We are so blessed! More to come soon!
Monday, October 26, 2009
Chase is Here!
Meet our sweet boy, Chase! He was born on Monday, October 26, 2009 at 3:37 PM. He weighed 8 lbs. 9 oz. and was 20-1/4 inches long!
We are so blessed! More to come soon!
We are so blessed! More to come soon!
Saturday, October 24, 2009
OhMyGoodness!
I'm truly having a hard time believing the time is almost here!
Today is SATURDAY.
I'm going to be admitted to the hospital TOMORROW.
Chase will be here on MONDAY.
It's all so surreal! I am happy to report that I finally got around to packing my hospital bag today. I guess that's part of what makes an induction so convenient -- I can plan accordingly. And it's no surprise to me that Chase hasn't shown any signs of making an early debut. But now that the bag is packed and I'll be heading to the hospital in less than 24 hours, I think it's time for it to finally settle in that I'm getting ready to have a baby!
Although the future is VERY scary to me and I fear for my son's health and survival in the coming days, I know that ultimately we are all in God's hands and that He has a perfect plan for my family. I'm not at all loving that I will have ZERO control over our circumstances. I'm not loving the fact that I most likely will not be able to hold my son for the first time until the night before his surgery, which very well might not be scheduled for 7 or more days after he's born. I'm not loving being 3-1/2 hours from home -- from our friends, our family, the house we call home. It's really weird to prepare to go to the hospital to give birth to a baby that you know you won't be bringing home with you anytime soon. I almost feel like I'm just going in for a "procedure" of some kind, and then a few months later, I'll get to go back and pick up a baby to bring home with me. It's so strange! I've never felt anything like this before. But I'm truly anticipating that God will do wonderful things over the next several weeks and I'm so grateful I get to witness His work first-hand!
On a totally random note... after a bit of a battle with Amazon and FedEx (they showed my package was delivered to Seattle, WA when it actually was delivered across the street by mistake!) we DID get our cellular signal booster thingy today and it DOES seem to have improved our AT&T signal strength inside the house. Praise the Lord! Now I'm just hoping and praying the signal inside the hospital works!
Today is SATURDAY.
I'm going to be admitted to the hospital TOMORROW.
Chase will be here on MONDAY.
It's all so surreal! I am happy to report that I finally got around to packing my hospital bag today. I guess that's part of what makes an induction so convenient -- I can plan accordingly. And it's no surprise to me that Chase hasn't shown any signs of making an early debut. But now that the bag is packed and I'll be heading to the hospital in less than 24 hours, I think it's time for it to finally settle in that I'm getting ready to have a baby!
Although the future is VERY scary to me and I fear for my son's health and survival in the coming days, I know that ultimately we are all in God's hands and that He has a perfect plan for my family. I'm not at all loving that I will have ZERO control over our circumstances. I'm not loving the fact that I most likely will not be able to hold my son for the first time until the night before his surgery, which very well might not be scheduled for 7 or more days after he's born. I'm not loving being 3-1/2 hours from home -- from our friends, our family, the house we call home. It's really weird to prepare to go to the hospital to give birth to a baby that you know you won't be bringing home with you anytime soon. I almost feel like I'm just going in for a "procedure" of some kind, and then a few months later, I'll get to go back and pick up a baby to bring home with me. It's so strange! I've never felt anything like this before. But I'm truly anticipating that God will do wonderful things over the next several weeks and I'm so grateful I get to witness His work first-hand!
On a totally random note... after a bit of a battle with Amazon and FedEx (they showed my package was delivered to Seattle, WA when it actually was delivered across the street by mistake!) we DID get our cellular signal booster thingy today and it DOES seem to have improved our AT&T signal strength inside the house. Praise the Lord! Now I'm just hoping and praying the signal inside the hospital works!
Friday, October 23, 2009
Friday
It's Friday... THREE DAYS until Chase's arrival! I have to keep reminding myself how soon he'll be here because I'm just not believing it yet. There's just been too much else going on in our little world to really concentrate on the fact that I'll be giving birth in 3 short days. Crazy!
I am super-happy that my fabulous sister-in-law safely arrived today along with my equally as fabulous mother-in-law! They drove down together, although my MIL will be leaving tomorrow morning. I think LO was totally stoked to see her Gramma and Aunt D and hang out with them tonight. Hubs and I had the privilege of meeting with Erin and Milo Wilson for dinner tonight. It's such a blessing to have some "heart parents" to talk to, especially ones as incredible and knowledgeable as the Wilsons!
Not much else is going on with us. I did have the unexpected joy of telling hubs our Jeep Cherokee battery was dead. I was getting ready to leave for Target while LO was napping and hubs was considering a nap for himself (much-needed if you ask me!). I went outside, got in the Jeep and turned the key. Not a single light came on, not a single sound was made. It was all kinds of dead. As you can imagine, hubs was waaaaay less than pleased to hear this news. Long story short, I took our other car to Target to pick up a few last things, then found the nearest Home Depot to pick up some socket wrench set thing for hubs to use on the battery. After I got home, he was eventually able to jump the Jeep using our other car. He drove it to a nearby Walmart, where he had purchased the battery 4 short months ago, and they tested it saying it was fine. We'll see if it still starts in the morning after sitting all night long.
We don't have any big plans for the weekend. We should receive our cell phone signal booster thing on Saturday, and I'm REEEEEAAAALLLLLLLLYY hoping it will fix our poor AT&T signal issues. Oh, and did I mention how incredibly BUMMED I am that my sister-in-law and mother-in-law both have Verizon and their phones work fine INSIDE OUR HOUSE?!?!?!? Argh!! So apparently it IS just an AT&T coverage issue. I feel awful since I was the one who worked so hard at convincing hubs to switch from Verizon to AT&T about a month before we came down to Charleston. ((sigh))
I am super-happy that my fabulous sister-in-law safely arrived today along with my equally as fabulous mother-in-law! They drove down together, although my MIL will be leaving tomorrow morning. I think LO was totally stoked to see her Gramma and Aunt D and hang out with them tonight. Hubs and I had the privilege of meeting with Erin and Milo Wilson for dinner tonight. It's such a blessing to have some "heart parents" to talk to, especially ones as incredible and knowledgeable as the Wilsons!
Not much else is going on with us. I did have the unexpected joy of telling hubs our Jeep Cherokee battery was dead. I was getting ready to leave for Target while LO was napping and hubs was considering a nap for himself (much-needed if you ask me!). I went outside, got in the Jeep and turned the key. Not a single light came on, not a single sound was made. It was all kinds of dead. As you can imagine, hubs was waaaaay less than pleased to hear this news. Long story short, I took our other car to Target to pick up a few last things, then found the nearest Home Depot to pick up some socket wrench set thing for hubs to use on the battery. After I got home, he was eventually able to jump the Jeep using our other car. He drove it to a nearby Walmart, where he had purchased the battery 4 short months ago, and they tested it saying it was fine. We'll see if it still starts in the morning after sitting all night long.
We don't have any big plans for the weekend. We should receive our cell phone signal booster thing on Saturday, and I'm REEEEEAAAALLLLLLLLYY hoping it will fix our poor AT&T signal issues. Oh, and did I mention how incredibly BUMMED I am that my sister-in-law and mother-in-law both have Verizon and their phones work fine INSIDE OUR HOUSE?!?!?!? Argh!! So apparently it IS just an AT&T coverage issue. I feel awful since I was the one who worked so hard at convincing hubs to switch from Verizon to AT&T about a month before we came down to Charleston. ((sigh))
Thursday, October 22, 2009
Alone Time
It's Thursday... FOUR DAYS until Chase's arrival! Today we had the opportunity to meet with Melissa, the head of CrossBridge Family Ministries, a local ministry dedicated to meet the needs of families with critically or chronically ill family members and to help families in times of crisis. We are so grateful to have them available to us as we head into this journey. Obviously no one can replace our family, friends and church family, but the folks at CrossBridge step in to fill the gap created by our being 3-1/2 hours from home.
Other than that, it's been weird the past few days -- almost like hubs, LO and I are all having some kind of individual meltdowns that is wreaking havoc on our family dynamic. I'm sure it's just satan trying to get in the way and break down our unity and strength before we head into our roller coaster ride. Honestly, I think a lot of it is because we've all been together constantly over the last several days and haven't had any time to ourselves. On top of all of this, LO has turned into a complete little tyrant. She's not listening to either of us, is being very defiant and down-right mean! I know she's going through a lot and this is a big adjustment for her, so we're trying to cut her some slack. But it's really wearing on hubs and I.
So my alone time today consisted of a Walmart run (woot.) and a much-needed mani/pedi. In total, it was about 3 hours of total bliss. Although it was frustrating a bit as I wandered the aisles at Walmart, talking to my friend on my phone, only to have AT&T drop my call TWICE. I finally gave up. I got tired of standing in the bedding aisle when I truly didn't need any bedding -- it was just the only place I could find where I had one whole bar of signal strength! Of course this evening I called AT&T, who referred me to Apple, who then got AT&T back on the line with me to discuss the issue. Still nothing can be done about it though. I purchased a cell phone signal booster thingy that goes inside the house that is SUPPOSED to amplify the signal enough for me to send/receive phone calls from within the confines of our rental house. What a concept! Who thought a mobile phone would be so immobile?? We literally can only use our phones if we're outside or if we keep our head hanging out a window. This has been the biggest pain! Hopefully this solution will solve the issue and we can go back to focusing on bringing our sweet baby boy into the world in four short days!!!
Ack!
Other than that, it's been weird the past few days -- almost like hubs, LO and I are all having some kind of individual meltdowns that is wreaking havoc on our family dynamic. I'm sure it's just satan trying to get in the way and break down our unity and strength before we head into our roller coaster ride. Honestly, I think a lot of it is because we've all been together constantly over the last several days and haven't had any time to ourselves. On top of all of this, LO has turned into a complete little tyrant. She's not listening to either of us, is being very defiant and down-right mean! I know she's going through a lot and this is a big adjustment for her, so we're trying to cut her some slack. But it's really wearing on hubs and I.
So my alone time today consisted of a Walmart run (woot.) and a much-needed mani/pedi. In total, it was about 3 hours of total bliss. Although it was frustrating a bit as I wandered the aisles at Walmart, talking to my friend on my phone, only to have AT&T drop my call TWICE. I finally gave up. I got tired of standing in the bedding aisle when I truly didn't need any bedding -- it was just the only place I could find where I had one whole bar of signal strength! Of course this evening I called AT&T, who referred me to Apple, who then got AT&T back on the line with me to discuss the issue. Still nothing can be done about it though. I purchased a cell phone signal booster thingy that goes inside the house that is SUPPOSED to amplify the signal enough for me to send/receive phone calls from within the confines of our rental house. What a concept! Who thought a mobile phone would be so immobile?? We literally can only use our phones if we're outside or if we keep our head hanging out a window. This has been the biggest pain! Hopefully this solution will solve the issue and we can go back to focusing on bringing our sweet baby boy into the world in four short days!!!
Ack!
Wednesday, October 21, 2009
Making Progress
It's Wednesday... FIVE DAYS until Chase's arrival! I had an OB appointment this morning and turns out I'm already 2 cm dilated! Ack!! I was expecting the doctor to tell me there was ZERO PROGRESS towards labor, so imagine my surprise! I'm pretty sure it took a hefty dose of Pitocin and about 6 hours of contractions for me to get to 2 cm with LO! I'm very encouraged that perhaps Chase will make his entrance in a much less dramatic way than LO did! We still have 5 days to go, so maybe there's a tiny chance my labor will progress naturally! Either way, I'm sure that my body is much more ready for this delivery since it's my second time around. Woot!
So I do have to complain about one thing... As much as I adore my iPhone, I'm totally bummed about my AT&T cell coverage here in our rental house. Apparently this place is built like a bunker with cinder block walls, resulting in NO SERVICE throughout a majority of the house -- most specifically our bedroom and living room. This is a HUGE DEAL to me! Fast-forward about 2 weeks: Chase is still in the PCICU recovering from his open-heart surgery. Hubs manages to pull me away from the hospital long enough to come home for a few hours of sleep. For some reason the hospital needs to reach us, and they call both of our cell phones and THE CALLS DON'T GO THROUGH! I can't even imagine! I'm very freaked out about this. I went to the AT&T store and supposedly we're in a "good" coverage area, but since the house is apparently Ft. Knox AND it's located near the water, the signal strength isn't that good. I'm really at a loss regarding what to do about this. Anyone have any suggestions???
So I do have to complain about one thing... As much as I adore my iPhone, I'm totally bummed about my AT&T cell coverage here in our rental house. Apparently this place is built like a bunker with cinder block walls, resulting in NO SERVICE throughout a majority of the house -- most specifically our bedroom and living room. This is a HUGE DEAL to me! Fast-forward about 2 weeks: Chase is still in the PCICU recovering from his open-heart surgery. Hubs manages to pull me away from the hospital long enough to come home for a few hours of sleep. For some reason the hospital needs to reach us, and they call both of our cell phones and THE CALLS DON'T GO THROUGH! I can't even imagine! I'm very freaked out about this. I went to the AT&T store and supposedly we're in a "good" coverage area, but since the house is apparently Ft. Knox AND it's located near the water, the signal strength isn't that good. I'm really at a loss regarding what to do about this. Anyone have any suggestions???
Tuesday, October 20, 2009
Words of Encouragement
It's Tuesday. Six days 'til Chase's arrival. Hubs, LO and I have spent the day settling into our rental house. This involved more unpacking, driving around trying to find places, getting lost for a bit, a cranky 2-year-old waaaay overdue for a nap, a 2-hour shopping trip at Walmart and (thankfully) a nap for ALL THREE of us. I have to say this place is starting to feel more "homey" to me, and I think LO is adjusting quite well, too.
We'll be heading to an OB appointment in the morning to see where things are... I'm pretty sure they'll tell me I have ZERO signs of pending labor, and we'll just sit and wait until my induction Monday morning for things to start progressing.
We decided to stay in tonight since we just spent a zillion dollars on groceries and I'm certain I can figure out a quick and easy dinner. In the meantime, hubs and LO have been playing Go Diego Go Safari Rescue on the Wii while I read through a wonderful book of encouragement that my sister gave me before we left for Charleston. As I read through the quotes in the book, several of them jumped off the page and truly blessed me! I thought some of these might be meaningful to you, regardless of where you are in life. Several of my friends and family are going through difficult trials and I'm hopeful some of these quotes will speak to them as well. God's blessings to each and every one of you!!!
Update: The book is called Little Miracles compiled by Dan Zadra.
We'll be heading to an OB appointment in the morning to see where things are... I'm pretty sure they'll tell me I have ZERO signs of pending labor, and we'll just sit and wait until my induction Monday morning for things to start progressing.
We decided to stay in tonight since we just spent a zillion dollars on groceries and I'm certain I can figure out a quick and easy dinner. In the meantime, hubs and LO have been playing Go Diego Go Safari Rescue on the Wii while I read through a wonderful book of encouragement that my sister gave me before we left for Charleston. As I read through the quotes in the book, several of them jumped off the page and truly blessed me! I thought some of these might be meaningful to you, regardless of where you are in life. Several of my friends and family are going through difficult trials and I'm hopeful some of these quotes will speak to them as well. God's blessings to each and every one of you!!!
We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us. ~ Joseph Campbell
Do not pray for tasks equal to your powers; pray for powers equal to your tasks. ~ Phillips Brooks
The world was made round so we would never be able to see too far down the road. ~ Isak Dinesen
All I have seen teaches me to trust the Creator for all I have not seen. ~ Ralph Waldo Emerson
When you come to the edge of all the light you know, and must take a step into the darkness of the unknown, believe that one of two things will happen. Either there will be something solid for you to stand on--or you will be taught how to fly. ~ Patrick Overton
Always know in your heart that you are far bigger than anything that can happen to you. ~ Dan Zadra
There are no mistakes, no coincidences. All events are blessings given to us to learn from. ~ Elisabeth Kubler-Ross
I've never been one who thought the Lord should make life easy; I've just asked Him to make me strong. ~ Eva Bowring
To deem any situation impossible is to make it so. ~ Bernard Drummond
Know in your heart that all things are possible. ~ Dan Zadra
Never give up on anybody. Miracles happen every day. ~ H. Jackson Brown
If I were absolutely certain about all things, I would be fearful of losing my way. But since everything and anything are always possible, the miraculous is always nearby and wonders shall never, ever cease. ~ Robert Fulghum
When nothing is sure, everything is possible. ~ Margaret Drabble
The moment you move out of the way, you make room for the miracle to take place. ~ Dr. Barbara King
Where there is great love, there are always miracles. ~ Willa Cather
Just as angels are attracted to the light of joy and kindness, so too are miracles attracted to the lamp of faith and love. ~ Mary Augustine
I am not afraid of tomorrow, for I have seen yesterday and I love today. ~ William Allen White
Could a greater miracle take place than for us to look through each other's eyes for an instant? ~ Henry David Thoreau
God doesn't comfort us to make us comfortable but to make us comforters. ~ Unknown
Never place a period where God has placed a comma. ~ Gracie Allen
Know in your heart that all things are possible. We couldn't conceive of a miracle if none had ever happened. ~ Libbie Fudim
How simple it is to see all the worry in the world cannot control the future. How simple it is to see that we can only be happy now, and that there will never be a time when it is not now. ~ Gerald Jampolsky
Update: The book is called Little Miracles compiled by Dan Zadra.
Monday, October 19, 2009
Final Countdown!
One week from today, our sweet baby boy Chase will be here! It's so hard for me to believe that our journey is finally beginning. It seems like a lifetime ago when we first found out we were expecting -- what joy we felt! Then it seemed our world came crashing down around us when we heard his diagnosis at 20 weeks: Hypoplastic Left Heart Syndrome. It was like hearing someone speak another language. We had no idea what it meant or how it would impact our lives. The last 18 weeks since the diagnosis have crawled by so slowly... I thought we'd never get here! But now we have a week to settle in and make a new home for our family here in Charleston. The rental house is very nice and we all seem to be adjusting well. I was most worried about LO, but she appears to enjoy the "newness" of being here and has been running around like crazy all day. In fact, we just put her to bed a little after 10:00 PM! This, of course, after we allowed her to eat Krispy Kreme doughnuts for dinner! We figured if it was good enough for mommy and daddy, it was good enough for her! We did throw in a grilled cheese, too, though, to try to keep it healthy. ;)
So this week basically consists of settling in at the house and preparing as much as possible for the journey that awaits us. I'm so very grateful to have my sister-in-law joining us on Thursday and my mom driving down on Saturday. My precious LO will be in the best care while hubs and I take care of Chase.
I have to admit I really haven't even started thinking about the delivery. I know that's kind of a key part of this process, but I've been too focused on getting to Charleston and then trying to emotionally prepare (as much as one can) for Chase's first open-heart surgery. The whole process of giving birth to him is waaaaaay back in the back of my mind! I'm sure that will change very quickly come Monday morning when my induction begins! Ack!!!
So I guess overall it will be a quiet week here in blogland. But stay tuned... our roller coaster ride begins on Monday (if not sooner!) and I plan to keep all of you informed on how things go over the next few weeks. My hope and prayer is still that God will choose to heal Chase of his heart defect before he's born and astonish the doctors! But if that isn't His will, I pray that He will choose to heal Chase through the skilled hands of the excellent surgical team at MUSC. It would be really awesome if Chase's ascending aorta were to grow large enough that they wouldn't need to do the open-heart Norwood surgery at birth -- just an open-chest surgery to band his pulmonary artery. But at this point, we are prepared (as much as possible) for a long journey of 3 open-heart surgeries for our sweet son.
Please be in prayer for us over the next few days as we settle in. I'm sure the anxious/nervous feelings will start to set in BIG TIME and I know I'd certainly appreciate prayers for peace concerning my pending labor and Chase's delivery, as well as for his "official" diagnosis and surgical plan after he's born. Hubs and I know God is in control and has a perfect plan for our family. I just know we couldn't make it through this without the prayer support of our family and friends -- and even a few strangers! Thank you in advance for seeing us through this journey!
So this week basically consists of settling in at the house and preparing as much as possible for the journey that awaits us. I'm so very grateful to have my sister-in-law joining us on Thursday and my mom driving down on Saturday. My precious LO will be in the best care while hubs and I take care of Chase.
I have to admit I really haven't even started thinking about the delivery. I know that's kind of a key part of this process, but I've been too focused on getting to Charleston and then trying to emotionally prepare (as much as one can) for Chase's first open-heart surgery. The whole process of giving birth to him is waaaaaay back in the back of my mind! I'm sure that will change very quickly come Monday morning when my induction begins! Ack!!!
So I guess overall it will be a quiet week here in blogland. But stay tuned... our roller coaster ride begins on Monday (if not sooner!) and I plan to keep all of you informed on how things go over the next few weeks. My hope and prayer is still that God will choose to heal Chase of his heart defect before he's born and astonish the doctors! But if that isn't His will, I pray that He will choose to heal Chase through the skilled hands of the excellent surgical team at MUSC. It would be really awesome if Chase's ascending aorta were to grow large enough that they wouldn't need to do the open-heart Norwood surgery at birth -- just an open-chest surgery to band his pulmonary artery. But at this point, we are prepared (as much as possible) for a long journey of 3 open-heart surgeries for our sweet son.
Please be in prayer for us over the next few days as we settle in. I'm sure the anxious/nervous feelings will start to set in BIG TIME and I know I'd certainly appreciate prayers for peace concerning my pending labor and Chase's delivery, as well as for his "official" diagnosis and surgical plan after he's born. Hubs and I know God is in control and has a perfect plan for our family. I just know we couldn't make it through this without the prayer support of our family and friends -- and even a few strangers! Thank you in advance for seeing us through this journey!
Saturday, October 17, 2009
Not-So-Inspirational Saturday (Sorry!)
It's amazing how much can change in less than 24 hours. It seems like I was in a good place yesterday. I knew what was ahead of me for the weekend -- packing, preparing, finishing up the "to do" list before heading to Charleston. I was starting to get that anxious/nervous feeling as it seems our journey is just a few steps away!
Then late last night, I found it difficult to motivate myself to start getting things done. As I lounged on the bed watching hubs pack up his clothes, I started to get overwhelmed. A feeling came over me that I truly haven't dealt with up to this point. It was an emotional response that's been buried in the depths of the back of my mind for so very long:
I don't.
When I should be overjoyed at the pending arrival of my baby, I'm instead filled with uncertainty.
When I should be packing a simple hospital bag for a day or two, I'm instead packing my entire closet, LO's clothes -- even her bed! -- and several months' worth of things!
When I should be looking forward to holding my precious newborn baby in my arms, I'm instead resentful of the fact that I won't get to do so for who knows how long!
When I should be thinking of a brief hospital stay before bringing my baby home to our family, I'm instead concentrating on how to handle sending my baby with a medical team to open his heart up and perform an 8 hour surgery.
When I should be installing an infant car seat a week or so before my due date, I'm instead wondering if I'll even have the joy of bringing a baby home in that car seat at all.
When I should be worried about bringing home a newborn, getting him onto a schedule and trying to find the time to sleep AND do laundry, I'm instead worried about the countless weeks/months I'll be leaving my baby in the hospital at night, traveling to and from the hospital and splitting my time with my 2-year-old at a temporary home while my heart is aching for my precious son who will be fighting for his life.
When I should be excited about LO meeting her baby brother for the first time, I'm instead overwhelmed at the thought that he might not survive through all of this, and I have no idea how to make a 2-year-old understand that her baby brother is in Heaven and won't be coming home with us.
I don't want to leave the comfort of my home.
I don't want to pack almost every belonging into a box and drive 4 hours away from my family and friends.
I don't want to be forced to make a new home for my family in another city during an already tumultuous time.
I don't want to fear the outcome.
I don't want to fear the unknown.
I don't want to lose my son.
Yes, I fully realize God is in control of our circumstances and He has a perfect plan for my family's life.
But I'm still human.
I feel emotions.
I have fears.
But I will continue to look to Him to lift me up when I'm down.
To give me the strength I need with each new day.
To provide healing to my precious son.
To see my family through the most difficult time in our lives.
He is good. And He loves us. And I know He will help me do what has to be done over the next several weeks. I'm so grateful for his faithfulness. I'm so blessed to rest in Him, even when I'm feeling not-so-inspired.
Then late last night, I found it difficult to motivate myself to start getting things done. As I lounged on the bed watching hubs pack up his clothes, I started to get overwhelmed. A feeling came over me that I truly haven't dealt with up to this point. It was an emotional response that's been buried in the depths of the back of my mind for so very long:
I don't want to do this.
I don't.
When I should be overjoyed at the pending arrival of my baby, I'm instead filled with uncertainty.
When I should be packing a simple hospital bag for a day or two, I'm instead packing my entire closet, LO's clothes -- even her bed! -- and several months' worth of things!
When I should be looking forward to holding my precious newborn baby in my arms, I'm instead resentful of the fact that I won't get to do so for who knows how long!
When I should be thinking of a brief hospital stay before bringing my baby home to our family, I'm instead concentrating on how to handle sending my baby with a medical team to open his heart up and perform an 8 hour surgery.
When I should be installing an infant car seat a week or so before my due date, I'm instead wondering if I'll even have the joy of bringing a baby home in that car seat at all.
When I should be worried about bringing home a newborn, getting him onto a schedule and trying to find the time to sleep AND do laundry, I'm instead worried about the countless weeks/months I'll be leaving my baby in the hospital at night, traveling to and from the hospital and splitting my time with my 2-year-old at a temporary home while my heart is aching for my precious son who will be fighting for his life.
When I should be excited about LO meeting her baby brother for the first time, I'm instead overwhelmed at the thought that he might not survive through all of this, and I have no idea how to make a 2-year-old understand that her baby brother is in Heaven and won't be coming home with us.
I don't want to leave the comfort of my home.
I don't want to pack almost every belonging into a box and drive 4 hours away from my family and friends.
I don't want to be forced to make a new home for my family in another city during an already tumultuous time.
I don't want to fear the outcome.
I don't want to fear the unknown.
I don't want to lose my son.
Yes, I fully realize God is in control of our circumstances and He has a perfect plan for my family's life.
But I'm still human.
I feel emotions.
I have fears.
But I will continue to look to Him to lift me up when I'm down.
To give me the strength I need with each new day.
To provide healing to my precious son.
To see my family through the most difficult time in our lives.
He is good. And He loves us. And I know He will help me do what has to be done over the next several weeks. I'm so grateful for his faithfulness. I'm so blessed to rest in Him, even when I'm feeling not-so-inspired.
Friday, October 16, 2009
Friday Inspiration
I received a card today from one of my mom's coworkers, Mrs. B. It was VERY unexpected! I honestly don't believe I've ever met this wonderful lady, but she knows of me and our situation with Chase through my mom. This sweet lady has been praying for our family and she doesn't even know us. This completely blows my mind. God is so good, and He uses people in ways we cannot even begin to understand.
The card Mrs. B picked out could not have been more perfect! It was such a blessing to me that I couldn't help but share it with you in the hope that it might inspire you today wherever you are in your life. My hope and prayer is that this poem will especially speak to my sisters as they have been through so much in the past week.
The card Mrs. B picked out could not have been more perfect! It was such a blessing to me that I couldn't help but share it with you in the hope that it might inspire you today wherever you are in your life. My hope and prayer is that this poem will especially speak to my sisters as they have been through so much in the past week.
God knows what's in your heart
and what you need
before you ask.
Even when
you don't know for sure,
God knows,
because He knows you.
He knows
the outcome of every situation,
and He's guiding you
even when
you might feel
that you've lost your way.
He knows
how much you can bear,
and He will give you strength
and fill you
with His grace and blessings
as He walks with you
every step of the way.
He is surrounding you
with His love
and holding you gently
in the palm
of His hand.
~Sharon Valleau~
Wednesday, October 14, 2009
The Latest Update
I'm sitting in the fetal-maternal specialist's office (Dr. Greig) right now. Just had my last ultrasound before we head to MUSC! They estimated Chase's weight to be 7 lbs. 8 oz. (+/- 1 lb.)!!! I am so hopeful we have ourselves a big baby so he can tolerate his first open-heart surgery well a few days after he arrives. (Side note: Can you tell I'm blocking out the whole "giving birth" part of the process?) LOL! Really, LO was 8 lbs. 13 oz. so I think I can handle however big Chase ends up being. I know that today's measurement is just a guess and is subject to a 1 lb. variance, but I'm still encouraged that his weight gain is still very much headed in the right direction!!!
Grow, baby! Grow!!!
Posted from my iPhone
Grow, baby! Grow!!!
Posted from my iPhone
Tuesday, October 13, 2009
Happy Birthday, Hubs!!!
Happy Birthday to my darling hubs! I am so grateful for our life together and for how incredibly awesome you are! You are my soul mate, the love of my life and my best friend! Thank you for being such a wonderful husband and father! Our children are so lucky to have you as their daddy!
Thank you for making my life worth living!
Thank you for making my life worth living!
Sunday, October 11, 2009
15 Days and Counting!
We're down to 15 days before Chase's arrival. This week will be a busy one as we prepare for Charleston. I'm still doing my best to keep busy, which, of course, means more baking! I'm thinking of trying out the Oatmeal Raisin cookies I never had a chance to try the other day. Yum!
This afternoon hubs and I took LO to the park for a picnic and some fun. We had a GREAT time! I busted out my Nikon (since no, I haven't been overly impressed with my iPhone camera -- GASP!) and took almost 300 pics of the little tyrant and her daddy. It was such a beautiful day and I was so happy we made it a point to spend some fun time together as a family. Here are a few of my favorite shots:
Now it's time to get to those cookies... Mmmmmm!
This afternoon hubs and I took LO to the park for a picnic and some fun. We had a GREAT time! I busted out my Nikon (since no, I haven't been overly impressed with my iPhone camera -- GASP!) and took almost 300 pics of the little tyrant and her daddy. It was such a beautiful day and I was so happy we made it a point to spend some fun time together as a family. Here are a few of my favorite shots:
Now it's time to get to those cookies... Mmmmmm!
Friday, October 9, 2009
17 Days and Counting...
So the lack of blog updates obviously means there isn't much going on these days. It's crazy how slowly the last few weeks have passed. I guess it's also crazy to think that Chase will be here in just 17 short days. There truly is a LOT to be done between now and then, but we really can't start tackling the To Do lists until next week. I'm at the point now where I'm telling hubs thinks like, "You know, we only have one more Friday to relax here at home before our world turns upside-down." I've also been thinking about how much we'll wish we could just lounge on the couch, watching TV after LO goes to bed, knowing our family is all together under one roof, safe and healthy. A month from now, we'll be balancing living in a temporary home, spending time with our precious son at MUSC, trying to spend time with LO, trying to stay sane as a family, hoping and praying that God will touch our son and bring healing to his tiny little heart. Our lives truly will never be the same.
On another note... I'm planning a surprise date night for hubs and I tonight. He doesn't know anything other than the fact that we have plans. I'm really excited about where we're going and what we'll be doing, but I can't share that here (not that hubs reads the blog or anything -- just still don't want to somehow spoil the surprise). I'll share details later. But I figure this will be a good opportunity to have "one last date night" before things get crazy, while also celebrating hubs' birthday together. He's got a BIG birthday coming up on Tuesday, although apparently he had forgotten all about it until I brought it up last night. I'm telling you, he's been so overly slammed at work the past few months and is completely mentally drained. Plus there's so much looming just around the corner that he really doesn't have any breathing room with everything on his plate. I'm really hopeful he'll be able to relax for a bit tonight and forget all about everything, if only just for a few hours.
On a totally random note regarding my earlier Cookie Day post... I still absolutely LOVE the peanut butter cookie recipe. It's seriously completely fool-proof, and they stay soft for days (assuming they stick around for days and aren't eaten moments after coming out of the oven). I did try the Snickerdoodles recipe but they came out A-W-F-U-L. You know, like when the dough spreads out on the pan and results in one huge, flat, underbaked cookie? Ya, it was bad. I need to try to find a new Snickerdoodles recipe to try out. And unfortunately, I didn't have a chance to try the Oatmeal Raisin recipe, but I hope to give it a whirl over the weekend. :)
On another note... I'm planning a surprise date night for hubs and I tonight. He doesn't know anything other than the fact that we have plans. I'm really excited about where we're going and what we'll be doing, but I can't share that here (not that hubs reads the blog or anything -- just still don't want to somehow spoil the surprise). I'll share details later. But I figure this will be a good opportunity to have "one last date night" before things get crazy, while also celebrating hubs' birthday together. He's got a BIG birthday coming up on Tuesday, although apparently he had forgotten all about it until I brought it up last night. I'm telling you, he's been so overly slammed at work the past few months and is completely mentally drained. Plus there's so much looming just around the corner that he really doesn't have any breathing room with everything on his plate. I'm really hopeful he'll be able to relax for a bit tonight and forget all about everything, if only just for a few hours.
On a totally random note regarding my earlier Cookie Day post... I still absolutely LOVE the peanut butter cookie recipe. It's seriously completely fool-proof, and they stay soft for days (assuming they stick around for days and aren't eaten moments after coming out of the oven). I did try the Snickerdoodles recipe but they came out A-W-F-U-L. You know, like when the dough spreads out on the pan and results in one huge, flat, underbaked cookie? Ya, it was bad. I need to try to find a new Snickerdoodles recipe to try out. And unfortunately, I didn't have a chance to try the Oatmeal Raisin recipe, but I hope to give it a whirl over the weekend. :)
Wednesday, October 7, 2009
Cookie Day
In my ongoing attempt to occupy myself during these last few weeks before Chase's arrival, I've decided to turn into Betty Crocker. Or Martha Stewart. Or whoever you equate with a bake-a-holic. So I've deemed today my own personal "Cookie Day." I am working with three recipes, one of which I've tested previously and absolutely fell in love with! All of these recipes are from Smitten Kitchen -- a foodie blog I highly recommend to anyone who knows their way around the kitchen... and even those that don't!
The first step in celebrating Cookie Day was, of course, to clean my kitchen OCD-style. Check!!
The recipe I've made previously and loved was Peanut Butter Cookies. These things are to die for! They come out so soft and chewy -- absolutely fool-proof and delicious! You can substitute anything for the chocolate chips and peanut butter chips. I've used all chocolate chips and even M&Ms with great success! This is now my one and only peanut butter cookie recipe.
One of the new recipes I'm planning to try is Oatmeal Raisin Cookies. These look delish! I've always been a fan of oatmeal raisin cookies because somehow I've convinced myself that these cookies are "healthy" -- what with the raisins and oatmeal... right?? Right??!
My next new recipe test is for Snickerdoodles. I don't think you can do snickerdoodles wrong, unless of course they come out like crunchy little coasters. I'm a fan of the thick, chewy cookie -- if I wanted something crunchy, I'd grab a cracker! So I'm really hopeful these come out as wonderful as they look!
In case you're curious as to what in the world I'm planning to do with a zillion dozen cookies, no, I'm not planning to eat them all myself. One of my bestest friends on the planet had a baby last week and I'm planning to take her an assortment of these fresh-baked goodies. Then, of course, I'll probably send some with hubs to take to work. As for the rest of them? Well, I guess they're up for grabs! Lemme know if you're interested! :)
The first step in celebrating Cookie Day was, of course, to clean my kitchen OCD-style. Check!!
The recipe I've made previously and loved was Peanut Butter Cookies. These things are to die for! They come out so soft and chewy -- absolutely fool-proof and delicious! You can substitute anything for the chocolate chips and peanut butter chips. I've used all chocolate chips and even M&Ms with great success! This is now my one and only peanut butter cookie recipe.
One of the new recipes I'm planning to try is Oatmeal Raisin Cookies. These look delish! I've always been a fan of oatmeal raisin cookies because somehow I've convinced myself that these cookies are "healthy" -- what with the raisins and oatmeal... right?? Right??!
My next new recipe test is for Snickerdoodles. I don't think you can do snickerdoodles wrong, unless of course they come out like crunchy little coasters. I'm a fan of the thick, chewy cookie -- if I wanted something crunchy, I'd grab a cracker! So I'm really hopeful these come out as wonderful as they look!
* All images from Smitten Kitchen. *
In case you're curious as to what in the world I'm planning to do with a zillion dozen cookies, no, I'm not planning to eat them all myself. One of my bestest friends on the planet had a baby last week and I'm planning to take her an assortment of these fresh-baked goodies. Then, of course, I'll probably send some with hubs to take to work. As for the rest of them? Well, I guess they're up for grabs! Lemme know if you're interested! :)
Tuesday, October 6, 2009
Another Dinner "Dance"
At TGIFridays with hubs and LO. I think this is a dance, or maybe some new boxing moves?? Always keeping us entertained...
Posted from my iPhone
Posted from my iPhone
36 Weeks!
It's hard to believe my sweet baby Chase will be here THREE WEEKS from yesterday! I feel as ready as I could possibly be. Sure, we've got a heck of a lot of packing to do, and there are still so many "unknowns" lurking ahead of us, but I think I'm ready to get the ball rolling! I know I haven't posted much lately, but really, it's because there isn't much happening right now. It's that "holding pattern" type thing. We're down to only 3 more doctor appointments before we head to MUSC. I'm getting excited but also anxious. So really, I apologize for the lack of posting. Trust me, before long there will be waaaay more posts on this blog than you guys will be able to keep up with! :)
Friday, October 2, 2009
Walking by Faith
I have to be honest. While I do feel I've been focusing on all things positive during this journey, I have to admit there has been a constant, nagging, negative thought in the depths of the back of my mind. I mean, really, my newborn son is going to have open-heart surgery a few days after he's born. There IS -- as much as I choose not to think about it -- a chance that we will not be bringing him home, that God will choose to heal him forever by taking him home to spend eternity with our Heavenly Father. Regardless of how much I hope and pray that Chase will exceed our expectations with his recovery or that God will provide a miracle by healing his heart before he's born, I do have to constantly push the one negative thought out of my mind.
God gave me His peace with this pregnancy from the very beginning. When we got the news of his HLHS diagnosis at 20 weeks, God's peace continued to dwell in my heart. I am fully trusting in Him to see us through this journey, whatever the outcome.
Since I am admitting to having this one negative thought, I will also add that this one thought has kept me from doing much of anything to prepare Chase's room for when we come home. I mean, we purchased his convertible crib and dresser a few weeks before we got the diagnosis. But I've been in no hurry to do anything to get his nursery ready. It's that one nagging thought that's been keeping me from it! Plus, I reasoned, God-willing we bring our sweet boy home, he'll probably sleep in his Pack n' Play in our bedroom for a few months before moving into his room. So I'd still have plenty of time to set it up when we get home.
I guess God has been convicting me of allowing this one negative thought to remain in the back of my mind. I truly feel He is asking me to rely solely on Him, His peace, and His promise to see us through. I believe He wants me to live a FEARLESS life, regardless of the circumstances I find myself in. He is helping me grow through all of this and is making Himself known to me in ways I've never experienced before. I'm so grateful for His love, His promise and His blessings in my life.
A few weeks ago, my fantabulous Uncle Darryl was in town to lead a revival at my church. He is one gifted man of God! While he was here, he gave hubs and I a small plaque to take with us to Charleston and hang up somewhere where we'll see it often. It simply references 2 Corinthians 5:7.
My first step in walking by faith? Preparing Chase's room for our return home. Hubs had put the crib together a few weeks ago, so I went ahead and laid out his bedding (it hasn't been washed yet, since I know it's pointless to do so now since he won't be in it for several months). I set up his dresser, cleaned out the drawers and put liner down. I've sorted through the clothing, blankets, towels, gifts, etc. we've received and finally washed a load of his things to take with us to Charleston. I've even packed a few things in his diaper bag. See for yourself!
Overall, I know God will be walking with us through all of this -- most likely carrying us at times -- and I believe it's my responsibility to continue to keep my trust in Him, to believe in the peace He's given and to walk by faith, not by sight.
"Thank you, Lord, for all You are showing me and teaching me right now. All of my faith and trust are in You alone. Amen."
God gave me His peace with this pregnancy from the very beginning. When we got the news of his HLHS diagnosis at 20 weeks, God's peace continued to dwell in my heart. I am fully trusting in Him to see us through this journey, whatever the outcome.
Since I am admitting to having this one negative thought, I will also add that this one thought has kept me from doing much of anything to prepare Chase's room for when we come home. I mean, we purchased his convertible crib and dresser a few weeks before we got the diagnosis. But I've been in no hurry to do anything to get his nursery ready. It's that one nagging thought that's been keeping me from it! Plus, I reasoned, God-willing we bring our sweet boy home, he'll probably sleep in his Pack n' Play in our bedroom for a few months before moving into his room. So I'd still have plenty of time to set it up when we get home.
I guess God has been convicting me of allowing this one negative thought to remain in the back of my mind. I truly feel He is asking me to rely solely on Him, His peace, and His promise to see us through. I believe He wants me to live a FEARLESS life, regardless of the circumstances I find myself in. He is helping me grow through all of this and is making Himself known to me in ways I've never experienced before. I'm so grateful for His love, His promise and His blessings in my life.
A few weeks ago, my fantabulous Uncle Darryl was in town to lead a revival at my church. He is one gifted man of God! While he was here, he gave hubs and I a small plaque to take with us to Charleston and hang up somewhere where we'll see it often. It simply references 2 Corinthians 5:7.
"...for we walk by faith, not by sight." (NASB)Well, I've decided to embrace walking by faith, not by sight. To trust in God and His peace, rather than allow negative thoughts to permeate my mind. I truly believe this is what God wants for me as He's preparing my heart and mind for the journey that lies ahead.
or
"That's why we live with such good cheer. You won't see us drooping our heads or dragging our feet!...It's what we trust in but don't yet see that keeps us going." (MSG)
My first step in walking by faith? Preparing Chase's room for our return home. Hubs had put the crib together a few weeks ago, so I went ahead and laid out his bedding (it hasn't been washed yet, since I know it's pointless to do so now since he won't be in it for several months). I set up his dresser, cleaned out the drawers and put liner down. I've sorted through the clothing, blankets, towels, gifts, etc. we've received and finally washed a load of his things to take with us to Charleston. I've even packed a few things in his diaper bag. See for yourself!
Overall, I know God will be walking with us through all of this -- most likely carrying us at times -- and I believe it's my responsibility to continue to keep my trust in Him, to believe in the peace He's given and to walk by faith, not by sight.
"Thank you, Lord, for all You are showing me and teaching me right now. All of my faith and trust are in You alone. Amen."
Wednesday, September 30, 2009
The Latest
Today hubs and I had an appointment with our Pediatric Cardiologist, Dr. Horne. This was our last visit with him before we head to Charleston for Chase's birth and surgery. It was a very informative 2-hour appointment!
We started with an ultrasound and Dr. Horne gathered all kinds of measurements of Chase's heart. We were again very grateful that our sweet boy is developing normally and that there were no new issues discovered. His estimated weight was 5 lbs. 15 oz. (+/- .75 lb.)!!! I was hoping he would be at least 5 lbs. and he exceeded my expectations! Praise the Lord! I'm still praying for him to be at least 8 lbs. at birth -- the bigger, the better! We were so pleased that all of his measurements looked good -- he was above the 50th percentile across the board.
After the ultrasound we met with Dr. Horne for a consultation. He is such a wonderful doctor and took lots of time to explain things to us and answer our questions. He shared some interesting findings with us as well. He broke out a chart that listed the measurements he took of Chase's heart and started tossing terms like "standard deviation" around (I looked at hubs for a translation since I don't speak numbers) and basically was told that the range for the standard deviation is 2.5. ALL of Chase's measurements were within the standard deviation, with the exception of his ascending aorta, which was at -3.08. In my feeble understanding, that means that all of his measurements, except the ascending aorta, is within the average range of a healthy heart!!! Furthermore, Dr. Horne informed us that IF Chase's ascending aorta were to grow substantially in the next 3-1/2 weeks before his birth, there is a slight possibility that he would NOT need to have the first of the three surgeries, the Norwood procedure, his first week of life. He would still need the 2nd and 3rd surgeries and would still only have one functioning ventricle, but -- can you imagine?? The first surgery is by far the most complex and results in the longest recovery. It is an open-heart procedure, requiring heart/lung bypass, etc. Dr. Horne did say there was only about a 5% chance this could happen, but NOW I KNOW EXACTLY WHAT TO BE PRAYING FOR! Overall it seemed to me that all of the measurements and findings of this ultrasound were very encouraging and that most of Chase's heart is relatively "normal" in a sense. His pulmonary artery is actually larger than what is expected at 35 weeks in a baby with a healthy heart, which was very encouraging as well!
I am fully aware that we WILL face challenges and it WILL be a roller-coaster, but ultimately I am so grateful that God has been with us this far, and know without a doubt He will see us through our journey -- whatever it entails. I have been praying for God to provide a miracle for my sweet baby boy, whether through complete healing or through the surgeon's hands, and He is giving me a surreal peace in my heart and mind that He continues to be in control of everything. God hears our prayers and I will continue all the more fervently to ask Him for His goodness and grace for my baby boy. Please pray with me for this! Hubs and I know without a doubt that if it weren't for the prayers of our families and friends (and even some kind folks we don't know personally), we would not be handling this situation as "well" as we feel we are. We are prepared physically for what lies ahead (temporary housing, childcare, finances, etc.) but we know there is NO WAY for us to prepare emotionally for this journey. That's where faith and prayer come in! We are confident God will give us the strength we need to get through each and every day -- no more, no less!
I know I haven't said it enough, but THANK YOU SO MUCH for your continued thoughts, prayers and support for hubs and I. I can only imagine how helpless friends and family feel right now -- there's really nothing anyone can do (ourselves included!) and I'm sure that has to be frustrating. And I know it's probably hard to talk to us about the situation -- not knowing what to say and not wanting to say the "wrong" thing. Please just know that your prayer support is so very precious to us and we need you to continue to pray over the next few weeks as we put everything in place and prepare for Chase's arrival. God bless each and every one of you!
We started with an ultrasound and Dr. Horne gathered all kinds of measurements of Chase's heart. We were again very grateful that our sweet boy is developing normally and that there were no new issues discovered. His estimated weight was 5 lbs. 15 oz. (+/- .75 lb.)!!! I was hoping he would be at least 5 lbs. and he exceeded my expectations! Praise the Lord! I'm still praying for him to be at least 8 lbs. at birth -- the bigger, the better! We were so pleased that all of his measurements looked good -- he was above the 50th percentile across the board.
After the ultrasound we met with Dr. Horne for a consultation. He is such a wonderful doctor and took lots of time to explain things to us and answer our questions. He shared some interesting findings with us as well. He broke out a chart that listed the measurements he took of Chase's heart and started tossing terms like "standard deviation" around (I looked at hubs for a translation since I don't speak numbers) and basically was told that the range for the standard deviation is 2.5. ALL of Chase's measurements were within the standard deviation, with the exception of his ascending aorta, which was at -3.08. In my feeble understanding, that means that all of his measurements, except the ascending aorta, is within the average range of a healthy heart!!! Furthermore, Dr. Horne informed us that IF Chase's ascending aorta were to grow substantially in the next 3-1/2 weeks before his birth, there is a slight possibility that he would NOT need to have the first of the three surgeries, the Norwood procedure, his first week of life. He would still need the 2nd and 3rd surgeries and would still only have one functioning ventricle, but -- can you imagine?? The first surgery is by far the most complex and results in the longest recovery. It is an open-heart procedure, requiring heart/lung bypass, etc. Dr. Horne did say there was only about a 5% chance this could happen, but NOW I KNOW EXACTLY WHAT TO BE PRAYING FOR! Overall it seemed to me that all of the measurements and findings of this ultrasound were very encouraging and that most of Chase's heart is relatively "normal" in a sense. His pulmonary artery is actually larger than what is expected at 35 weeks in a baby with a healthy heart, which was very encouraging as well!
I am fully aware that we WILL face challenges and it WILL be a roller-coaster, but ultimately I am so grateful that God has been with us this far, and know without a doubt He will see us through our journey -- whatever it entails. I have been praying for God to provide a miracle for my sweet baby boy, whether through complete healing or through the surgeon's hands, and He is giving me a surreal peace in my heart and mind that He continues to be in control of everything. God hears our prayers and I will continue all the more fervently to ask Him for His goodness and grace for my baby boy. Please pray with me for this! Hubs and I know without a doubt that if it weren't for the prayers of our families and friends (and even some kind folks we don't know personally), we would not be handling this situation as "well" as we feel we are. We are prepared physically for what lies ahead (temporary housing, childcare, finances, etc.) but we know there is NO WAY for us to prepare emotionally for this journey. That's where faith and prayer come in! We are confident God will give us the strength we need to get through each and every day -- no more, no less!
I know I haven't said it enough, but THANK YOU SO MUCH for your continued thoughts, prayers and support for hubs and I. I can only imagine how helpless friends and family feel right now -- there's really nothing anyone can do (ourselves included!) and I'm sure that has to be frustrating. And I know it's probably hard to talk to us about the situation -- not knowing what to say and not wanting to say the "wrong" thing. Please just know that your prayer support is so very precious to us and we need you to continue to pray over the next few weeks as we put everything in place and prepare for Chase's arrival. God bless each and every one of you!
Tuesday, September 29, 2009
35 Weeks!
Week and day: 35 weeks, 2 Days
Belly Button in or out: Still in, of course!
Wedding rings on or off: Argh... I've been so happy that I've been able to keep them on so long, until yesterday. I had a really hard time getting them off, and I'm pretty sure the time is now here to keep them off. Phooey!!!
Food cravings: Chocolate milk.
Food aversions: None. Woot!
Nausea: None!
Energy level: Energy? What energy??
Weight gain: ((inadvertently skipping this one...))
Mood: Anxious and excited. Chase will be here in less than 4 weeks! I can hardly believe the time is almost here, yet it really feels like these last 4 months have S-L-O-W-L-Y dragged by. I'm very much looking forward to what God has in store for my family!
Maternity clothes: Duh!
Size of baby: He doesn't have much room to maneuver now that he's over 18 inches long and should tip the scales around 5 1/4 pounds.
Baby's changes: His kidneys are fully developed now, and his liver can process some waste products. Most of his basic physical development is now complete — he'll spend the next few weeks putting on weight. Woot!!
Next appointment: An appointment with the PC Dr. Horne on Wednesday. Hubs and I are quite anxious to see how much our little boy weighs when we see Dr. Horne. I'm praying that Chase will be 8+ lbs. when he's born, but from what Dr. Greig has said, I'm not on target for an 8 lb. baby. I'd love to defy him, though! LO was 8 lbs. 13 oz. at 40 weeks, so hopefully her little brother can hit the 8 lb. mark by 39 weeks!
What I've been up to: Just waiting and preparing and waiting and preparing. There's only so much I can do right now to get us ready for our big trip. The lists have all been written, but the packing can't happen until a few days before we leave. I'm feeling very prepared physically for Chase's arrival, but I'm certain I have no idea what I'll be up against emotionally. I've read blogs, researched HLHS, learned about the first surgery Chase will have, etc. But I know none of this will truly prepare me emotionally to watch my sweet baby boy go through open-heart surgery. I pray God will choose to heal him--whether by a true miracle of His divine hand, or through the surgeons and PCICU staff who will be caring for him. I know my God is good. He has a perfect plan for our sweet son and I am fully trusting in Him. He will provide!
Here ya go... 35 weeks:
Belly Button in or out: Still in, of course!
Wedding rings on or off: Argh... I've been so happy that I've been able to keep them on so long, until yesterday. I had a really hard time getting them off, and I'm pretty sure the time is now here to keep them off. Phooey!!!
Food cravings: Chocolate milk.
Food aversions: None. Woot!
Nausea: None!
Energy level: Energy? What energy??
Weight gain: ((inadvertently skipping this one...))
Mood: Anxious and excited. Chase will be here in less than 4 weeks! I can hardly believe the time is almost here, yet it really feels like these last 4 months have S-L-O-W-L-Y dragged by. I'm very much looking forward to what God has in store for my family!
Maternity clothes: Duh!
Size of baby: He doesn't have much room to maneuver now that he's over 18 inches long and should tip the scales around 5 1/4 pounds.
Baby's changes: His kidneys are fully developed now, and his liver can process some waste products. Most of his basic physical development is now complete — he'll spend the next few weeks putting on weight. Woot!!
Next appointment: An appointment with the PC Dr. Horne on Wednesday. Hubs and I are quite anxious to see how much our little boy weighs when we see Dr. Horne. I'm praying that Chase will be 8+ lbs. when he's born, but from what Dr. Greig has said, I'm not on target for an 8 lb. baby. I'd love to defy him, though! LO was 8 lbs. 13 oz. at 40 weeks, so hopefully her little brother can hit the 8 lb. mark by 39 weeks!
What I've been up to: Just waiting and preparing and waiting and preparing. There's only so much I can do right now to get us ready for our big trip. The lists have all been written, but the packing can't happen until a few days before we leave. I'm feeling very prepared physically for Chase's arrival, but I'm certain I have no idea what I'll be up against emotionally. I've read blogs, researched HLHS, learned about the first surgery Chase will have, etc. But I know none of this will truly prepare me emotionally to watch my sweet baby boy go through open-heart surgery. I pray God will choose to heal him--whether by a true miracle of His divine hand, or through the surgeons and PCICU staff who will be caring for him. I know my God is good. He has a perfect plan for our sweet son and I am fully trusting in Him. He will provide!
Here ya go... 35 weeks:
Saturday, September 26, 2009
Fearless
It's been a relatively uneventful few days in our household, which has contributed to my lack of blog writing. I feel like we're in a "holding pattern" of sorts right now, just waiting out these last 4 weeks until Chase is born. Don't get me wrong -- there are a lot of things we'll need to do before we head to Charleston, but most of it just can't be done until a few days before we hit the road. I've been trying to enjoy this time as I know this life as we know it will never be the same again! I've been trying to focus on LO and have as much fun with her as possible, since she'll be vying for her parents' attention in a few short weeks. I've been trying to mentally prepare myself as best as I can as far as what to expect and how to handle the roller coaster we're getting ready to board. Overall I have to admit that I think I'm in the best place possible mentally. God has truly been working on me and reminding me of His presence through all of this, that He's in control of our circumstances and He has a perfect plan for our family and especially for our darling Chase.
One great source of inspiration I came across last week was a wonderful book by the famed Christian author, Max Lucado. The book is titled Fearless.
I got it a few days ago and started reading it yesterday. I haven't been able to put it down! The book covers several different kinds of fears and many of them have spoken to my heart. Specifically, chapter 5: My Child is in Danger: Fear of Not Protecting My Kids. I cried my eyes out as I read the words of inspiration Max put on the pages -- words of inspiration straight from the heart and mouth of my Lord and Savior. I highly recommend this book to every person on the planet, but especially to parents and even more specifically to parents of children struggling with health problems. Let God use this book to remind you that He is with you through every fear.
One great source of inspiration I came across last week was a wonderful book by the famed Christian author, Max Lucado. The book is titled Fearless.
I got it a few days ago and started reading it yesterday. I haven't been able to put it down! The book covers several different kinds of fears and many of them have spoken to my heart. Specifically, chapter 5: My Child is in Danger: Fear of Not Protecting My Kids. I cried my eyes out as I read the words of inspiration Max put on the pages -- words of inspiration straight from the heart and mouth of my Lord and Savior. I highly recommend this book to every person on the planet, but especially to parents and even more specifically to parents of children struggling with health problems. Let God use this book to remind you that He is with you through every fear.
Don't be afraid. Just believe, and your [child] will be well. ~ Luke 8:50 NCVI've placed my trust in Him. I've placed my son's life in His hands (my children belong to Him anyway!). I'm keeping my eyes on Him so I will not falter as I face the most difficult situation of my life. I am so grateful for His love for me and my family, and for His innumerable blessings. What a concept to embrace life with a spirit of FAITH, not FEAR!
Wednesday, September 23, 2009
Dr. Appointment
Yesterday I had an appointment with the Perinatologist (high risk fetal maternal doctor guy). As I mentioned the other day, I was less than pleased when they called me Monday to remind me about my appointment and also informed me that children are not allowed in the office. This was a big surprise as we've brought LO to almost all of our appointments so both hubs and I could be there. So I was already irritated before I even got to the office.
When I walked into the office, I was even more irritated because there was a 4 or 5 year old boy in the waiting area with his mom. WHAA?? Ya. I proceeded to check in and while I was at it, I mentioned to the check-in lady that I did not appreciate the fact I was given less than 24 hours notice that children are not allowed at appointments. She told me there have been signs posted, but I promise you they were NOT there at my last appointment 2 weeks ago. She said they call people the day before their appointment to inform them about the new rule, and I said that just isn't enough notice for a stay at home mom to find someone to keep their child. I wasn't rude, but the lady most definitely had a bit of a chip on her shoulder. I let it go, figuring I'd share my thoughts on the subject with Dr. Greig when I saw him.
((Note: Hubs met me at the doctor's office and took LO to run errands while I went to the appointment by myself. I'm still quite irritated about this whole thing, but there's nothing I can do about it.))
So after about 15 minutes I went back for my ultrasound. The tech was nice and was checking several things to make sure Chase looked good. Everything she saw was great! I had to specifically ask her to measure his abdomen again, which she did, and confirmed he's in the 61st percentile! Praise the Lord! I was VERY pleased to hear this wonderful news. I also asked for his weight, but she said they don't do weight measurements each time -- usually every 3 weeks.
After the ultrasound, I was taken to a little room to wait on Dr. Greig. Five minutes... ten minutes... fifteen mintues... twenty minutes... almost TWENTY-FIVE minutes later, a NURSE comes in to ask (1) when my last OB appointment was and (2) IF I have an appointment scheduled with the Pediatric Cardiologist, Dr. Horne. I said I saw my OB last week, and that YES, I have an appointment with Dr. Horne next week HERE IN YOUR OFFICE! Seriously? Can they not look at their own schedule to confirm I have an appointment already scheduled? Ugh. Then, the nurse says I'm FREE TO GO! Whaa?? Where's Dr. Greig? Why have I been waiting 25 minutes for Dr. Greig if I'm not going to see him at all? Why couldn't you come in here 20 minutes ago to tell me I won't be seeing Dr. Greig today and save me from wasting 25 minutes of my morning while hubs and LO had been waiting for me in the parking lot??? I was seriously irritated.
Since I'm already on my soapbox, let me continue a step further. After our last appointment 2 weeks ago when they told me my son's abdomen growth was in the 16th percentile, I voiced my concerns to Dr. Greig AT the appointment. The next day, still not overly convinced at what he told me (eat a lot and rest a lot and "magically" his abdomen growth will improve), I sent him an email voicing my concerns over how this percentage could change from 61st percentile to 16th percentile over the course of 2 weeks. Dr. Greig CALLED ME and basically told me the same things he told me at the appointment the day before. Still no warm and fuzzy from this guy. I specifically asked him to confirm for me that this 16th percentile data they saw is in line with what his abdomen growth had been over the past several visits, and he AGREED! So now, magically, 2 weeks later, his abdomen growth is BACK in the 61st percentile. How is this possible?? What it comes down to is a BAD MEASUREMENT at our last appointment. Chase just wasn't in a good position to get a good measurement -- this I know. But WHY couldn't this doctor take the time to admit this? Did he even look over my previous ultrasound results to confirm that a 16th percentile measurement was a bit of an anomaly? Seriously, folks. I'm so tired of dealing with inept people that aren't willing to take TWO SECONDS to do their jobs! I mean, would it have taken him that much time to actually review Chase's growth over the past 14 weeks? Isn't that his JOB as a high risk doctor, to monitor the growth and development of my baby?? And would it have taken THAT MUCH time for a nurse to tell me after my ultrasound yesterday that Dr. Greig was behind schedule and I could either (A) go ahead and leave (without waiting 25 minutes for nothing) or (B) go ahead and wait on Dr. Greig, knowing that it would probably be a good 30 minutes before he could see me? It's called customer service, and it's something that does not exist these days (at least not in our experiences).
Whew. Okay, sorry about all that complaining. I just get so irritated that we keep having situations like this happen to us over and over and over again and it always comes back to the simple principle of customer service/patient care and taking two seconds to think about others. My hope and prayer is that we'll have the excellent care I've heard so much about once we get to MUSC for Chase's birth and surgery.
When I walked into the office, I was even more irritated because there was a 4 or 5 year old boy in the waiting area with his mom. WHAA?? Ya. I proceeded to check in and while I was at it, I mentioned to the check-in lady that I did not appreciate the fact I was given less than 24 hours notice that children are not allowed at appointments. She told me there have been signs posted, but I promise you they were NOT there at my last appointment 2 weeks ago. She said they call people the day before their appointment to inform them about the new rule, and I said that just isn't enough notice for a stay at home mom to find someone to keep their child. I wasn't rude, but the lady most definitely had a bit of a chip on her shoulder. I let it go, figuring I'd share my thoughts on the subject with Dr. Greig when I saw him.
((Note: Hubs met me at the doctor's office and took LO to run errands while I went to the appointment by myself. I'm still quite irritated about this whole thing, but there's nothing I can do about it.))
So after about 15 minutes I went back for my ultrasound. The tech was nice and was checking several things to make sure Chase looked good. Everything she saw was great! I had to specifically ask her to measure his abdomen again, which she did, and confirmed he's in the 61st percentile! Praise the Lord! I was VERY pleased to hear this wonderful news. I also asked for his weight, but she said they don't do weight measurements each time -- usually every 3 weeks.
After the ultrasound, I was taken to a little room to wait on Dr. Greig. Five minutes... ten minutes... fifteen mintues... twenty minutes... almost TWENTY-FIVE minutes later, a NURSE comes in to ask (1) when my last OB appointment was and (2) IF I have an appointment scheduled with the Pediatric Cardiologist, Dr. Horne. I said I saw my OB last week, and that YES, I have an appointment with Dr. Horne next week HERE IN YOUR OFFICE! Seriously? Can they not look at their own schedule to confirm I have an appointment already scheduled? Ugh. Then, the nurse says I'm FREE TO GO! Whaa?? Where's Dr. Greig? Why have I been waiting 25 minutes for Dr. Greig if I'm not going to see him at all? Why couldn't you come in here 20 minutes ago to tell me I won't be seeing Dr. Greig today and save me from wasting 25 minutes of my morning while hubs and LO had been waiting for me in the parking lot??? I was seriously irritated.
Since I'm already on my soapbox, let me continue a step further. After our last appointment 2 weeks ago when they told me my son's abdomen growth was in the 16th percentile, I voiced my concerns to Dr. Greig AT the appointment. The next day, still not overly convinced at what he told me (eat a lot and rest a lot and "magically" his abdomen growth will improve), I sent him an email voicing my concerns over how this percentage could change from 61st percentile to 16th percentile over the course of 2 weeks. Dr. Greig CALLED ME and basically told me the same things he told me at the appointment the day before. Still no warm and fuzzy from this guy. I specifically asked him to confirm for me that this 16th percentile data they saw is in line with what his abdomen growth had been over the past several visits, and he AGREED! So now, magically, 2 weeks later, his abdomen growth is BACK in the 61st percentile. How is this possible?? What it comes down to is a BAD MEASUREMENT at our last appointment. Chase just wasn't in a good position to get a good measurement -- this I know. But WHY couldn't this doctor take the time to admit this? Did he even look over my previous ultrasound results to confirm that a 16th percentile measurement was a bit of an anomaly? Seriously, folks. I'm so tired of dealing with inept people that aren't willing to take TWO SECONDS to do their jobs! I mean, would it have taken him that much time to actually review Chase's growth over the past 14 weeks? Isn't that his JOB as a high risk doctor, to monitor the growth and development of my baby?? And would it have taken THAT MUCH time for a nurse to tell me after my ultrasound yesterday that Dr. Greig was behind schedule and I could either (A) go ahead and leave (without waiting 25 minutes for nothing) or (B) go ahead and wait on Dr. Greig, knowing that it would probably be a good 30 minutes before he could see me? It's called customer service, and it's something that does not exist these days (at least not in our experiences).
Whew. Okay, sorry about all that complaining. I just get so irritated that we keep having situations like this happen to us over and over and over again and it always comes back to the simple principle of customer service/patient care and taking two seconds to think about others. My hope and prayer is that we'll have the excellent care I've heard so much about once we get to MUSC for Chase's birth and surgery.
Monday, September 21, 2009
More Dancing
Hubs and I took LO to Chuck E. Cheese tonight. See, there will be ONE CEC commercial on early in the morning and LO will tell me she wants to go. I'll always tell her that we'll have to wait and ask Daddy when he gets home. Well tonight, as soon as he walked in the door, she asked if we could go to CEC maybe? We didn't have anything on our agenda, so we went for it. Here is a video and some pics...
Posted from my iPhone
Posted from my iPhone
Bullet Points
I'm not feeling overly creative today, so I'm going with a few simple bullet points:
- Things have been pretty quiet in our household lately. The past few weeks have been focused on getting miscellaneous things done around the house, compiling lists for what needs to happen between now and Chase's birth, etc. There's a lot of preparation to be done, but it seems like a lot of it has to wait until closer to the big day. It's slightly overwhelming to think of what needs to happen between now and then, but I'm trying to stay focused and keep myself organized.
- It's flu season. I understand this. But I was less than pleased when I got a call a few minutes ago from the Perinatologist's office reminding me about my appointment tomorrow at 10AM. Hubs and I were planning to go together, as we always have, bringing LO with us since we have no one to keep her that day. Well, this phone call informed me that they are not allowing any children in their office due to flu season. Ya. Less than 24 hours notice from my scheduled appointment time. I guess I understand their reasoning, but I was less than pleased to get this information the day before my appointment. So now, hubs will have to take LO to McDonald's or something while I go to the appointment SOLO. I'm not too happy about it. We've been waiting for this appointment for almost 2 weeks so we can see if Chase's abdomen growth has increased and I'd prefer to have my better half there with me when this is determined. Ugh.
- Totally unrelated, but I'm totally loving my ability to post to my blog from my iPhone. It's sweet. As you've probably noticed, I can upload pics, video -- whatever I want -- from wherever I am. This is exactly what we wanted for while we're in Charleston so I can easily provide updates to friends and family on how things are going with us. I am a bit worried I've taken my mobile blogging a bit too far... so many recent posts of pics and videos... Y'all let me know if it gets to be too much. :)
- Yesterday I found a blog for a fellow HLHS baby girl from Charleston, Maia Deeb, and her story has been such an encouragement and inspiration to me. From what I read, it seems her diagnosis was a very "standard" HLHS case, which we are expecting the same for Chase. Maia was born on July 26, 2009. Since Dr. Bradley (the acclaimed Pediatric Cardiothoracic surgeon at MUSC) was on vacation at the time, they waited 10 days for his return so he could do her surgery on August 5th. The surgery went very well, although her heart had a few challenges adjusting to the changes. However, she recovered well and was able to step down to 7C (in other words, move out of the PCICU) on August 16th! That was only 11 days after her surgery!! Amazing! As if that weren't fantastic enough, this sweet family was headed home with their newborn baby girl on August 21st -- less than a month after she was born! I am very encouraged by this family's HLHS journey because it proves to me that it IS possible for things to go smoothly and for God to bring us through this difficult time without the "worst case scenario" mindset that I've been struggling with for the past several weeks. I'm having a tough time walking the line between "optimistic" and "realistic" in the sense that I want to expect the best, but then in order to not be blindsided by setbacks, I feel like I should prepare for the worst. It's a difficult balance to find, and I'm certain I haven't found it as of yet. All I can do is continue to pray for our sweet boy, for God's healing touch, for guidance and wisdom along the way, and for Him to give us the strength that we need to get through each day. I know He is in control and I am doing my best to rest comfortably in His loving arms during such a tumultuous time.
- I've been debating about getting Chase's nursery ready. Honestly, even after we get home with him, he'll probably sleep in the Pack n' Play in our bedroom for a few months, so I know we'll have plenty of time to get his room ready after we get home. You can imagine the main negative reason I'm not wanting to have his nursery ready for us to come home to, but I'm trying to stay positive so I won't dwell on this thought. I guess the bottom line is there will be plenty of time to put his nursery together when we return from Charleston, and quite frankly, I'll have a LOT more joy and excitement in putting it together when my darling son is here at home with me than I would now with all of the uncertainties in the air.
- We still haven't received a "Welcome Packet" from MUSC. Hubs is adamant one exists. You know, a packet of information on MUSC, maps of the hospital, FAQs, billing information, where to park, what to expect, etc. Granted, there is a LOT of this information available on MUSC's website, which is nice, but I think hubs is hoping for something more. We'll keep keeping an eye out for it, but I'm not holding my breath. :)
- I got a pedicure yesterday. It was nice. I'll definitely get another one before delivery day. Still thinking I ought to schedule another prenatal massage, too...
- Guess that's it for now. What a bunch of rambling, huh?
Saturday, September 19, 2009
My Latest Obsession
Hostess Cupcakes. I could eat about 12 in one sitting, but I choose not to. Well, most of the time anyway...
Yum.
And I wonder why I'm packing on the pregnancy pounds. Hmmm...
Posted from my iPhone
Yum.
And I wonder why I'm packing on the pregnancy pounds. Hmmm...
Posted from my iPhone
Friday, September 18, 2009
Pajama Dance!
Here's a little clip of LO doing her "pajama dance" while watching the Backyardigans. She sure does a great job of keeping Mommy and Daddy entertained!!!
Posted from my iPhone
Posted from my iPhone
Thursday, September 17, 2009
Your Help is Needed!
For those of you who read "The Wilson Heart" blog about baby Josiah, you may already know about this. Josiah's mom, Erin, is collecting donations to purchase a centrifuge for the PCICU at MUSC. Why, you ask?? Because sweet Josiah, who was born with HLHS at MUSC in May, cannot tolerate the normal amount of fat that is present in breastmilk. A nurse came up with the idea to use a centrifuge to separate the fat from the milk, essentially giving Josiah "skim" breastmilk. The wonderful news is that it's working great and he's putting on weight while getting all of then added nutrients and benefits of breastmilk.
The PCICU doesn't own a centrifuge, but they've decided this practice will definitely benefit babies in Josiah's position. Unfortunately they don't have money in the budget to purchase one, which is where these donations come in.
If you feel led to donate to this cause, CLICK HERE to visit Erin's blog and read more about this initiative. It will benefit so many babies -- perhaps even Chase! Thank you in advance for your kindness and generosity!
Posted from my iPhone
The PCICU doesn't own a centrifuge, but they've decided this practice will definitely benefit babies in Josiah's position. Unfortunately they don't have money in the budget to purchase one, which is where these donations come in.
If you feel led to donate to this cause, CLICK HERE to visit Erin's blog and read more about this initiative. It will benefit so many babies -- perhaps even Chase! Thank you in advance for your kindness and generosity!
Posted from my iPhone
Wednesday, September 16, 2009
Our Little Pumpkin
As you probably know, Chase will be arriving the week of Oct. 26th. That means he'll be in the hospital for his first Halloween. Not one to let one of my child's first holidays pass by, I purchased him a little something this morning:
You probably also know he'll only be able to wear hats and socks (and diapers, of couse), so this is the extent of his first Halloween costume. ;)
Posted from my iPhone
You probably also know he'll only be able to wear hats and socks (and diapers, of couse), so this is the extent of his first Halloween costume. ;)
Posted from my iPhone
Shopping with LO
This is technically another iPhone test, this time to upload a photo from my phone. This was taken the other day at the grocery store. For whatever reason, LO wanted to ride in the bottom of the little cart. Crazy girl!!
Posted from my iPhone
Posted from my iPhone
More Wonder Pets, Mom!
I'm trying out the blogging capabilities of my awesome iPhone, and wanted to see how easy it would be to post a short video clip I captured on my phone. This was LO the other night when a second episode of Wonder Pets came on. I always thinks it's hilarious when she calls me "mom." :)
Posted from my iPhone
Posted from my iPhone
Monday, September 14, 2009
33 Weeks!
Well, it's been a few weeks since I've posted a pregnancy update, so I thought I'd hit ya'll with 33 weeks. This way, I can continue to post every 2 weeks (at 35, 37 and 39 weeks). Chase should be here at 39 weeks, so believe it or not, we're almost there!!!
Week and day: 33 weeks, 1 Day
Belly Button in or out: Still in, of course! :)
Wedding rings on or off: Still on, and I can't believe it! I'm pretty sure they came off around 6 months when I was pregnant with LO. Here I am 8 months pregnant with Chase and rings are still on! WOOT!
Food cravings: Chocolate milk, Little Debbie Star Crunch cookies, Fruity AND Cocoa Pebbles (separately, not mixed together of course -- that would be gross!).
Food aversions: None. Woo-Hoo!
Nausea: None!
Energy level: I ain't gone none. No surprise there, right?
Weight gain: Do we really need to discuss this? Really? I can't imagine you guys are all that interested in how much weight I've gained with this pregnancy, are you? Seriously? Let's just say I'm thinking we're around the ((gulp)) 40 pound mark. There. I said it. You happy? Now I think I need another Star Crunch...
Mood: Anxious. It's hard to believe in less than 6 weeks, Chase will be here. I guess with most pregnancies this time should be an "excited anxious" but with me, it's a very NERVOUS anxious. I'm excited to finally see my precious baby boy for the first time, but I'm so very nervous about the roller coaster ride we'll be on once he's here. I'm worried about how LO will handle everything. Her WONDERFUL Aunt D will be her primary caretaker while hubs and I are at the hospital for Chase's birth. I know she'll have fun with Aunt D, but LO has NEVER been apart from hubs and I for more than one night. I'm worried she won't adjust well to not having mommy and daddy around all the time.
Maternity clothes: 24/7, of course!
Size of baby: This week he weighs a little over 4 pounds and is over 17 inches in length.
Baby's changes: He's rapidly losing that wrinkled, alien look and his skeleton is hardening.
Next appointment: Let's see... I've got a regular OB appointment on Wednesday. I'm waiting to hear from Dr. Greig about an appointment next week. Then, I see Dr. Horne (the Pediatric Cardiologist) the following Wednesday, September 30th. I also have a 38-week appointment already scheduled with the MUSC OB team on Wednesday, October 21st. There will pretty much be weekly appointments with my regular OB and Dr. Greig between now and the time we head to Charleston next month. It's hard to keep track of them all! Good thing I have my iPhone now to coordinate my crazy schedule! :)
What I've been up to: We are so very happy to have FINALLY nailed down a property for our stay in Charleston. It's about a 10 minute drive to MUSC, but it's in a lovely neighborhood and really works out great for LO. I did enjoy a lovely baby shower hosted by my dear sister and fellow pregnant friend last week. It was a small, intimate gathering of just a few close friends and was very special. We're also planning to kind of put Chase's room together. Hubs is working on putting the crib together, and I need to organize the baby stuff we've received. Part of me is nervous in putting together his room because of the potential risk that he won't be coming home with us, and we'd have an empty nursery to take apart. But I'm trusting in God and am continuing to pray for Chase's health and safety through his first surgery. I know my God is more than able to do exceedingly more than I could ever ask or imagine!!!
I think I've mentioned this on here already, but I'll go in to MUSC on Sunday evening, October 25th and my induction will start Monday morning, October 26th. God willing, Chase will be here on October 26th!!!
Sorry to disappoint, but I'm feeling way too lazy to take my 33 week pic right now. Honestly, LO is napping and mommy is heading to do the same! I'll try to post a pic soon! :)
Update: I finally got myself motivated enough to take my 33 week pic! I know, you can hardly contain your excitement, right? Well, here ya go. I must say, the best part of this pic is the pretty little iPhone the picture was taken with! :) Oh, and let's not discuss the fact that the shirt is barely able to contain my growing belly NOR the fact that my blue jeans are screaming for relief from covering my massive thighs!
Week and day: 33 weeks, 1 Day
Belly Button in or out: Still in, of course! :)
Wedding rings on or off: Still on, and I can't believe it! I'm pretty sure they came off around 6 months when I was pregnant with LO. Here I am 8 months pregnant with Chase and rings are still on! WOOT!
Food cravings: Chocolate milk, Little Debbie Star Crunch cookies, Fruity AND Cocoa Pebbles (separately, not mixed together of course -- that would be gross!).
Food aversions: None. Woo-Hoo!
Nausea: None!
Energy level: I ain't gone none. No surprise there, right?
Weight gain: Do we really need to discuss this? Really? I can't imagine you guys are all that interested in how much weight I've gained with this pregnancy, are you? Seriously? Let's just say I'm thinking we're around the ((gulp)) 40 pound mark. There. I said it. You happy? Now I think I need another Star Crunch...
Mood: Anxious. It's hard to believe in less than 6 weeks, Chase will be here. I guess with most pregnancies this time should be an "excited anxious" but with me, it's a very NERVOUS anxious. I'm excited to finally see my precious baby boy for the first time, but I'm so very nervous about the roller coaster ride we'll be on once he's here. I'm worried about how LO will handle everything. Her WONDERFUL Aunt D will be her primary caretaker while hubs and I are at the hospital for Chase's birth. I know she'll have fun with Aunt D, but LO has NEVER been apart from hubs and I for more than one night. I'm worried she won't adjust well to not having mommy and daddy around all the time.
Maternity clothes: 24/7, of course!
Size of baby: This week he weighs a little over 4 pounds and is over 17 inches in length.
Baby's changes: He's rapidly losing that wrinkled, alien look and his skeleton is hardening.
Next appointment: Let's see... I've got a regular OB appointment on Wednesday. I'm waiting to hear from Dr. Greig about an appointment next week. Then, I see Dr. Horne (the Pediatric Cardiologist) the following Wednesday, September 30th. I also have a 38-week appointment already scheduled with the MUSC OB team on Wednesday, October 21st. There will pretty much be weekly appointments with my regular OB and Dr. Greig between now and the time we head to Charleston next month. It's hard to keep track of them all! Good thing I have my iPhone now to coordinate my crazy schedule! :)
What I've been up to: We are so very happy to have FINALLY nailed down a property for our stay in Charleston. It's about a 10 minute drive to MUSC, but it's in a lovely neighborhood and really works out great for LO. I did enjoy a lovely baby shower hosted by my dear sister and fellow pregnant friend last week. It was a small, intimate gathering of just a few close friends and was very special. We're also planning to kind of put Chase's room together. Hubs is working on putting the crib together, and I need to organize the baby stuff we've received. Part of me is nervous in putting together his room because of the potential risk that he won't be coming home with us, and we'd have an empty nursery to take apart. But I'm trusting in God and am continuing to pray for Chase's health and safety through his first surgery. I know my God is more than able to do exceedingly more than I could ever ask or imagine!!!
I think I've mentioned this on here already, but I'll go in to MUSC on Sunday evening, October 25th and my induction will start Monday morning, October 26th. God willing, Chase will be here on October 26th!!!
Sorry to disappoint, but I'm feeling way too lazy to take my 33 week pic right now. Honestly, LO is napping and mommy is heading to do the same! I'll try to post a pic soon! :)
Update: I finally got myself motivated enough to take my 33 week pic! I know, you can hardly contain your excitement, right? Well, here ya go. I must say, the best part of this pic is the pretty little iPhone the picture was taken with! :) Oh, and let's not discuss the fact that the shirt is barely able to contain my growing belly NOR the fact that my blue jeans are screaming for relief from covering my massive thighs!
Thursday, September 10, 2009
Another Update
So yesterday I was quite concerned with the findings of our latest ultrasound, specifically, the fact that the doctor told us Chase's abdomen was only in the 16th percentile for growth. I was very worried when we left, but even more so after we got home. I happened to have a copy of the information from our ultrasound at MUSC last week, and it indicated his abdomen circumference was in the 61st percentile! How in the world could it so drastically change in only 8 days!? Not to mention the fact that we were told he weighed 4 pounds last Tuesday at MUSC, and were told again yesterday that he weighed 4 pounds. That tells me he's put on NO WEIGHT in 8 days! Am I wrong to be concerned about this??
I did email Dr. Graham, the Pediatric Cardiologist at MUSC yesterday. Unfortunately he responded by saying he really isn't an expert in this area and that we really should rely on what Dr. Greig told us at our appointment. He suggested I contact Dr. Greig if I have worries or concerns. So I did.
I heard back from Dr. Greig today and he gave me a variety of reasons behind the discrepancy in numbers. He said there can typically be a 10-15% variation in numbers just due to the fact that there were 2 different ultrasound machines used in the measurements. He also stated there are several methods in which the baby's weight is estimated, so it really isn't an apples to apples comparison when you're talking about 2 different machines. He also said this is one reason why they typically don't do growth measurements less than 3 weeks apart, since there is so much variation in the baby's growth from week to week. And on top of all of this, Chase wasn't overly cooperative during the ultrasound and stayed laying on his left side. There's a really good chance the ultrasound tech wasn't able to get a good measurement because of his position. Again, Dr. Greig didn't seem overly concerned. He said based on what he saw, Chase's abdomen growth is on the "lower side of normal" and in cases like this, he typically tells the mom to rest more and eat more. We'll keep an eye on this measurement as we progress, considering we have weekly appointments with Dr. Greig from here on out. I guess I just need to relax and try not to worry (easier said than done!).
In the midst of all of this, I was very grateful to receive an encouraging email from a wonderful friend of mine this morning. She reminded me of a verse that brings a great deal of hope to me right now given our current circumstances:
I did email Dr. Graham, the Pediatric Cardiologist at MUSC yesterday. Unfortunately he responded by saying he really isn't an expert in this area and that we really should rely on what Dr. Greig told us at our appointment. He suggested I contact Dr. Greig if I have worries or concerns. So I did.
I heard back from Dr. Greig today and he gave me a variety of reasons behind the discrepancy in numbers. He said there can typically be a 10-15% variation in numbers just due to the fact that there were 2 different ultrasound machines used in the measurements. He also stated there are several methods in which the baby's weight is estimated, so it really isn't an apples to apples comparison when you're talking about 2 different machines. He also said this is one reason why they typically don't do growth measurements less than 3 weeks apart, since there is so much variation in the baby's growth from week to week. And on top of all of this, Chase wasn't overly cooperative during the ultrasound and stayed laying on his left side. There's a really good chance the ultrasound tech wasn't able to get a good measurement because of his position. Again, Dr. Greig didn't seem overly concerned. He said based on what he saw, Chase's abdomen growth is on the "lower side of normal" and in cases like this, he typically tells the mom to rest more and eat more. We'll keep an eye on this measurement as we progress, considering we have weekly appointments with Dr. Greig from here on out. I guess I just need to relax and try not to worry (easier said than done!).
In the midst of all of this, I was very grateful to receive an encouraging email from a wonderful friend of mine this morning. She reminded me of a verse that brings a great deal of hope to me right now given our current circumstances:
"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." ~ Joshua 1:9
Wednesday, September 9, 2009
Chase Update
We had an appointment this morning with the Fetal-Maternal Specialist, Dr. Greig. They do weekly ultrasounds to gather information on how Chase is growing and developing. I was really hoping we wouldn't get the same ultrasound tech we had last time. Not only could she see scans of the table I was laying on with how hard she was pushing on my abdomen with that durn probe thingy (I was sure I would be bruised by the end of it), she made a comment that REALLY upset me! There I was, at 30 weeks with a baby diagnosed with HLHS, and she makes some horribly inexcusable comment about how she's just "looking for signs of failure" as she gathers measurements n' stuff. I couldn't believe she would say something like that to a patient. I specifically asked NOT to have her as our tech today, and we lucked out!
So during the ultrasound today, Chase was not the most cooperative thing ever -- no surprise there! He was laying on his left side, making it impossible for the tech to get any pictures or measurements of his heart. Typical stubborn boy! But she was able to gather other measurements, which was good. We asked her what his weight was estimated to be and she told us 4 pounds. We were quite surprised because 8 days ago when we were at MUSC for an ultrasound, they too estimated his weight to be 4 pounds. So that tells me he hasn't gained any weight in 8 days! Surely that can't be good!
Later when we met with Dr. Greig, he gave us another piece of interesting news. He said that the growth of Chase's abdomen was not on par with the rest of his body. His abdomen was only in the 16th percentile, which is much lower than his other growth percentiles that are in the 50s to 70s. I was majorly concerned about this, coupled with his apparent lack of weight gain. Dr. Greig's only suggestion was that I eat more. Ya. That's it! Eat more! He didn't seem overly concerned about it, but I couldn't help but worry a little bit.
I emailed Dr. Graham, the Pediatric Cardiologist we saw at MUSC last week to see if he had any different thoughts on this, whether or not it's normal or expected to see this in an HLHS baby, etc. I'm hoping and praying everything is still okay with my sweet baby boy and that he won't have any additional complications once he's born.
Please be praying for Chase, for his continued growth and development, for his weight gain and for him to be born as healthy as possible so he can be prepared for the surgery that awaits him.
So during the ultrasound today, Chase was not the most cooperative thing ever -- no surprise there! He was laying on his left side, making it impossible for the tech to get any pictures or measurements of his heart. Typical stubborn boy! But she was able to gather other measurements, which was good. We asked her what his weight was estimated to be and she told us 4 pounds. We were quite surprised because 8 days ago when we were at MUSC for an ultrasound, they too estimated his weight to be 4 pounds. So that tells me he hasn't gained any weight in 8 days! Surely that can't be good!
Later when we met with Dr. Greig, he gave us another piece of interesting news. He said that the growth of Chase's abdomen was not on par with the rest of his body. His abdomen was only in the 16th percentile, which is much lower than his other growth percentiles that are in the 50s to 70s. I was majorly concerned about this, coupled with his apparent lack of weight gain. Dr. Greig's only suggestion was that I eat more. Ya. That's it! Eat more! He didn't seem overly concerned about it, but I couldn't help but worry a little bit.
I emailed Dr. Graham, the Pediatric Cardiologist we saw at MUSC last week to see if he had any different thoughts on this, whether or not it's normal or expected to see this in an HLHS baby, etc. I'm hoping and praying everything is still okay with my sweet baby boy and that he won't have any additional complications once he's born.
Please be praying for Chase, for his continued growth and development, for his weight gain and for him to be born as healthy as possible so he can be prepared for the surgery that awaits him.
Tuesday, September 8, 2009
Baby Josiah
When hubs and I went to MUSC last week for my first appointment, we had the privilege of meeting Erin and Milo Wilson, the parents of lovely Daylia and Hazyl and sweet baby Josiah. Josiah was born May 20th at MUSC with Hypoplastic Left Heart Syndrome (HLHS), the same heart defect Chase was diagnosed with at 20 weeks. Josiah has had a rough journey, his diagnosis more complex than Chase's since he was born with an intact atrial septum. It's been a difficult road for this little guy, but his wonderful parents and the amazing staff at MUSC have been with him every step of the way!
Erin and Milo were informed a few weeks ago that little Josiah would need to stay at MUSC through his second HLHS heart surgery, usually performed around 6 months. Can you imagine balancing some form of a family life with two precious girls and a baby in the hospital while temporarily living in a city that is not your hometown? It's overwhelming to me just to think about it, but Erin and Milo are leaning on the Lord during this time and He is getting them through it!
On Friday, Josiah had a heart cath to determine his readiness for the second HLHS surgery. The results indicated he's not ready for the second surgery, rather, he'll need another open-heart surgery to repair his left pulmonary artery. This surgery has been scheduled for tomorrow.
Please keep sweet Josiah in your prayers, especially tomorrow as he undergoes another open-heart surgery. This little guy is so precious, and his parents are without a doubt two of the nicest people on the planet! They have a real love and passion for serving the Lord and my hope and prayer is that God will heal this beautiful baby boy!
For more information on baby Josiah, check out his blog here. And please keep him in your prayers tomorrow!
Isn't he a cutie??
Erin and Milo were informed a few weeks ago that little Josiah would need to stay at MUSC through his second HLHS heart surgery, usually performed around 6 months. Can you imagine balancing some form of a family life with two precious girls and a baby in the hospital while temporarily living in a city that is not your hometown? It's overwhelming to me just to think about it, but Erin and Milo are leaning on the Lord during this time and He is getting them through it!
On Friday, Josiah had a heart cath to determine his readiness for the second HLHS surgery. The results indicated he's not ready for the second surgery, rather, he'll need another open-heart surgery to repair his left pulmonary artery. This surgery has been scheduled for tomorrow.
Please keep sweet Josiah in your prayers, especially tomorrow as he undergoes another open-heart surgery. This little guy is so precious, and his parents are without a doubt two of the nicest people on the planet! They have a real love and passion for serving the Lord and my hope and prayer is that God will heal this beautiful baby boy!
For more information on baby Josiah, check out his blog here. And please keep him in your prayers tomorrow!
Isn't he a cutie??
Monday, September 7, 2009
Finally!
I purchased my first Apple computer, a MacBook, in May 2007 and have loved every single day with it. I was a bit apprehensive at first to make the big switch from a PC to Mac, but it truly was the easiest adjustment and by far the best decision I've made technology-wise in my life! I'm not a crazed Apple lunatic, though... just want to make that clear. However, I have been pining for an iPhone pretty much since day 1 when they first appeared on the market. Unfortunately, we've been unhappily-loyal Verizon customers for years although I have hopelessly tried to convince hubs to ditch Verizon for our friends at AT&T so I can enjoy the pleasure of owning an iPhone. Up until yesterday, it was a tough battle with a very bleak outcome.
Recently I discovered that we are eligible for a butt-kickin' discount on AT&T service through hubs' employer. Whaa? Seriously?! The ironic part is that we also have a discount on our Verizon service through his employer, which we've been taking advantage of for years! So I was quite excited and pleased to find out that this same discount is available to us at AT&T. So I did a comparison -- apples to apples (no pun intended) and get this! It turns out a new contract with AT&T (including an iPhone for yours truly) will actually cost LESS than our current contract with Verizon. Where has this information been all my life?!?!
SO... I am now more than overjoyed to say that I am now the proud owner of my very own iPhone 3GS! Yep! We finally did it! I shall forever remember Friday, September 4th as the day I finally purchased an iPhone. The past few days have been ahhhmazing, to say the least! It's ridiculous how EASY everything is with this thing! Texting, pictures, web browsing, emailing, you name it, it's easier with an iPhone. My poor darling hubs has to suffer with a Sony Ericsson slider phone, and you should see how long texting takes on that bad boy. I hope for his sake that practice makes perfect!
But in the meantime, I'm enjoying every second of my new iPhone ownership! Woot!!!
Recently I discovered that we are eligible for a butt-kickin' discount on AT&T service through hubs' employer. Whaa? Seriously?! The ironic part is that we also have a discount on our Verizon service through his employer, which we've been taking advantage of for years! So I was quite excited and pleased to find out that this same discount is available to us at AT&T. So I did a comparison -- apples to apples (no pun intended) and get this! It turns out a new contract with AT&T (including an iPhone for yours truly) will actually cost LESS than our current contract with Verizon. Where has this information been all my life?!?!
SO... I am now more than overjoyed to say that I am now the proud owner of my very own iPhone 3GS! Yep! We finally did it! I shall forever remember Friday, September 4th as the day I finally purchased an iPhone. The past few days have been ahhhmazing, to say the least! It's ridiculous how EASY everything is with this thing! Texting, pictures, web browsing, emailing, you name it, it's easier with an iPhone. My poor darling hubs has to suffer with a Sony Ericsson slider phone, and you should see how long texting takes on that bad boy. I hope for his sake that practice makes perfect!
But in the meantime, I'm enjoying every second of my new iPhone ownership! Woot!!!
Sunday, September 6, 2009
The Little Things
These days, it doesn't take much to make hubs and I happy. We know we have a whirlwind of activity that is just over the horizon, so honestly, we find joy in the simplest of things. Case in point: hubs replaced the headlights on our Jeep. And we are both in love with the results. Isn't that crazy? It seems so insignificant, but to us, it made such a world of difference to our beloved vehicle. I still don't understand why they got so weird and foggy-looking, and even though hubs attempted to "fix" them (it didn't work), purchasing new ones seemed to do the trick.
Earlier this summer, the engine blew at just over 100,000 miles. This was not expected and resulted in dropping about $5,200 on a new one. We've had both front window regulators die on us, which basically means the windows would go down, but not up. So hubs replaced them. Let's see... I think there's been a tire purchase, a brake job and something relating to the transmission over the past year or so, too. So basically, we've more or less "purchased" a "new" car, which we plan to keep for all eternity!
So here's a visual of hubs latest project. And if you see him, ask him about how much he saved on these bad boys! The genuine Jeep headlights would've been over $300 -- he got these from an after market retailer on eBay for less than $100! Woot!
BEFORE:
AFTER:
Earlier this summer, the engine blew at just over 100,000 miles. This was not expected and resulted in dropping about $5,200 on a new one. We've had both front window regulators die on us, which basically means the windows would go down, but not up. So hubs replaced them. Let's see... I think there's been a tire purchase, a brake job and something relating to the transmission over the past year or so, too. So basically, we've more or less "purchased" a "new" car, which we plan to keep for all eternity!
So here's a visual of hubs latest project. And if you see him, ask him about how much he saved on these bad boys! The genuine Jeep headlights would've been over $300 -- he got these from an after market retailer on eBay for less than $100! Woot!
BEFORE:
AFTER:
Wednesday, September 2, 2009
First Appointment at MUSC
Well, we're back safe and sound from our trip to Charleston for my first appointment at MUSC. Overall it was a great day and we met some wonderful people! The staff at MUSC truly was amazing -- very nice, knowledgeable and informative! All of them took the time to provide us with the information we needed and answer all of our questions.
Our trip started Monday night when we went to view FOUR rental properties. It was a L-O-N-G evening but I'm happy to say LO behaved the entire time -- for the most part! Three of the four were 2BR properties within a 3 block radius of MUSC. The location was great, but the size was way too small for our needs. The fourth and final property we looked at was a house in a residential neighborhood about 10 minutes from MUSC. While we don't care for the distance, we think it's doable and ultimately would give LO the most comfort and familiarity with her usual routine. The house essentially has 4 bedrooms, 2.5 baths and a lovely yard where LO can play. I must admit I loved the granite counter tops and stainless steel appliances in the kitchen, although I can't imagine I'll be spending too much time in there. We're very happy to have finally made a decision on this so we can move forward with the rest of our planning and decisions for our time at MUSC. Hurray for progress!
Unfortunately, Monday night at the hotel turned into a bit of a nightmare. LO was apparently in NO MOOD to sleep. At all. Like, all night long. She was in her pack n' play in the room with us, and for whatever reason, refused to go to sleep. We ended up putting an Elmo DVD in around 3AM, which kept her attention for a short period. Then it was more fussing and whining. Then we did the unthinkable: we put her in our bed with us. This was the FIRST TIME we've EVER had her (attempting to) sleep in our bed. We just never wanted her to get into that habit. But we were desperate. We needed to get up at 6:30 AM so we could be at MUSC for my 8AM appointment, so sleep was so desired, but yet never attainable. Hubs ended up going into the other room and firing up his laptop around 5AM to get some work done, while I continued to try to get LO to get at least a tiny nap in before our marathon day at MUSC. Finally, around 5:30 AM, she fell asleep next to me in bed, and managed to get a good hour and a half nap. It wasn't much, but it was better than nothing. I think between the three of us, we probably had a combined 4 hours of sleep that night. NOT awesome.
Tuesday morning we were up and on our way to MUSC, and managed to make it to our 8AM appointment on time! Woot! The staff was super nice and the PC (Pediatric Cardiologist) we met with after my ultrasound/echo was extremely kind and informative. He explained everything to us in detail, which was a huge blessing. He explained that the echo definitely showed the HLHS diagnosis, and that there really weren't any unexpected surprises. He said that Chase isn't exactly a "textbook" case because there are 2 things the echo showed that aren't common in HLHS babies, but that at least one of them might actually work in our favor because it is allowing his aorta to grow larger than what they typically see. The other issue he wasn't 100% sure about but said the echo they do after he's born should be clear enough to determine exactly what's going on. This issue slightly adds to the complexity of his surgery, but it isn't a huge deal or anything that changes the overall game plan for his surgeries, etc. We were very pleased with what we heard and with the answers to our questions.
I then had the joy and privilege (please sense sarcasm here) of having an OB appointment with the "Prenatal Wellness" department. It was a few blocks from MUSC, so we had a nice walk over there. Seriously, once we got in there I felt like we were at a free clinic. It was weird. The waiting area was full of some unusual characters! But the staff was really nice and I was very pleased with the ultrasound tech. She got some GREAT pictures of Chase:
Here's one of his profile. Isn't he a cutie?
Here's a 4D image of his face. The cord was floating around over his right shoulder, and I think he had an arm up by his head, too. He definitely has mommy's pouty-face down pat (as does his big sister!).
After the OB appointment, we headed back to MUSC for a tour of the PCICU. It was incredible to see the area where our precious son will spend the first few weeks of his life. It really was a wonderful facility and I am confident my baby will be in the best care at MUSC. Such an encouragement!
We ended our day on a fabulous note -- we got to have lunch with Erin and Milo Wilson, whose sweet baby Josiah is currently recovering in the PCICU from his first HLHS surgery. This wonderful family lives in the same area as us, and have been at MUSC since May when Josiah was born. If you have time, you need to read her blog. She is a great writer and has shared a lot of insight into her family's journey with HLHS. Hubs and I had such an amazing time with her and Milo -- it truly felt like we were catching up with old friends! They were very easy to talk to and are such a wonderful resource for us since they've "been there, done that" and can give us some insight into what we can expect going forward. It was such a blessing to meet them!
So, on a final note, I will mention that it sounds as though my induction will be scheduled for Monday, October 26th. I'll check into MUSC Sunday evening, October 25th to get the ball rolling, but the induction won't officially begin until Monday morning. So hopefully, God-willing, at some point on October 26th, hubs and I will be the proud parents of our sweet baby Chase! Please keep us in your thoughts and prayers as we continue to make the necessary arrangements for our stay in Charleston, and for peace and strength as we travel this uncertain journey that lies ahead. We are confident God is in control and will see us through!
Our trip started Monday night when we went to view FOUR rental properties. It was a L-O-N-G evening but I'm happy to say LO behaved the entire time -- for the most part! Three of the four were 2BR properties within a 3 block radius of MUSC. The location was great, but the size was way too small for our needs. The fourth and final property we looked at was a house in a residential neighborhood about 10 minutes from MUSC. While we don't care for the distance, we think it's doable and ultimately would give LO the most comfort and familiarity with her usual routine. The house essentially has 4 bedrooms, 2.5 baths and a lovely yard where LO can play. I must admit I loved the granite counter tops and stainless steel appliances in the kitchen, although I can't imagine I'll be spending too much time in there. We're very happy to have finally made a decision on this so we can move forward with the rest of our planning and decisions for our time at MUSC. Hurray for progress!
Unfortunately, Monday night at the hotel turned into a bit of a nightmare. LO was apparently in NO MOOD to sleep. At all. Like, all night long. She was in her pack n' play in the room with us, and for whatever reason, refused to go to sleep. We ended up putting an Elmo DVD in around 3AM, which kept her attention for a short period. Then it was more fussing and whining. Then we did the unthinkable: we put her in our bed with us. This was the FIRST TIME we've EVER had her (attempting to) sleep in our bed. We just never wanted her to get into that habit. But we were desperate. We needed to get up at 6:30 AM so we could be at MUSC for my 8AM appointment, so sleep was so desired, but yet never attainable. Hubs ended up going into the other room and firing up his laptop around 5AM to get some work done, while I continued to try to get LO to get at least a tiny nap in before our marathon day at MUSC. Finally, around 5:30 AM, she fell asleep next to me in bed, and managed to get a good hour and a half nap. It wasn't much, but it was better than nothing. I think between the three of us, we probably had a combined 4 hours of sleep that night. NOT awesome.
Tuesday morning we were up and on our way to MUSC, and managed to make it to our 8AM appointment on time! Woot! The staff was super nice and the PC (Pediatric Cardiologist) we met with after my ultrasound/echo was extremely kind and informative. He explained everything to us in detail, which was a huge blessing. He explained that the echo definitely showed the HLHS diagnosis, and that there really weren't any unexpected surprises. He said that Chase isn't exactly a "textbook" case because there are 2 things the echo showed that aren't common in HLHS babies, but that at least one of them might actually work in our favor because it is allowing his aorta to grow larger than what they typically see. The other issue he wasn't 100% sure about but said the echo they do after he's born should be clear enough to determine exactly what's going on. This issue slightly adds to the complexity of his surgery, but it isn't a huge deal or anything that changes the overall game plan for his surgeries, etc. We were very pleased with what we heard and with the answers to our questions.
I then had the joy and privilege (please sense sarcasm here) of having an OB appointment with the "Prenatal Wellness" department. It was a few blocks from MUSC, so we had a nice walk over there. Seriously, once we got in there I felt like we were at a free clinic. It was weird. The waiting area was full of some unusual characters! But the staff was really nice and I was very pleased with the ultrasound tech. She got some GREAT pictures of Chase:
Here's one of his profile. Isn't he a cutie?
Here's a 4D image of his face. The cord was floating around over his right shoulder, and I think he had an arm up by his head, too. He definitely has mommy's pouty-face down pat (as does his big sister!).
After the OB appointment, we headed back to MUSC for a tour of the PCICU. It was incredible to see the area where our precious son will spend the first few weeks of his life. It really was a wonderful facility and I am confident my baby will be in the best care at MUSC. Such an encouragement!
We ended our day on a fabulous note -- we got to have lunch with Erin and Milo Wilson, whose sweet baby Josiah is currently recovering in the PCICU from his first HLHS surgery. This wonderful family lives in the same area as us, and have been at MUSC since May when Josiah was born. If you have time, you need to read her blog. She is a great writer and has shared a lot of insight into her family's journey with HLHS. Hubs and I had such an amazing time with her and Milo -- it truly felt like we were catching up with old friends! They were very easy to talk to and are such a wonderful resource for us since they've "been there, done that" and can give us some insight into what we can expect going forward. It was such a blessing to meet them!
So, on a final note, I will mention that it sounds as though my induction will be scheduled for Monday, October 26th. I'll check into MUSC Sunday evening, October 25th to get the ball rolling, but the induction won't officially begin until Monday morning. So hopefully, God-willing, at some point on October 26th, hubs and I will be the proud parents of our sweet baby Chase! Please keep us in your thoughts and prayers as we continue to make the necessary arrangements for our stay in Charleston, and for peace and strength as we travel this uncertain journey that lies ahead. We are confident God is in control and will see us through!
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