home to our sweet kids and to relieve our babysitting staff. :)

I'm happy to say that hubs was surprised with everything I had done and thought it was so sweet of me. It was fun to show him it's possible to have a fun night out together without the kids, and that the kids could in fact survive a few hours without us... ;)

Sunday, June 20, 2010

First Time for Everything!

Just wanted to share a little shout-out here on the blog that my crazy self just completed my first 5k yesterday! I've been working out with a trainer twice a week for almost 3 months (have I mentioned that here before??) and am ecstatic to tell you I've lost almost 20 pounds! C-ya later, evil baby weight and heart surgery stress weight! Yay! So I decided why not put myself through even more torture by completing my first 5k? Sounds like fun!

The race was at 9pm last night, which was my only saving grace considering it was still about 88 degrees when the race started. I can't imagine running a race in the dead heat of the day! Eeeew! So I told myself I wanted to come in under 45 minutes, and I totally succeeded! My chip time was 40:18!!! I figure this isn't half-bad considering I didn't even know about the race until 9 days beforehand so I literally did not train AT ALL for it.

Yay!

Wednesday, June 16, 2010

One Year

One year ago today, hubs and I received the most devastating, most shocking and most unexpected news of our lives. It took me several days to process it. I wasn't able to share much with my readers at the time. Almost a week after receiving the news, I wrote this post. I remember how very difficult it was to write because putting it all out here on the blog made it so real, so definite.

This blog is about my family, most especially my children. And it was so much fun to write updates about being pregnant with Chase, how big he was getting, all the crazy symptoms I was dealing with, etc. But my world turned upside-down on June 16, 2009.

I had never heard of Hypoplastic Left Heart Syndrome. Honestly, I wasn't even sure what a "CHD" was or how common they were or how often they occurred or how they were treated or... Seriously, I didn't know a thing and felt like I was blindsided by a mack truck.

Suddenly my life changed. My joy was harder to find. My faith was lurking somewhere in the background, seemingly too timid and unprepared to handle the drastic upheaval resulting from this news. My strength seemed to disappear. My thoughts were overwhelming as I reeled with the fact that my newborn son may not survive long enough to come home with us from the hospital. My fears multiplied as I wondered if he'd ever see kindergarten. My hope seemed to drown in the research and survival statistics I poured over. My life would never be the same.

Over the next few months, I felt God speaking to me. I know He had been there all along, and was holding me up as we received Chase's diagnosis. I know He was the One that allowed me to somehow drive home safely following that appointment as the tears were flowing uncontrollably and the sobs caused my body to shake from head to toe. But I finally started to get to a point of accepting this, this unbelievable, crippling fate, this was His will for my life, for my son's life. And all I could do was turn to Him to see us through.

I remembered how He gave me an unimaginable peace when we first learned we were pregnant with Chase. We had been "cautiously optimistic" during my pregnancy with LO because we experienced two miscarriages before her, and we were afraid it would happen again. But that peace! Oh, that peace. It consumed me early on and the fears of miscarriage essentially disappeared. Life was good! And then June 16, 2009 happened.

It took time, but as I was saying, I started to sense that peace again. It was there all along, of course, but I was in no shape to receive it, much less believe it. But God was slowly working on my heart. He was helping me to accept His will and before I knew it, I became "that" mom. The one who was dedicated to learning everything I could about HLHS. The one who was committed to putting all the plans in place and figuring out every last detail to ensure my son's safety and absolute best chance at life when he was born. The one who refused to feel sorry for myself (or my son) and chose instead to fight with everything I had in me.

Now here it is, a year later. And what can I say about where I am now compared with where I was this time last year? There are no words! God has truly blessed us with a miracle that we can see every day with our very own eyes. I wish I would've known at that time that we would make it this long, although my hope and prayer (as is every mom's) is that my son will live a long, full life. But I don't know what God has in store for us. I don't know His plan for Chase's life. This new world I've been immersed into is one where each and every day, each and every moment, is treasured. Each smile is captured in my mind. Each laugh is etched in my permanent memory. We aren't promised tomorrow. None of us are. None of our children are. This is all too well the reality of heart moms, but it holds true for those with healthy children as well. Never take a single moment with your children for granted.

I'm so grateful. I'm so thankful that God chose us to be Chase's parents. I'm so honored to be his mommy. I'm so blessed that God has chosen to give almost 8 months with our son (and I'll keep praying daily for more)! I cannot get enough of this sweet boy! I know we've got at least one more heart surgery ahead of us, and I know that Chase's future is uncertain, and I know things can be great and then drastically change for the worse in any given moment, but I'm going to continue to rest in the Lord, trust in Him and know that He will bring His peace in the midst of any storm that lay ahead.

Thank you, Lord, for my little miracle, Chase!

And really, how can you not love this boy to pieces?



Friday, June 11, 2010

Yay for Bodie! (sort of)

Check out the latest post on Bodie's blog... He has a bacterial infection that is being treated and he seems to be doing better already! Please keep this little guy in your prayers. You can see a list of his specific prayer needs on his blog.

Thursday, June 10, 2010

Please Pray for Bodie!

Please pray for little Bodie, another little guy with HLHS. I have been following his blog for a while and he is in serious need of prayer! He's just shy of 4 months old and already had his Norwood. If I remember correctly, he was in the hospital for a while after his surgery, then finally got to go home, but was only there for a DAY before he had to go back to the hospital, which is where he's been since. He had a really rough time with a horrible infection (c-diff, for those of you who know medical stuff) but was making a wonderful recovery! In fact, he just moved to the step-down unit two days ago with all signs pointing towards HOME in the very near future! Unfortunately, he started decompensating and was moved back to the CTICU (similar to the PCICU at MUSC) last night and had to be intubated again. Please please please pray that they figure out what caused this and can quickly correct it so he can get back on track! He's such a precious little guy and desperately needs a touch of healing from God.

Here's an adorable pic of little Bodie from Tuesday when he was able to move to the step-down floor. Such a cutie! Please pray for him!

Wednesday, June 9, 2010

How?

  • How is it possible a laundry room becomes the dumping ground for all things non-laundry related?
  • How do you teach an almost 3-year-old to listen?
  • How are couples with children able to act like a couple?
  • How come Chase's bedroom (which he is not currently using) constantly becomes a spare room/dumping ground to the point at which you cannot navigate through the room without tripping or hurting yourself?
  • How do you prepare for your first 5k run? UPDATE: I neglected to mention my first 5k is in 9 days. Ack!
  • How do you get your HDTV sound to come through your Blu-Ray surround sound system when watching cable TV?
  • How do all those crumbs end up under the kitchen table?
  • How can single-income families afford to send their children to private schools?
  • How do you decide between an at-home birthday party (for the 3rd year in a row) vs. one at Chuck E. Cheese's for your 3-year-old?
  • How do you handle disagreements in your marriage?
  • How do you keep lettuce from turning brown?
  • How does the white kitchen sink that was bleached and scrubbed end up dingy and dirty with smooshed banana crusting over in the corner?
  • How can you upgrade to iPhone 4 if it's only been 9 months since you purchased your iPhone 3GS?
  • How much stuff should you teach your 3-year-old before she begins preschool in the fall?
  • How can you take two small children to the pool by yourself without compromising their safety?
  • How do you know what happiness looks like?

Sunday, June 6, 2010

A Bunch of Random Updates

First of all, I just want to say "Praise the Lord!" for His amazing work in sweet Brandt's life! I don't think his website is quite as up-to-date as his mommy's Facebook posts, but that sweet boy is doing AMAZING with his recovery from his Norwood surgery. He will probably head up to 7C (step-down unit) tomorrow or Tuesday!!! Just to remind you, he just had his surgery last Tuesday! Can you believe that?! What a sweet little miracle! Way to go, Brandt!!!

So to update on things here with the fam, life is good! LO and I went to the beach for a quick day trip on Friday, while the little man stayed home with daddy. We had a great time at the beach and LO behaved surprisingly well considering she didn't have a nap all day! It was a long day, but oh so much fun! Here are a few of my favorite pics from the day:





Today we were SO excited because we were FINALLY able to take Chase to church for the first time! That's right! Our little family of four made our first appearance all together at church! After church we decided on an impromptu lunch out with one of our favorite families. It was such a wonderful welcome back to "real life" or "normalcy" or "whatever you want to call it!" I got to just be a mom, with two kids, and a husband, who go to church together, and grab lunch with friends, and not worry about all the details. In fact, we didn't even have any food for either of the kids! We almost always bring a PB&J for LO when we plan on dining out (she is hands-down the most pickiest eater on the entire planet!), and of course bring some baby food for Chase. We ended up with a quick stop at Walmart for some baby food and baby spoons before heading to McAlister's (yum!) for lunch! How fun to finally just be a normal family again!!!

Chase is doing simply fantastic! It's so hard to believe we still have another month to go before his next cardiology appointment! It's already been over a month since we've seen Dr. Horne -- crazy!!! We have ZERO doctor appointments for the entire month of June. What a concept! Chase is doing super with eating (no surprise). He's still taking bottles of formula (although not nearly as many ounces per day as I think he's supposed to, but I try not to worry) and is also all about some "real" food! He loves the fruits and vegetables I made for him (very Stage 1-ish), and I've started giving him some store-bought Stage 2 foods. GASP! I know, I know... I'm not making ALL of his food. Honestly, I just can't find the time in the day to do it! Plus there is such a variety of options out there and I really want him to have lots of different flavors to experience, so it's just easier this way. I've also given him some Gerber Puffs and it's so cute watch him try to rake them up on his high chair tray and get them into his mouth. He's still too young to have a good pincer grasp, but fisting it seems to work for him, most of the time.

We have an "Early Interventionist" or EI coming to the house every other week to work with Chase and give me some exercises to do with him to help him meet his milestones. He still hasn't been sitting up independently, so at her first visit, she showed me some ways to help him work on this. After working with him for just a week, I was already seeing a big improvement. When she came over last week, she was amazed at the progress he'd made in the 2 weeks since her first visit! He's sitting up independently!!! He did NOT enjoy working on this initially, but I just kept at it several times a day for short periods of time and he became more and more comfortable with it. In fact, now he prefers sitting up to play with his toys instead of laying on his tummy or back! Unfortunately, he's not so great at catching himself when sitting up so I still have to sit with him to help out. We'll be working on his arm strength and core stability over the next 2 weeks, so hopefully he'll make some crazy awesome improvements during that time!

Oh, in addition to trying to get him to feed himself puffs, I've also been giving him a sippy cup for the past 3 or 4 weeks. He's been doing really well with it! He definitely likes to chew on it, but he can already drink from it, too! Here's a randomly adorable smiley pic of him in his high chair:


We're having all kinds of challenges with LO these days. It boils down to one simple concept: LISTENING. Apparently she's suddenly forgotten how that is supposed to work! She's been driving hubs and I C-R-A-Z-Y!!! Now I know what you're probably thinking... she's almost 3 and this behavior just comes with the territory. But I'm not buying it!!! I don't know what to do! We literally took ALL of her toys out of her room and the play area and stowed them in Chase's room where she can't get to them. She didn't even care! I'm talking puzzles, play-doh, blocks, dress-up clothes, her kitchen, stuffed animals... EVERYTHING but her books! She doesn't care! I also bought a Responsibility Chart thinking that if she can accomplish things throughout the day (getting dressed, brushing her teeth, listening, etc.) then we would reward her and encourage her good behavior! This didn't work, either! We then tried limiting her TV watching to just 30 minutes in the morning when she gets up, and 30 minutes before bed at night. Did that work? Notsomuch. We even went so far as to take her precious teddy away (she's slept with teddy basically since she was born!) and guess what?! She didn't care!!! Oh my word, I am about at the end of my rope! I feel like I can't take her anywhere fun or buy her anything fun or do anything fun with her because her behavior doesn't warrant such things, but at the same time, I can't just keep her locked up in her room all day to stare at the walls! Wow. I sure hope we figure this out soon. I'm all open for suggestions, too, by the way... ;)

Every once in a while, she behaves well enough that we let her play with her brother. That sounds bad, doesn't it? See, usually she's completely wired and squealing and jumping all over the place around him and just won't calm down, so we don't let her around him when he's playing on the floor. But when she chills out for just a quick second, I'm lucky enough to get a cute little pic like this:


Well I guess these random updates are turning into one heck of a long post, so I'll end with this: a video clip of Chase I took tonight after dinner. He was in rare form, people! It was so cute and hilarious! He definitely loves to hear himself "talk!" Just make sure your volume is turned down... he's loud!

Tuesday, June 1, 2010

Pray for Brandt

Please pray for precious, adorable little Brandt. He's one-week old today and is currently in surgery at MUSC for his Norwood procedure with Dr. Bradley. Brandt has the same special heart as Chase, Hypoplastic Left Heart Syndrome (HLHS). I had the privilege of meeting his mommy, Lindy, before they headed to Charleston for Brandt's birth.

You can follow Brandt's blog to check in on him and see some pics of this incredibly handsome little man. Seems the PCICU has already nicknamed him "Super B" as he stabilized very well after birth and was able to camp out for the week before his surgery without requiring intubation or any other procedures outside of the "norm" for a "classic" HLHS case.

Please continue to pray for Brandt today and especially over the next 3 days as his little body recovers from open-heart surgery and adapts to his new circulation. Also pray for Dr. Bradley as he performs Brandt's surgery, and of course, pray for mommy and daddy as they wait. I remember all too well what it was like in that PCICU waiting room all day, anxiously waiting for that pager to beep with an update on the surgery, praying continuously throughout the day for God's hand of protection on that precious child. Please hold them all close today and in the days to come!

I couldn't help but share this adorable pic from Lindy's blog... don't ya just wanna squeeze him tight?? Such a cutie!!!

Friday, May 28, 2010

The Chosen Mothers

I came across this post on another blog I follow and felt it was worth repeating. What an incredible look at how God chooses mothers. I pray God sees these characteristics in me and that I demonstrate them to my sweet kids. I am so blessed!!!

The Chosen Mothers

By Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit.

Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with an illness." The angel is curious. "Why this one God? She's so happy."

"Exactly" smiles God, "Could I give a child with an illness to a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she will handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you."

"No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps. "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see... ignorance, cruelty, prejudice... and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side."

"And what about her patron Saint?" asks the angel. His pen poised in mid-air.

God smiles, "A mirror will suffice."

Thursday, May 27, 2010

HLHS Angel

Please keep the family of beautiful little Maia Deeb in your thoughts and prayers. Sweet Maia went home to Heaven yesterday. She was only 10 months old. My heart is breaking at this devastating loss and I cannot begin to imagine the grief Shannon and Elias are feeling. Please pray for the Lord to hold them close, especially over the next few weeks, as they mourn the loss of their precious child.

Tuesday, May 25, 2010

Heart Friends

So... a few weeks ago I was able to touch base with a soon-to-be-"heart-mom," Lindy, who lives in the same city as I do. It was definitely a God thing in how the circumstances lined up. She happened to visit a dentist office where a church friend of mine, T, happens to be a dental hygienist (and also happens to be a close followed of my blog and of sweet Chase). When Lindy mentioned she was expecting a baby with HLHS, she certainly didn't expect T to tell her she knows all about HLHS. She definitely didn't expect T to hand her a photo of Chase and tell her he'd already had his first 2 surgeries and is doing great. Long story short, Lindy and I were able to meet briefly and I was able to introduce her to Chase and share some insight into what she can expect once they head to MUSC for her baby's delivery.

Well, little Mr. Brandt Ethan was born this morning at 11:49am, weighing in at a healthy 6 lbs. 15 oz. Congratulations, Lindy!

Please be in prayer for little Brandt as he will be having his Norwood surgery within the next few days. Pray for Lindy and her husband, and the rest of their family, as they deal with the roller coaster ride of this journey with HLHS. Please be sure to follow her blog for the latest information on sweet Brandt.



On another note... please also be praying for Chase's little heart friend, Maia. Maia needs a miracle straight from the hand of God, and I believe He is capable of just that! Please pray for healing... she's been through so much in her 10 months of life. Her parents are trusting in the Lord and are awaiting His will to unfold for their precious daughter. Please pray for mommy Shannon and daddy Elias as they put their sweet girl in God's hands and wait expectantly for Him to touch her with His healing hand.

Thank you for your prayers for these precious heart babies!

Tuesday, May 11, 2010

Another Update

I took Chase to his 6-month pediatrician appointment today and his doctor was very pleased with how great Chase is doing! He said Chase was the happiest patient he'd seen all day, and also asked what I'd been feeding him since he's so adorably chunky! Too fun!

So here are his latest stats:
  • Weight: 16 lbs., 9 oz. (24th percentile)
  • Height: 26.5 inches (42nd percentile)
Yay, Chase!!!

He got his 4-month vaccinations today (one orally and THREE shots!) and won't need to have his 6-month vaccines until his next appointment when he's 9 months old. Did that make sense? Whatever. All I know is that this was the LAST BIG HURDLE (as far as I know -- I'm sure hubs will correct me) Chase needed to complete before we could "officially" release him from the bubble!!!!! He's still technically "behind schedule" on his vaccines but it's not enough to warrant keeping him (and ME! and LO!) locked up any longer!

WOOT!!!!!!

So, if my math is correct... we saw Chase's cardiologist last week and his pediatrician today. He's not due back at the cardiologist until JULY 2nd (TWO months!!) and he's not due back at the pediatrician until he's 9 months old (July) so...

NO DOCTOR'S APPOINTMENTS UNTIL JULY -- TWO WHOLE MONTHS FROM NOW!!!

It's the little things! And I'm SOOOOOOOO happy my sweet boy is doing so well! Praise God!!!

Monday, May 10, 2010

Some Updates

Just a quick update to let you know that Chase had a cardiology appointment last Friday. He weighed in at about 16 1/2 pounds and about 26.5 inches. He's getting soooooooo big! His o2 saturation was 89, which was awesome! His blood pressures were nice and low and his pulses were good, too. He had an echo and everything there looked good, too! In fact, Dr. Horne was very pleased with how well Chase is doing, he dropped a med and told us to come back in TWO MONTHS!

Yay, Chase!

I'm so pleased/blessed/grateful/amazed at how wonderfully my little boy is doing. God truly has His hand on Chase! There's no other explanation for how well he's done! He is such a sweet, laid-back little guy and I love him to pieces!

He's just about worked his way through starting veggies and will be moving to fruits this week. I can't wait to see how he likes the applesauce I made for him! He's now completely on formula as I officially gave up breastfeeding one week ago today. It was a HARD decision and took me weeks to make myself accept the fact that it was going to end. Basically my body decided it was done. My supply, which was already low to begin with, finally started a downward decline to where it was really more of a struggle for Chase. I'd nurse him on one side and literally less than a minute or two later, needed to switch him to the other side. After another minute or two there, he was done and would need a bottle. It just wasn't fair to make him suffer with 2 or 3 minutes of nursing, then screaming his head off because he was still hungry (obviously), and he'd been taking more formula than breastmilk on a daily basis for months now. So as difficult as it was, last Sunday night was my final time nursing him. :(

Chase is spending more time on his tummy these days. He used to hate it and start screaming almost immediately, but now he'll hang out for several minutes before getting upset. He did roll over once from his tummy to his back, and when he's on his back he'll roll onto one side, but hasn't rolled from back to tummy yet. He still needs support when sitting up and is obviously not anywhere near crawling yet. If I had it my way, I'd keep him like this forever! But I am working with him, trying to get him up to speed on his milestones.

We had an organization called BabyNet send someone over a few weeks ago to do an assessment on Chase to see if he's behind in any areas of development for his age. We were very pleased to hear he's on track with everything, with the exception of his gross and fine motor skills (this didn't surprise us). So we're going to have someone come out once or twice a month to work with Chase and show hubs and I how to do exercises with him to help him get on track.

While it seems he's been contemplating popping out a tooth for the past month or so, there's no visible sign of his first tooth... yet. LO got her first tooth when she was 6 1/2 months old, so I'm sure it's just around the corner for Chase. I love his little gummy smile but I can't wait to see those little teeth start to show up. My boy's getting so big!

We have an appointment tomorrow for Chase to get his 4-month vaccines (yes, we're about 2 months behind schedule). I'm not looking forward to it, but I know he'll do fine. And I'm VERY excited because we've been waiting on his immunizations in order to finally be able to "release" him from bubble-life completely! I can't wait! We'll always take precautions with him but I feel like that will be able to ease up somewhat once he's got another round of vaccines out of the way. I'll be ecstatic once he's finally completely caught up and on schedule with his immunizations in July! Yay!!

There's not too much to report on LO. She's a typical almost 3-year-old and has been driving hubs and I C*R*A*Z*Y!!! She doesn't listen and she has temper tantrums All. The. Time. I guess this is rather typical for her age... yay.

Let me leave you with a cute video of the kiddos. LO loves Ice Age, and if you haven't seen it, there's a part in the movie where a tiger (Diego) plays peek-a-boo with a baby. It's cute and hilarious! I've attached a clip for you so you'll know what I'm referring to (you only need to watch the first few seconds of this clip to get the point).



Well, LO loves to play "where's the baby" with Chase. And what's even cuter, is that Chase totally loves it, too! Here's a clip of the two of them from the other night:

Saturday, May 8, 2010

Take Three!

Turns out my burnt carrot fiasco the other day wasn't necessarily a bad thing! I read yesterday that carrots have a high level of nitrates in them and that it's better to wait to introduce them until after age 7 months. So, I decided to do squash instead.

I bought two huge butternut squash, about 2 pounds each. This time I only cooked one of them! I sliced 'em in half and baked them in 1-2 inches of water for almost an hour. After they cooled, I tossed 'em in my lovely new Cuisinart blender and whirled them with some breastmilk until they were the perfect consistency for a stage 1 baby food. I still chose to put them through my strainer, then put the purée into my ice cube trays. It worked out beautifully! I ended up with 2 trays of squash plus a little to put in the fridge to let Chase try for dinner last night.
The clean-up was such a breeze!


I think I'm finally getting the hang of this baby food stuff! It's about time! :)

Posted from my iPhone

Thursday, May 6, 2010

More Baby Food Woes

Today I was going to make Chase some carrot baby food. I put the carrots in the steamer basket over a pot of boiling water and popped the lid on top. After 15 minutes, the carrots weren't quite soft enough. I set the timer for another 5 minutes, checked them again and they still weren't soft enough. I let them continue to steam while I played with the kids until...

Uh, oh. What's that smell?

At first I thought a plastic container or lid was caught in the bottom of the dishwasher that was running. You know, that lovely burning/melting aroma? But I checked the dishwasher and all was well. That only left one option:

My carrots.

I checked 'em and sure enough they were finally soft! The problem, however, was that the pot of boiling water had, well, run out of water.

Eeew. That smell. I checked the pot and it was quite possibly the worst kitchen mishap on my record! Here's a shot of the pot after it had been soaking in hot, soapy water for about 20 minutes.


As you might imagine, I tossed the carrots since they were infused with that lovely burnt smell and I didn't think it'd be fair to Chase for his first introduction to carrots to be quite so eeeewy.

Guess it won't hurt to keep him on sweet potatoes for another day. Lord knows I have enough of 'em!

((sigh))

Posted from my iPhone

Wednesday, May 5, 2010

Kitchen Disaster (again)

Well, it was time for another round of baby food. I started Chase on green beans back on Sunday, April 25th. You know how you're supposed to wait 3-4 days before starting another food to be sure there's no allergy, right? Well, day 4 would've been the day we left for Cincinnati (family vacation!) and I was not about to start a new food while on the road away from home. SO... the poor guy was left with green beans for an entire week! So Monday I went to the store and decided it was sweet potato time. Now, you remember this post where 1 pound of green beans resulted in a HUGE kitchen disaster and a measly 12 cubes of baby food? Well, that was not going to happen to me again, no siree bob! So, without thinking (that's just how I live my life), I bought 8 sweet potatoes.

Eight large sweet potatoes.

I read that the best way to cook them was baking them in the oven, so I cleaned them really good, poked 'em with a fork, wrapped 'em in foil and baked 'em for close to 2 hours. They were all kinds of soft and mushy when I took them out of the oven -- just what I wanted! I let them cool for a bit then got to work.

And work I did! Ohmygoodness! I had NO IDEA how much potato I'd be working with. It was insane. Every time hubs walked by the kitchen, I'd hear him mutter, "Man, that's a lot of sweet potatoes!" As if I didn't already know. Men.

So I'm working away with my blender, trying to show these sweet potatoes who's in charge, and my blender... well, it died. The motor started crying out for help, but when I wouldn't address it, it started smelling like burnt somethin'-or-other. Eeew. I gave up on my blender and borrowed my sister's (she conveniently lives down the street from us).

So two blenders later, I finally was able to finish up this mess of sweet potatoes. See how much fun I had? See how it resulted in the same kitchen disaster as the green beans? This time with two blenders instead of one blender and one massive food processor.

See that square container in the middle of the chaos? Ya, that'd be my NINE CUP tupperware container. Yes, NINE cup. I filled it to the top, to the point that the sweet potatoes squished up against the lid when I attempted to close it. Wow.

I've only got 2 covered ice cube trays, so it's been a continual process of taking the baby food from the frige, filling up the two trays, freezing them, then starting over again. Three days and FOUR trays of sweet potato cubes later, I still have over half a container left to go:

((sigh))

On a related note, yesterday I was at Costco buying formula (I've officially quit nursing... more on that later) and decided to scope out their selection of small appliances. I found (what I hope to be) the mother-load! It's a Cuisinart combination blender AND food processor. The food processor holds 2.5 cups so it's big enough to handle a lot of food but not so big that the food just sits at the bottom under the blade. And the blender is a lovely, heavy glass container (mine was cheapy plastic, not to mention about 10 years old) and the base/motor on this thing looks massive! My favorite thing is that it's shiny. It doesn't take much for me, people.


SO... while my introduction to making my own baby food has been somewhat overwhelming and it's clear I have a lot to learn in order to get into a good groove (buying and making the "right" amount of fresh veggies & fruits, etc.), looking at this face is all the encouragement I need to keep doing what I'm doing:

Have I mentioned how much I love this boy?!

Thursday, April 29, 2010

Baby Food!

So I've decided to be adventurous this time around and make Chase's baby food myself. I figure, I'm a stay-at-home-mom, I don't have any "real" work to do (lol!) so surely I have plenty of time to create baby food from scratch, right?

I had no clue where to begin. I asked a fellow blogger who happens to be very experienced with this subject, and she pointed me to this website for all the information a person could ask for when it comes to making homemade baby food.

I was **this close** to starting Chase out on applesauce, only because I had a huge bag of apples that I wasn't sure LO and I would get through before they started to go bad. But we started LO on green beans when she first began solids. And I've heard the talk that you're supposed to start a baby on vegetables and work your way through veggies before offering fruit. So I resolved out of nothing less than guilt to go with the green bean plan.

I didn't own a food processor. I thought I had always wanted one. They seemed to cool, so capable. So I bought one. I figured the old, plastic blender I had stowed in a cupboard for the past 5+ years wouldn't be capable of preparing baby food.

The massive 8,000-cup food processor I bought was big. It had a lot of parts. It was confusing at times. But I muddled my way through, washed the bad boy and got ready to begin.

I chose to steam my fresh green beans. I bought a pound of 'em for about $2.50. Once they were slightly cooled, it was time to toss 'em into the food processor. I tossed. I processed. My green beans got all chunky and sat at the bottom of the processor while the blade spun madly about 1/2 inch above said green beans. I used my spatula to move things around a bit, put the lid back on and tried again.

To no avail.

My green beans looked awful. They were all chunky and there was nothing "pureed" about them. I was distraught! This wasn't supposed to happen! What am I doing wrong?

Before giving it much though, I pulled the ol' blender out of the cupboard, put my green bean chunks in it and gave it a whirl. Wouldn't ya know I started to see beautifully processed and pureed green beans, that which Gerber would be jealous of?

Finally!

I added some of the liquid from the steaming to get the consistency I wanted and BAM! I ended up with lovely green bean baby food! Yay!

Disregard the fact that my kitchen turned upside-down and was a total nightmare. Honest.


See? It was awful.

Next, I placed the green bean puree into my ice cube tray. How perfect (yet somewhat defeating) that it completely filled ONE ice cube tray. Yes, one pound of green beans equals 12 approximately 1-ounce cubes of baby food. I think I was expecting so much more for all my trouble (and my husband's trouble since I put him in charge of kitchen clean-up!).


I got over it and popped the tray in the freezer (side note: I bought the OXO brand trays that come with a lid so I didn't have to worry about messing with parchment paper or foil, which could leave foil pieces in the food).

Turns out right now, my little guy will only eat about 1/2 to 1 cube at each feeding, so these cubes have gone a long way already! I was going to do a cost-basis analysis to see how this compares to buying baby food (about $1.09 for two 2.5-ounce packs) but honestly the numbers gave me a headache and I decided against it. All I know is I enjoyed this process (more so figuring out what works and what doesn't) and I especially love the fact that I know exactly what went into my son's baby food. And there's a sense of pride in all of that.

So I guess I'll keep on with this! I might jump into squash next (as I have NO IDEA how to make/find peas, unless I buy them frozen), then on to carrots, sweet potatoes and then fruit! Yay!

Wednesday, April 28, 2010

Meet Our Newest Family Member

So, hubs and I bit the bullet and now have this parked in our garage:

We purchased this beautiful 2011 Toyota Sienna XLE and, as much as I hate to admit it, I. Absolutely. Love. It. It honestly looked the least "minivan-y" of the options we looked at, in my opinion anyway. Our Jeep Grand Cherokee just wasn't cutting it anymore with TWO kids, their car seats and all their miscellaneous junk, so we decided it was time. We also scoped out bigger SUVs as well, but none of them had the features and space we needed for a price we were comfortable with.

The first minivan we test drove was the 2010 Honda Odyssey, but honestly? Hubs and I HATED it! It totally drove like a minivan (shocker, right?) and was just so... I dunno. It wasn't for us. There are 80 gazillion of them out on the roads today, so obviously there are a lot of Odyssey fans out there, but that just doesn't include us.

We resorted to looking only at SUVs as we figured all minivans would drive like the Odyssey. We test drove a few and still just weren't satisfied. I mean, it is SO unlike me to have my husband give me the "go ahead" to buy a NEW car, and yet I'm just not excited about it at all and am at a complete loss as to what to buy. I finally got to the point where I said we'll just wait (gasp!) a few months and see what things look like during the summer. Maybe there'll be some great sales. Maybe a new car will come out that I fall in love with. Maybe...

Then I happened to see a cute commercial for the new 2011 Toyota Sienna. You know, the ones with that crazy couple with their two kids? They call it their "swagger wagon?" You can check out their silly commercials here. Anyway, I decided that we'd test drive one more minivan before completely closing the door.

Hubs and I both Fell. In. Love. It was crazy! This thing (the Limited, of course) drove like a dream! We both agreed it drove like a luxury crossover more than a minivan. We both loved the body style... not overly minivan-y since the front hood doesn't come to a point and drop off into an abyss. We were sold. After haggling with a few local dealerships, we ended up making our purchase last Tuesday. I'm so in love!

The dual power sliding side doors. The power lift gate. The heated seats. The XM radio. The sunroof. The leather. The captain's chairs for the kids. The LATCH anchors for the car seats. The fold and stow 3rd row. The beautiful predawn gray mica color. The DVD player with wireless headphones. The tri-zone automatic climate control. The bluetooth for making/receiving phone calls and listening to the music from my iPhone wirelessly. I could go on and on and on! There's so much to love about this vehicle!

So while I still somewhat hate the fact that hubs and I had to officially enter into parenthood with the rite of passage known as a minivan purchase, I'm still totally stoked about this baby! I can't wait to break it in on our upcoming family road trip!

Woot!

Tuesday, April 27, 2010

Chase and His Jumperoo

Chase loves his Jumperoo! Here's a short clip of him playing this morning. His sister loved this thing like crazy when she was a baby, and he's definitely following in her footsteps! It's so cute to watch him jump and play with the toys! I'll rotate his seat around for him occasionally and he'll see all the "new" toys and get so excited to play with them!

I love this boy!!! As LO says, "he's my best boy in the whole world!" :)

Monday, April 26, 2010

Happy Half-Birthday!

Happy Sweet 6-Month Birthday to my sweet baby boy!


Our lives changed forever 6 months ago today. Our precious little miracle was born and we have been so blessed!

Chase is really starting to develop quite the little personality! He's ALWAYS happy and smiling (unless he's tired, hungry or needs to be changed). He is quite possibly the sweetest, kindest, most genuine tiny little person in the world! I thank God every day for bringing this boy into our family. I can't imagine life without him. I pray daily that God will continue to keep His hand on him and help him to grow stronger and stay healthy each and every day.

Here are some recent pics and a little video clip of my precious little Chase. Enjoy!






Friday, March 26, 2010

5 Months

I tried, but I just couldn't let today go by without wishing this adorable little monkey a
Happy 5 Month Birthday!

Mommy loves you, my sweet boy!

Monday, March 22, 2010

Hiatus

So I made a decision over a week ago but forgot to tell you! I've decided to take a hiatus from blogging. Not sure yet how long. I figure rather than go several days or weeks between posts, I'll just tell you now that there won't be any for a while! Things are good and life with two kids is amazing! Chase is doing fantastic and it's our hope and prayer that that never changes.

I'll continue to tweet every now and then (look to the right if you want to follow me on Twitter) and I'll post pics n' stuff occasionally on Facebook (post a comment if you want to be FB friends), but for now the blog will be quiet.

But never fear, I will return... eventually!

;)

Sunday, March 14, 2010

So Tired!

The video is bad and a bit shaky, but if you listen closely, you can hear Chase telling you all about his day! :)

Posted from my iPhone

Unveiling

I caught the spring cleaning bug (more on that later) and happened to come across my remaining stash of Chase's birth announcements. I then realized I hadn't posted it in all of it's cuteness here on the blog for all to see. So without further ado...



(Of course I had to blur out his last name, and on the bottom it said "hubs, mom2lo and big sister LO" -- except only using our real names -- so that was blurred out as well. But you get the picture.)

:)

Friday, March 12, 2010

Cardiology Appointment

Chase had his first appointment with his cardiologist today since returning home from MUSC for his Glenn. Here are some quick stats (my MacBook has a mere 8% battery remaining and I'm way too lazy to get the adapter. Sorry folks!):
  • Weight: 14 lbs. 11 oz.
  • Length: 25 1/4 inches
  • Oxygen saturation: 83%
  • BPs, heart rate, etc.: Great
  • EKG and Echo findings: Great
Overall, Dr. Horne was very pleased with Chase and how well he is doing. We'll return for a quick visit Tuesday morning to have the stitches removed from where his two chest tubes were. Believe it or not, we're getting close to spacing out our visits to be longer than every 2 weeks, which is awesome 'cause it means Chase is doing wonderfully, but also scary because it means mommy won't get the warm & fuzzy comfort and reassurance of knowing all is well with his heart quite as often.

We've also got an appointment with his pediatrician lined up for Tuesday afternoon. This will just be a quick post-surgery follow-up type thing. We've got to wait 2 months before getting his 4-month vaccinations, so we'll be quite a bit behind. No worries.

I can't say thank you enough for your prayers for us (especially Chase) through the past 2 weeks for his heart cath and Glenn surgery. We are so grateful for the love and support of our friends and family and blog readers!!!

Wednesday, March 10, 2010

Tuesday, March 9, 2010

Almost There

Well, it's 12:02 AM and hubs and I are ready to catch some zzzz's. We left our little fella around 11:30 PM in the capable hands of our night nurse. He had a good catnap in mommy's arms but then seemed ready for the late-night PCICU party before we left.

So he's been off oxygen for over 14 hours now and has been holding steady. In fact, it seems like he's improving a bit because he's been trending in the high 70s to low 80s all afternoon. The big test will be tonight during his "good sleep" period. Last night he dipped down to 62 and had to have the oxygen put back on. We're hoping tonight goes better and he does well without it.

IF, and I mean IF, he manages to make it through the night tonight without going back on oxygen, THEN it's almost certain that we will be discharged from the unit tomorrow without a stay on 7C. You know this is what we're praying for!!! We've asked our nurse to call if she does need to put him back on o2 during the night so we'll know better what to expect in the morning. I look forward to sharing a great report of God's answer to our prayers!

On another note, please forgive my earlier ranting about the day we had today. I've had a serious lack of sleep and an obnoxious amount of stress the past few days, and I really shouldn't take it out on the PCICU. I need to learn to deal with my own control issues as I'm sure that is the source of my problems. I just know nothing and no one is better for a child than his mommy!!!

Posted from my iPhone

Still Hangin' in There... Barely

It's been another frustrating day in the PCICU. Chase had to go back on oxygen last night around 4:00 AM. He was taken off the oxygen again this morning around 9AM and is still currently off the oxygen. This last hurdle is proving to be a BIG one. In the meantime, hubs and I are beside ourselves with frustration. We have no control. We understand we have no control over Chase and his body's ability to utilize oxygen and we're okay with that. We're on his schedule. He's in charge. What we're really irritated about is having NO CONTROL over our circumstances. We're stuck in the PCICU. We've been "floor status" for 3 days, which basically means the only thing the nurses do is check vitals every 4 hours and occasionally play around with his o2 levels. It means we're ready for 7C. The private room where WE'RE in charge. In the PCICU, we're subject to a complete and total lack of control. We can't control the noisy beeping at the baby's bedside next to us. We can't control the cleaning lady that has apparently found the absolutely loudest way to open a new trash bag when emptying out the trash. We can't control the guy cleaning the floor with the loudest machinery known to man. We can't control the nurses who approach our bedside using anything but their "inside voice" while Chase is obviously sound asleep. We can't control the fact that apparently are no beds for us on 7C.

Just a bit ago I was at my wits' end. Chase was sound asleep in my arms. It was about 1:30 PM and he wasn't due to eat until 2PM. This has been a challenge in and of itself because we again have NO CONTROL over his schedule. We try to get him on an eating schedule since I'm nursing him (and this affects my pumping schedule), but we can't do anything when the night nurse decides to feed him every 2 hours and ends up dumping several ounces of my hard-earned breastmilk. Anyway, so he's not due to eat until 2PM and I'm doing my best to keep him on a schedule during the daytime while I'm here with him.

The staff starts prepping the bed next to us for a surgery case that will be rolling in soon. Hubs approaches a nurse to ask her when the case will come in so we could make sure I can be there to breastfeed Chase at 2PM. She said I needed to go ahead and do it now so she can clear the PC as the case will roll in at 2PM. So therefore I was forced to wake my sleeping, heart-surgery recovering baby up from a much-needed nap and force him to eat 30 minutes before he was ready to do so. This made me MAD. Then, because hubs happened to ask the nurse a series of questions, we stumbled upon the fact that the nurse we had all day (and for the past 2 days) was being assigned to the new case rolling in, and Chase would be turned over to the nurse covering bed 2. What this means is that while we would be gone (kicked out of the unit while the new surgery case rolls in), a totally different nurse (and one in training with her) would take over Chase's care, without so much as a single word to us or apparently, without much of a report from our existing nurse (as she was focusing on the new case). This made me MAD. The complete lack of control, the complete lack of communication, which could definitely have an impact on the care and well-being of our son, the apparent lack of respect we are receiving as parents...

I am MAD.

Monday, March 8, 2010

Hangin' in There

It's been a frustrating and irritating and tiring and exhausting and difficult day. We started out by having his chest tube removed, which was fantastic! That only left us with ONE minor hurdle to overcome... oxygen support. At least I thought it would be minor.

He's been hanging out with decent saturation while on a whopping 1/8 Liter of oxygen. That's about 22% oxygen. To put it in perspective, the room air that we all breathe is 21% oxygen. Ya, just one tiny little percentage point different. But apparently, Chase really likes that 1%.

We've tried weaning him completely off oxygen twice today. Both times his sats would dip into the mid- to upper-60s. And both times he ended up back on his whopping 1/8 Liter of oxygen. Talk about frustrating.

And let's top it off with the fact that we've been third in line for a bed on 7C all day. One patient went up around noon. The next one, not until 7:30 pm. So that means that we're still hanging out in the PCICU, unable to go upstairs and unable to bring our boy home where he belongs.

It's been a draining few days for me both physically and emotionally. It kills me to leave my baby at the hospital to go home each night, not knowing if he's being cared for the way we want him to be cared for. It's tough not spending any time with my sweet LO, although she's none the wiser since she's being spoiled 24/7 by her dear Gramma and Pa Pa (for which we are eternally grateful!). I just want to make some progress toward the finish line. I feel like we're stuck on the side of the road. I guess it might be because we've been here for almost two weeks since we had the cath procedure before the Glenn. I know it's ridiculous to feel this way since so many families are here for such a long time (think Baby A who just went to 7C this morning after 5 continuous months here). But for me, it's hard, regardless of the length of time because no one wants to have their child be in a hospital, no one wants to be away from their other child. I want us all together again and that truly is right around the corner. I guess the monotony of this leg of the race is getting to me today.

Update: It's 11:58pm and we're heading out of the PCICU. Chase has been off oxygen again, this time since around 10pm. He's holding his own. Let's hope and pray he makes it through the night without help keeping his sats up. The good thing is his nurse tonight is known as "The Weaner." Apparetly she's known for getting her patients to wean off whatever they need to. Make her proud, little guy!! :)

Update: it's 4:17am and hubs just called up to the PCICU. Apparently our boy dipped into the low 60s while sleeping and needed the oxygen turned back on. I don't understand how his sats were great (88ish) before the cath and Glenn, and so unstable now. They opened the coarctation in his aorta, patched (widened) his pulmonary arteries and increased the flow of oxygenated blood to his upper body. How is it doing these things made his sats worse and not better??!!!

Hopefully the morning will bring progress our way! And some explanations, too!

Here's a pic from one of our brief moments without o2:



And o2 back on again, sort of:




Posted from my iPhone


Waiting for the Plan

Somebody had his chest tube pulled this morning during rounds! We're happy to say we're third in line for a room on 7C! Chase is still on a tiny amount of oxygen support (1/4L) since he has a hard time keeping his sats up when he's mad, but we're hoping and praying he'll lose it later today. Our goal is to get to 7C today and discharged tomorrow!! Please pray along with us for this.

On an awesomely happy note, the baby that's first in line for 7C today is a little guy that was born a few weeks before Chase and has been here in the PCICU since birth. He had a slew of challenges but made a lot of improvement a while ago and will finally be heading home soon!! Praise the Lord!!!


Posted from my iPhone

Sunday, March 7, 2010

A Chest Tube & Some Oxygen, Part II

Well, Dr. Bradley did rounds this morning and said he was "inclined" to leave Chase's chest tube in for another day. Honestly, I wasn't surprised or disappointed. His output was about 24 mLs over 24 hours and they prefer it to be closer to 12 mLs over 24 hours. We're very close, but not quite there yet. He is down to 1/8L of oxygen so we're really close to losing that support as well. It sounds like the plan will be to hopefully remove the chest tube tomorrow (Monday). They'll want to keep him overnight after the chest tube is removed, so it's looking like Tuesday is our earliest discharge date. Hubs and I are totally and completely fine with this. We know it's all about Chase and his timing, not ours. It sounds like 7C is still full so I'm guessing we'll stay in the PCICU tonight and possibly tomorrow night and be discharged from here. If a bed opens up on 7C tomorrow, they might send us up there for the night and be discharged from there on Tuesday.

Chase is finally starting to act like himself again. We know he takes a good 36 hours or so to really come off of anesthesia and perk up a bit, so it wasn't surprising that he's taken awhile to get back to a more "normal" personality. We're just so very grateful for his incredibly recovery and for the amazing surgeon, doctors and staff here to care for him. We are blessed!!!

I'll keep you posted on his chest tube progress... hopefully he'll lose it tomorrow! And I'm pretty sure we'll lose the oxygen support later today or by tomorrow at the latest. My awesome boy is making his momma so proud!!!

Thanks again for your continued thoughts and prayers!

He's Baaack!


Posted from my iPhone

Saturday, March 6, 2010

A Chest Tube & Some Oxygen

Chase had another fantastic night. He slept well and ate well (5 oz. this morning!!). They took his arterial line and his bulb chest tube out this morning. They have figured out his bp medicine dosage an have his blood pressure under control.

Right now he still has one chest tube in because the amount of drainage is borderline for removal, and as most things are here in the PCICU, Dr. Bradley took the conservative route and decided to leave it in another day. We're fine with that because we're in no hurry and trust Dr. Bradley immensley.

His oxygen saturation hasn't been the best so he's still on oxygen to help him keep it where they want it to be. This doesn't surprise us as Chase tends to need a little extra support when coming off of anesthesia. The plan will be to wean him off over the next 24-48 hours.

Based on how well he's doing, I would not at all be surprised if we were to be discharged on Monday, assuming nothing unusual or unexpected happens. We are so very blessed and grateful for our sweet son and his miraculous recovery from his second heart surgery. Praise be to God! And thank you to our frends, family and blog readers who have been lifting us up in prayer!



Posted from my iPhone

Friday, March 5, 2010

Too Funny!

One of the things that really comforts Chase is holding mommy or daddy's finger in his hand. Almost every time he's held, whether it's to calm him down, nurse him or get him to sleep, he'll always reach for a finger to hold. Especially now as he's recovering from his surgery an can't be held, he looks for a finger to hold and comfort him.

Hubs and I got a good laugh when we came in this morning to see him. His nurse rolled up a piece of gauze and put it in his hand as a good substitute. Not surprisingly, it worked!! Too funny!


We're happy to say that he had a great night last night and is going wonderfully. Our expectation is that he'll lose his RA line, arterial line, foley catheter and possibly chest tubes today. He's not on any meds intravenously and is only taking lasix, zantac, oxycodone (every 4 hours), Tylenol (every 6 hours) and now, his newest addition, enalapril, a blood pressure maintenance medicine that he'll be on for a few years if not forever. I'm so very pleased with his progress and am so very grateful for God's touch on him during this difficult time. His name be praised!

On a totally random note, hubs and I ate dinner at The Early Bird Diner ALL BY OURSELVES last night. I think that might be construed as a "date night!?" The first one in more months than I can count! ;)


Posted from my iPhone

Thursday, March 4, 2010

Day 2

Chase has continued to rock today! He was extubated and had a follow-up with ENT. He woke up a bit and was able to finally have something to eat. The ENT doctor, Dr. Halstead, said the granulation/irritation in his throat (from his first surgery) was gone and looked fantastic! She did say his left vocal cord was not moving, which really worried me, but Dr. Halstead wasn't worried and said it was most likely because he was still somewhat sedated and tired. She said we could go ahead and give him a bottle and see how he responds. I he has trouble, we'll reevaluate him.

We did give him 50 mL of cherry pedialyte and durn skippy did that boy go to town! Afterwards he was content and went back to sleep. He looked so peaceful. We'll be back tonight after rounds to give him his first bottle of milk in almost 48 hours! Yay!!

Here's a quick clip from earlier this afternoon while he was awake. Such a cutie!!!

Posted from my iPhone

Thursday

Hi, all! Chase had a good night last night and is having a great day so far today. He's weaning off the ventilator and should hopefully be extubated within a few hours. He's still rather sedated although he's off of most of the "big" pain meds. His stats all look great!

One thing we need prayer for is his ENT consult. It sounds like they want him to be seen by ENT before they clear him to start eating. If you know anything about Chase, you know he likes to eat! So if they can't come by today, it will be another day before he can eat! I also heard mention of another swallow study, which scares me!! You remember that he didn't pass his swallow study after his first surgery and was on thickened feeds until he was 10 weeks old?! I can't imagine if this happens again and I have to give up nursing for several months. Please be praying with us regarding this!

Here's a short clip of Chase from last night. He looks about the same this morning.

Posted from my iPhone

Wednesday, March 3, 2010

To our Church Friends & Family

Thank you so much for following our journey and lifting us up in prayer!

We appreciate your comments but would like to ask you to refrain from mentioning us by name in any of your comments. Although you may know us personally, I keep this blog anonymous and do not post our names or hometown for safety and security reasons. We did provide Chase's name on the blog to make it easier for family and friends to pray for him, but we refer to our daughter as LO ("little one"), my husband as hubs and I am mom2lo. Please do your best to keep from mentioning our first or last names on the blog.

Thank you for your understanding!!! We love you all and appreciate your support!!!


Posted from my iPhone

My Sweet Boy!

We just got back seeing Chase for the first time following his surgery. We could only stay for about 5 minutes as they need another 2 hours to continue to get him settled and get his pain under control. I can't wait to spend time by his side soon!

I took some pictures today and I'm posting them in a very specific order. The first one is from far away, then a close-up followed by a picture that shows his battle wounds from today's surgery. You may not want to scroll down to see all the pics... Consider yourself warned!

Here he is resting comfortably in his new crib in bed 4:







Scroll down only if you want to!




This is a close-up of his sweet face. You can see how swollen he is feom the fluids. We've been told he's going to have "the mother of all migraines" as the upper half of his body adjusts to the changes in his blood pressure.









This last one is the hardest to look at. Be warned!





Here he is with most of his lines and tubes showing. He's heavily medicated and isn't in pain, praise God!



We'll spend some time with him later tonight and get the good scoop from the nurses (the ones who are REALLY in the know!).

Thank you so much for your prayers for our little Rock Star today. God definitely has had His hand on Chase and has answered the prayers of His people!!!

Posted from my iPhone

Summary

We met with Dr. Bradley a few moments ago to discuss Chase's surgery. Everything went very well! He was able to patch the pulmonary arteries and connect the SVC to the pulmonary artery. It turns out he WAS able to access his coarctation and patch that narrowing as well, which is a wonderful blessing! Hopefully that will eliminate the need for us to bring him back for additional balloon procedures in the cath lab. Praise the Lord!!!

We were told we should be able to go back to see him in the PCICU around 4:15 PM, so I'm counting the seconds!!!


Posted from my iPhone

Glenn Surgery is Finished!

3:08 PM - They have just arrived over to PCICU. Dr. Bradley will be over shortly after getting baby Chase tucked in.


Posted from my iPhone

Glenn Update #7

2:09 PM - They are off heart lung bypass, everything going as planned. Baby Chase remains stable. Will be over to PCICU in about 45 minutes to an hour.

Yay! Praise the Lord!!!

Posted from my iPhone

Glenn Update #6

1:04 PM - Soon to come off heart lung bypass, all is well, baby Chase is very stable.


Posted from my iPhone


Glenn Update #5

12:03 PM (sorry this is posted late... we were eating lunch) - So we are about 75% of the way there, all continues to go well.


Posted from my iPhone

Glenn Update #4

11:09 AM - They are better than half way there, all is well, baby Chase remains stable.


Posted from my iPhone


Glenn Update #3

10:09 AM - They are working away, he is on heart-lung bypass, all is going well.


Posted from my iPhone


Glenn Update #2

8:47 AM - All is going well in the OR, anesthesia went well, they are now working with the scar tissue, typical amount this far, baby Chase is very stable.


Posted from my iPhone

Glenn Update #1

I just handed over my sweet boy to the anesthesia team to take him back and begin the procedure. We won't get our first pager update until 9:00 AM so it'll be quiet here on the blog until then.

Please continue to keep our precious son in your prayers this morning and throughout the day. We've been told the surgery will probably go until at least 2:00 PM.


Posted from my iPhone

Tuesday, March 2, 2010

Surgery Day!

Chase is to report to MUSC Admissions tomorrow at 5:30 AM for his second heart surgery. We took him in today for his pre-op appointment, thinking it would just involve bloodwork and maybe a chest x-ray. We were there for 3 hours. The good thing was they moved us along pretty well, it's just that it was much more than we were expecting. We were planning at some point to meet with the surgeon, Dr. Bradley, to ask questions and discuss the procedure but had no idea it would be part of our visit today. Hubs and I scrambled to write up our questions as we took Chase down for his chest x-ray. They were able to draw his blood (after only 2 sticks) and took all of his vitals. Hubs spoke with one of the anesthesiologists while I was helping hold Chase down for his bloodwork. We both sat down and talked with Dr. Bradley about his surgery.
  • Chase will have the bidirectional Glenn procedure. At a VERY high-level (I have no medical degree, folks), this basically means removing the gortex BT shunt that was placed during his first surgery, disconnecting his superior vena cava (SVC) from his heart and connecting it to the right pulmonary artery (RPA).
  • Dr. Bradley will also patch Chase's pulmonary arteries (both right and left) since both of them are narrowed. This will help make them larger and is very typical for this procedure.
  • While his echos have shown a mild to moderate leak in his tricuspid valve, Dr. Bradley does not plan to address this during tomorrow's surgery. The circulatory changes with this procedure will relieve some of the workload from his heart, which should in turn decrease the valve insufficiency.
  • The narrowing of Chase's aorta (coarctation) may or may not be addressed tomorrow. Basically, the cath procedure from last Thursday, where they ballooned the narrow section, did increase the size a bit but certainly not enough to eliminate the added pressure of blood flow through the area. This causes unnecessary added stress on his heart. Dr. Bradley will attempt to get to the coarctation and see how difficult it would be to access the area through the scar tissue. If he feels he can get to it safely, he will do so and will patch the area similar to how he'll patch the pulmonary arteries. If he can't address the coarctation surgically, we'll be bringing Chase back to MUSC in a few months for another cath procedure to balloon the narrowing. We'll continue to repeat this until the narrowing goes away.

So that's our game plan in a nutshell. We'll take Chase in at 5:30 AM, head to the surgical holding area, and they'll take him back to begin around 6:15 AM. Anesthesia will get started first and prepare the way for Dr. Bradley to begin around 7:30 AM. The longest part of the surgery will most likely be cutting through the scar tissue that's formed since his first surgery -- this could take 1 to 3 hours, depending on the amount of scar tissue. We will get a pager around 8AM and should receive our first update on Chase at 9:00 AM. I will update the blog, Facebook and Twitter with each of the pager messages I get, which should be close to hourly starting at 9AM.

Please pray along with us for a successful surgery. I know Chase is strong and I know God has a plan and purpose for his life. I know this is the road God chose for us and for Chase before he was even conceived and I am proud to walk this journey by his side. I am so very thankful for my husband, who is holding my hand along the way, and for the blessing of our sweet LO. And for the support of our family and friends who have lifted us up in prayer. God has been so good to me and to my family, and I believe His grace is sufficient to see us through another surgery as His power is made perfect in our weakness (and boy do I know I'll be at my very weakest in the morning when I hand my baby boy over for another heart surgery!).

Thank you in advance for your thoughts and prayers tomorrow!

Random Musings

It's been a few days since my last post (when Chase was discharged) and the family has been enjoying some "together time" in anticipation of Chase's surgery tomorrow. I'm finding it hard, especially this morning, that each time I do something (change his diaper, nurse him, give a bottle, kiss his forehead, tickle him 'til he giggles), that it will be the last time I get to do that something for several days. I haven't begun thinking about physically turning him over to the surgical team in the morning... I'll probably wait until later tonight or tomorrow morning to officially begin to get worked up about this next surgery. On the one hand, I'm looking forward to it because it's going to relieve some stress from his heart after the circulatory changes are completed with this procedure, he'll be healthier and able to do "normal baby" stuff (like meet his family and church friends!). On the other hand, I'm a mommy and it obviously scares me to death to know my baby is having his chest opened and heart replumbed again. We'll have several days of recovery, of watching my baby lie in his bed in the PCICU completely doped up on pain meds to keep him comfortable, a breathing tube down his throat, IVs and lines everywhere... I know what to expect this time around, but it surely won't make it any easier. The first time around, he was my newborn baby: so tiny, precious and new. This time around, he's my son: a melancholy personality, full of smiles and giggles who likes to be comforted in mommy's arms. I know him. He's part of our family. He makes our family complete. This will be hard.

We haven't been given anything "official" in writing or anything that says his surgery is scheduled for tomorrow; but we heard it from several reputable sources (including the surgeon Dr. Bradley). We also have to take Chase to MUSC at noon today for some pre-op blood work and possibly some other tests (echo, x-ray, etc.). And the fact that they discontinued his aspirin last week all add up (to me, anyway) to mean that his surgery is a go for tomorrow.

Now, hubs and I haven't had an opportunity to sit down with Dr. Bradley and discuss the surgery yet. We don't know how long it will take, what exactly he plans to accomplish, what risks are involved, etc. As far as we know, there isn't a meeting scheduled yet for this to happen. I can't imagine it will be first thing tomorrow morning before his surgery... Hubs and I have some questions we'll want to ask as well, so we're expecting some kind of meeting will be scheduled prior to his surgery.

((On a related note, I just got a phone call from MUSC Admissions calling to confirm Chase's information for his procedure tomorrow... Guess we're on!))

Please be praying for my sweet baby boy as he prepares to go in for another life-saving operation. My hope and prayer is that his recovery this time around will be much quicker and easier than his first surgery when he was 7 days old. I will keep everyone updated on things here, and on Twitter and Facebook.

Oh, and I also plan to write a post explaining the Bidirectional Glenn procedure so you all will know a little bit about what is going to happen during the surgery.

Thanks in advance for your thoughts and prayers!